Ok I need help from fellow Spineys! Anyone who has been through back fusion and experienced anything remotely like I am going through. First off just had ALIF surgery a week ago on two levels L4-5 and L5-S1. I did great in hospital 4 days was up day after surgery making two loops walking around hospital. By The 4th day was walking,dressing myself everything. So I went home had normal surgery pain in back and stomach, but could take care of myself, I live in country and started walking clear down driveway to mail box and back on my own things seemed to be going good. I still had back pain but the meds helped with that and my pre nerve pain in my legs was gone. Then things went hay wire around the 7th day. It's kind of hard but will explain to the best of my ability, hoping someone will have been through this and can give me their experiences.
First thing I all of a sudden started getting shooting random pains down the middle of my back, my back would go out then it would be over. At the same time my back started hurting so bad all the time in the middle and over to the right where I had to call the doctor and tell him my meds were not controlling my pain. That's when they said they would up the pain meds and the made me a pre-op appt the next day and I would pick up the script then and could talk to the doctor.
While all of this is going on I am suddenly having jerk like spAsms all the time when I get tired. I will start to fall asleep easily then my phone or lap top will jerk and fly out of my hand. Weird never ever had these jerks before.
Anyway so the next day I went to the appt talked to the doctor looked at my X-rays, he upped my pain meds and told me the pain on the right side might be the SI joint and he sets up an appointment for me to get a shot for tha joint to help with the pain he also said this doc might be able to help me with my neck also which I had a fusion on two years ago and now all of a sudden is also causing me extreme pain.
So anyway after the appointment things don't seem to bad, I got meds for my pain and I am going to see someone about the S I joint and then my neck, other then that the healing seems to be going alright, I am doing tons of walking and practically taking care of my self. Me and my daughter even stop at Costco on the way home and got a few things, we also picked up my new prescription. I know this sounds crazy but suddenly all hell broke loose by the time I got home and hubby was a witness to the horror.
On the way home because first off all it's a hour and a half trip to the doctor, then an hour and a half home, then an hour at Costco and half an hour picking up my new medicine from pharmacy. So by that time I am suddenly starting to hurt so took one of the pills on the way home. When I got home I was hurting bad I walked into the kitchen I got an electric shock down my spine and back went out at same time, I screamed and grabbed the counter to keep from falling. This was the worst pain of my life. Now I couldn't walk so hubby helped me to bed. I decided that pill wasn't working for crap so took another because it says 1-2 every 4 hours. So I lay there awhile biting my tongue in pain, meds are not working, waiting for second pill to kick in. Of course then I have to go to bathroom ugghhhh I asked hubby to come help me so he puts his arm around me and try's to pull me up and the electric shock and back lock up hit at the same time again and I scream in hubby's ear. Let me tell you I have been through alot of pain in my life but never so bad I actually let out a scream like I have been stabbed. It's like when I go to sit up now or stand the pressure on my spine in the middle sends an electric shock and pain so bad from the pressure it just gives out or just locks. So this happens a few more times and I am getting scared.
So now almost every time I almost fall asleep this is when I am not moving at all. I fall asleep and am waken up by an electric shock in my spine where I jerk awake practically bouncing in the air screaming body jerking then my back locks for a few seconds in that extremely painful moment. So I finally make it through the night after taking just about everything I could to go to sleep. Well I try to get up this morning and it happens again, my husbands not home, I am scared to death because I am just laying here doing nothing and this pain shoots through me and wakes me up and can't breathe at the same time. So this next one I am laying here holding my phone I get this electric shock, locking of my back, body jerks and phone flys out of my hand and I am really scared because I can't move and no help. The pain is so bad I don't want to reach for the phone and get another shock. Anyway I lay there long enough deciding if when I get the phone I am just going to call the ambulance or what. I finally get the phone and decide I am going to just take lots of meds and stay in bed all day maybe this is all happening because I have been doing too much. So that is my plan as well as calling the doctor to let them know what is going on.
I feel totally weird with all this stuff going on suddenly and many things all at once. It is so hard to deal with and feel normal after surgery. In fact was never told what was normal or not normal to do or feel after surgery during recovery anyway. What I need to know is if anyone recovering from fusion has ever had these extremely painful shocks in spine and if so what happened or what were they called or what was your diagnosis. Please help I am scared, in pain and now suddenly feel like things are going crazy and who is going to believe me anyway.