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If I posted

daisy maeddaisy mae Posts: 109
edited 06/11/2012 - 8:57 AM in Pain Management
Hello all,
Just wondering, if I posted my last mri (it's 4 pages but I would only put the important parts my dr underlined and such) could I get your opinions? The drs say one thing and I FEEL totally different.
I have been on Lyrica (bad reaction), Neurontin (got up to 900mg and figured it wasn't working and I was mad I gained weight) so I tried Topamax. Oh my, it was two months of hell (pardon the french) Ultimatley I lost my mind and it was very scary, I am ashamed to say the things that happened so it will be my dirty secret..with my poor family. So Needless to say, I am back on Neurontin and I am up to 700mg and I am in unbearable pain. (My pain is lower back but I have issues in my neck as well and it goes on me..I went to bed with it killing to lift and now I am suffering greatly)
I know I have severe ddd, but the dr (family dr) doesn't really know about the other stuff and I believe she just fluffs me and gives me pills.
My pm dr (not a real pm..he does physical rehab but it's all we had in our city) did nothing for me...he always said be PATIENT! Patient..how? You are wasting away. Anyways, the last time we went in I demanded things..and he is now sending me to a NEW PM dr who just opened up in my city! He is pasrt of a chroinc pain group..they do mental and physical and accupuncture. So maybe that was the answer to my prayers. Someone MAY really hear me out. My mri does not propperly convey the pain I feel but the pain I feel is directly where the mri shows disc issues..so they DO KNOW it's not in my mind! It just so frustrating.
I am also on 8mg Dilaudid and I have NO PAIN relief. Any other suggestions? I cannot take fentanyl.
Thanks guys for being here for me :)


  • Welcome to sh site,
    Even if you posted your results, we are not qualified really to read them(even tho after so many of them I should know). Often those reports can really be scary. For me first time I read one I thought I was a mess.
    It's so much hell to go thru to find a mix that's right for each person. I also had nothing but pure hell, taking all those convulsion type of meds.
    Perhaps a new pm is just what you need, and don't give up it takes long long time to find a right fit to get a doctor that gives you the attention you so need.
    I am in same boat meds either made me sick or got freaked out (my poor family.
    Hang in there, and keep searching to find a doctor that will listen to you.
    From what your post says you have seen your general doctor and a Pain mang. doc. Perhaps its time you get opinion of a specialist.
    Keep posting , venting and I hope you find someone to help you very soon
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
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