Okay, I try, I really try, not to complain and to focus on the positive things in life, I really do. I mean, my life is pretty good right now, I just moved into a great little house that I absolutely love, I'm "retiring" (albeit because I have to for medical reasons about 20 years before I planned on it), I'm going away on a trip next week with my mom to celebrate my "retirement" and to thank her for all the help she's given me.
But it's days like the past few that make it hard to keep positive. The headaches that have relentlessly plagued me for more than 3 years now, have been so much worse lately. Today, I actually had to get my mom to help me get dressed, which happens more than I care to. My pt called yesterday and said until the surgeon gives more info, she's releasing me, and when I asked why, her answer was "Well, this isn't the end all and be all". So I just said yes, sure, thanks and hung up, while thinking that's easy for her to say, as she has full use of her arm that doesn't burn and spasm with pain 24 hours a day.
Then to find out that back in July, the hospital had scheduled me for an EMG for the beginning of Oct and neglected to inform me of it, so I missed the appointment and I now have to wait until December, this after me calling them several times leaving messages asking about it. The ortho that I'm seeing for a 2nd opinion has everything he needs to see me, so I don't know what his hold up is with making an appointment, but I'm not even sure I want to see him, as the last time I saw him he said he thinks the reason for the paralysis was the way I was positioned on the table... Yeah, not too confident in any opinion he may give anyways. I do have a referral in for another ns here in my own city, but historically that can take up to a year, I think now it's down to about 6 or 7 months, so I should be getting in sometime around next March.
My arm isn't getting any better, I haven't had any improvement in months, the spasms in my neck and shoulders are just getting worse which are causing my headaches to get worse. At least the SI RFA took out a little bit of my lower back pain. I'm just tired, but I can't sleep because my head is so sensitive the pressure hurts to lay down. I did get an e-mail from the spa saying they are waiting for us for some serious pampering, lol. That made my day, but I can't help but feel a little apprehensive about the travelling part of it. Seriously need to get some of those transporter thingys from Star Trek...
What do I do about the pt? Do I complain to my doctor?
APROUD CANADIANveteranButNOTa doctor, my thoughts are my own