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Hi all. Maybe arachnoiditis??

healthycathhealthycat Posts: 7
edited 06/11/2012 - 8:58 AM in New Member Introductions
Hello everyone. I am sorry to hear that you are all in such pain, but am also grateful to find this site. I had no spine pain until I gave birth to my daughter 2 years ago. I had an epidural and to this day can feel the spot where they put it in. Something happened to me that day and I haven't been the same since. I won't go into all the details, but I would like to list a few of the things that I am experiencing of late and ask if this sounds like arachnoiditis to you all. I have been searching for answers for two years. My spine burns and throbs. I have numbness and pain in my right leg from the thigh to my toes. The tops of my feet burn. I run intermittent low grade fevers for no apparent reason. I have developed an area on my back that is very sensitive to touch and at times itches with an itch that cannot be satisfied. My husband calls it "the spot." I get tingling/buzzing sensations at various places. My neck seems to be achy alot. My lower legs swell off and on. Sometimes I have trouble swallowing (maybe this is something else). Flulike with vertigo at times. Also, a couple months ago I experienced a very brief episode of what I now know is called pleurisy (maybe not associated with this, I don't know). Also, now my shoulder joints have started to feel like this same burning pain. Sometimes the burning goes like this: it will burn for a few days/week, then burn and itch, then hurt/burn, then lighten up. Does this sound like arachnoiditis or anything fimiliar to anyone? Thanks for your time. Any comments/responses will be greatly appreciated.


  • I do not think you have it. Talk to a doctor if you are worried
    Hannah Mueller
  • Thank you for your reply. Like I said, I have been searching for answers for 2 years. And yes, I am becoming worried. The dr.s that I have spoken to have all been VA doctors and sometimes things get lost in the shuffle. Fortunately, I now have health insurance and can go to a different doctor. Previously, I took the stance that well, if something was really wrong, it would eventually "come to a head." At this point it is undeniable that something is wrong. With a lot of prayer, and a little courage (dr.s make me nervous), the answers will come. If you have a moment, would you tell me what it is that leads you to think that this condition is not the cause of my chronic pain, etc. Thank you for your kindness in taking the time to reply.
  • I'm sorry to hear of your problems since the birth of your baby.

    I have no idea if it's arachnoiditis, but am happy to hear that you can go (or get a referral) to a spine specialist or spine surgeon that can prescribe x-rays, MRIs and begin working on the puzzle that is our spine and it's resulting radiculopathy.

    I wonder if carrying the weight of carrying a fetus and the strain of giving birth has done something to your spine that needs intervention. Maybe the epidural hit a nerve that needs to be dealt with, but only a spine doctor will be able to figure out what's happening.

    It may be that conservative PT and/or injections will help (I know that's probably a scary thought), but it is always be best to get checked out thoroughly by a spine doctor and go from there. You may need two or more opinions, but the main thing is to find one that you have complete confidence in.

    They may also refer you to another specialist if it isn's spine-related, but you won't know until you do some investigating. Be your own advocate and get to that first doctor, starting on the road to taking care of whatever it is that's the problem.

    Take care and please keep us posted.

  • Cathie,

    Thanks so much for the ideas on where to start. I do have an upcoming appointment with my new GP and will ask her if she can give me a referral.

    Yes, the thought of injections does make me nervous. I would have to be thoroughly convinced before I could agree to let someone put another needle in my spine. I'm pretty sure the epidural during delivery was not exactly normal. They had given me pain medicine which knocked me out. So, when I went for the epidural I was asleep. I jolted awake during the procedure. The technician doing the epidural yelled at me to never do that. I guess he thought I was awake. The nurse I was leaning on never said anything that I can recall. I must have gone back to sleep after that because the next thing I remember, I was back in the delivery room telling them that my leg was numb.

    You could be on to something about the strain during birth too. I had a 4th degree tear AND the placenta didn't want to come out. The doctor pulled on it and I screamed like I've never screamed in my life. Who knows maybe that in itself caused damage to some random nerve.

    I'll update when I know something new.

    Take care.
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