Well, I feel that I am back in the position where my surgeon isn't listening again. He seems to have reverted to his old "I've fixed you now" attitude.
When I got in today I told him that I still feel rubbish and am having a lot of the left sided pain that I had been having since the last flare up in April and the one that resulted in him taking the hardware out in August. I told him that the pain gets worse with activity (not that I can do a lot still) and that I am taking my painkillers regularly yet am still in pain all the time.
He basically said that it is too soon to say anything about the pain or to order more scans yet.
He said that my screws were very loose on the right (makes sense, until August all my previous flare ups had been right sided) but that the infection was spread all over the metal.
He said to finish the course of antibiobtics (they run out Wed) and then go for bllod tests in two weeks. He has also done x-rays to "assess the state of the fusion".
I told him I was scared to stop the antibiotics in case the infection comes back. He told me it wouldn't, but I have heard that before. (Last October and May!!)
The thing is that I really don't think he has sorted this out yet. This pain I am having is really horrible. I can't imagine how I will manage to go back to work if it doesn't get sorted out. It definitely gets worse with activity - I currently walk once a day for about 35 minutes. The other day I added a brief trip to the small local shop and I really hurt that night and the next morning. The pain is mostly in the left side of my lower back, maybe near my pelvis, I can't really pinpoint it though. When it gets bad it then goes through my hip, down my thigh, into my calf and even into my foot.
Anyway, I am seeing him again in three weeks and hope that he will listen to me then. He did say that now that the metal work is out that he would be able to see more on scans so maybe he will do some sort of scan next time?
I do feel pretty fed up at the moment. We have cancelled our holiday to Cornwall in three weeks because I don't think I could do the journey and even of I could I wouldn't be able to do anything once I got there!
Thanks for listening