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Emergency Room...again

lcarpenterlcarpenter Posts: 119
edited 06/11/2012 - 8:57 AM in Chronic Pain
In the emergency room again last night due to severe pain. Feeling so helpless and frustrated. I HATE what this back injury has done to my son and I wish the rest of the world could understand what he/we are going through instead of being so judgmental and critical. Saddest thing last night was what my son said while waiting for the (very rude) doctor - "I'd give up everything else in my life if I could just play baseball again." He's 18. He SHOULD be able to play baseball if he wanted to. Ugh. Just needed to vent a little.


  • Sorry to hear, seems like he has tried all "conservative" treatments. Have you consulted with a neurosurgeon?
    ACDF C4-5 June 23rd, 2011

    Another surgery in the near future. I am 26 years old.

    Current Meds- Norco 7.5/325, Cymbalta 60mg, Gabapentin, Adderall 20mg
  • We've been to many different doctors - spine specialists and neurosurgeons included. Every single one of them has said they WOULD NOT do surgery on an 18-year-old due to the risks involved. And, after reading many of the stories on this website I can see how risky surgery can be and how much worse it can make things. Along with so many wonderful folks out there, I'm just hoping and praying for SOMETHING that will come along and actually help - and hopefully in time to save my son's emotional health which is really taking a beating.
  • Hi Donnabe. Thank you so much for your suggestion. How have you done since your fusion? You are so young also to be having such problems :( . I hope you are doing great!!!
  • I'm sorry you and your son are going through. But, thank goodness for being young. At least he is getting some relief. So he can enjoy his youth!!! I know it hurts to see our children suffer! My prayers are with you. Hugs, Bremda C.
  • Hi, Hopefully your son will be able to get on in spite of his injury.

    If he has any other problems in the immediate future, could he be seen by a pediatric neuro or has he already seen one for children? I'm not sure when they move a person on to a regular neuro.

    Glad he seems to be doing a little better today. How bout you?

  • Thank you Breanda for the understanding. It really does help to know that someone understands!!! And yes, being young does help sometimes!!!
  • He has seen a pediatric neurologist, but the doc referred him to a regular neurologist just before he turned 18. So far no one thinks that there are any surgical options that would be worth the risks. So we're just kind of in a holding pattern dealing with the everyday pain and the occasional really bad flare up of extreme pain. Thank you for asking graciegirl. I am okay. I've found that I don't bounce back after these all-nighters nearly as well as he does - even though he's the one in pain! :)But after a few years of this I've also learned that I tend to be much more emotional and "down" when I'm really tired and that things will seem better tomorrow. My son, meanwhile, has gone out to eat and then went to visit his 16-year-old cousin who had back surgery two days ago for a very similar condition - go figure - he's only been to one doctor and boom - surgery.
  • I don't know what keeps you sane. Has to be the worse thing to see your son in pain(harder than being in pain)
    The er docs do not have enough practice dealing with chronic pain at all. After you get some rest yourself please don't let that doc or staff have a pass, write or email the head of hospital. And believe me it does go noticed.
    I don't know how I could handle this much pain and being that young. It's hard enough at 52.
    And I'm way to young.
    If your insurance allows it just keep going to different docs.
    I see he has tried a lot of treatments, and no doc has even diagnosed what he has wrong. So you take all his discs or films and keep going doc to doc.
    And when he's feeling good he probably is trying to do whatever he can, so can be over doing things.
    I know I do it.
    I shall keep you both in my prayers and I hope you find him answers and treatment.
    Of course not many docs are going to operate at that age, which is good they are being careful but everyone is different in how things effect us.
    Since his cousin had same issues can you bring him to that doc for his opinion.
    I wish you the best
    Hang in there.

    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • Thank you so much, Mary. I'm actually not really sure how sane I am at any given moment - lol. I had also thought about reporting the doctor and the nurse to the hospital. I know that they probably get people in there seeking pain medication prescriptions all the time, but they were unbelievably rude to us and made my son feel so bad. He just kept appologizing for making me go through that. I just keep crying every time I think about it. Ugh. We will be making an appointment to see his cousin's doctor asap, but I'm so afraid of surgery as there as so many stories out there about it making things worse. Every time I think about it I'm so amazed that the medical community still has such a long way to go when it comes to spine injuries. Thank you so much for the understanding and advice, Mary. I appreciate it more than you know. Particularly today. :)
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