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Low Back and Sacroiliac Joint Pain

I really appreciate each and everyone on this site who take the time to help each other and work to find information for others going through the probmlems they face. I am reaching out to my Spine-Health family for some info on my problems. I had a ACDF C4-C7 in 2003. I had very good luck with this procedure, other than now my neck is full of arthritis. Now, I am having extreme low back pain, along with left hip pain, leg pain, coccyx pain, and starting to have incontinence problems. Not to be too graphic, but I sometimes urinate, think I am done, zip back up, only to have urine drip down my leg afterwards. Recently, I urinated in bed, and did not even know I had done it till I awoke. Has anyone else had this problem, and is this something serious? Anyone that can give me some direction I will be most thankful.


  • Hossamoto,

    Sorry to hear you are going through all this. Some of the "urine" issues I too have thanks to stenosis (epidural fat) at the L5/S1 levels - my surgeon feels it is from my neck! (grrr)

    Have you had NVC/EMG studies and updated MRI's of your lower spine? I ask that due to urine issues can also be from what is called Cauda Equina issues... "The nerve bundle tail we get below the L1 or L2 (me, I'm an L2). It can effect bladder or bowel control.

    So far I've not messed in the bed. I stand up from bed 'full' and I lose half of it, or like you, can't void completely. My surgeon is aware of mine, and not sure of Cauda involvement - surgery next week, and if still there,...neck becomes stable, we'll hit the L5/S1.

    But bladder/bowel can be a medical emergency in many instances. Have you seen a Urologist? I ask that (I am female), but an infection (bladder) can also cause problems - it would be good to rule those out. Please let us know how it turns out.

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.

    Thank you for your reply. I am just begging for anyones experience. I have been on many pain meds and neuropathic pain meds for quite some time. I have had NVC/EMG tests done along with a FULL spinal x-ray. From the opinion of the radiologist and my last doctor, my doctor thinks I have a severed nerve in my back, possibly in my lumbar spine.

    I have been fighting with my insurance for almost 2 1/2 years for a FULL spinal MRI. Since I had my ACDF C4-C7 in 2003, I have had no further MRI's to verify fusion. My pain started out with terrbile pain shooting down my left leg upon standing from bed. As soon as I put my foot on the floor, I would cry crocodile tears all the way to my couch. After 15-20 min's of rubbing my leg, it would subside.

    Now, I have constant pain in my lumbar region, traveling to my lft buttock, to the left side of my buttock, and down my leg. Just within the last 3 weeks, I have started having terrible pain in my coccyx, with a "crunching and popping" sound, when I squeeze my buttocks together. I sit for 12 hours a night, and it absolutely kills me.

    I have had epidural injections which only lasted about 4 days, after the initial pain from it wore off. I have tried TENS, massage, chiro, Fentanyl, Norco 10/325, Oxcycodone 5mg and now 15mg. Lyrica, gabapentin, valium, and citalopram. The oxycodone and gabapentin is all I take right now. It helps but still doesn't stop the pain, just barely makes it bearable at times. I am ready to go to the next step and do whatever is neccesary to do all that I can to help myself.

    Thank you again and once again sorry for the length. Thanks to everyone who takes time out of their busy lives, and types through the pain to help out a fellow Spiney. You are all appreciated.
  • No, your post length is not bad at all!!! :)

    I am glad to see you've had electrical studies and too MRI's - sorry about your insurance, they can be (you know) some times!!

    Similar to you, I can wake up, put the digits on the floor, and yowzer 101 is in charge for a while!! Me, most of my pain issues are nerve, so Lyrica (got bumped from 300mg to 450mg last month) takes care of most of that). When my back gets going, I have Percocet (replaced with Oxycodone by my pharmacist) takes care of the mechanical pain issues.

    My legs are weak, and I thought it was due to my issues at my L2/3/4 (L2&3 nerves) and my L5/S1, but my surgeon feels more of it is from cord damage (myelopathy) in my neck. I guess we'll know in a week...(G)

    My best 'non doctor' fellow nerve/spine advice? Be your own advocate, and listen to your body. If it doesn't agree with what your doctors are telling you, go to other specialists to see what is going on. No, not doctor shopping, but your body and YOU know when something is just not right. I did that, and found (what I suspected), my fusion failed and fubar'd my cervical and the top of my thoracic.

    Keep fighting the fight!!!! Gentle support *HUGZ* of understanding and support... :)

    PCTF C4 - T2, Laminectomies C5, C6 & C7. Severe Palsy left arm/hand.
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