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New and at a loss....

hotwelshmammahhotwelshmamma Posts: 1
edited 06/11/2012 - 8:58 AM in New Member Introductions
Hi every one, so glad I found this forum.
I am a 35yr old female living in the UK with our lovely national health system.

A quick intro to my battle with the health system. I

In 1997 I was involved in a motorway accident, me in a little Rover Metro and an articulated wagon... to say the least he won. I lost all sensation waist down and had a fractured pelvis. Six months down the line I was back in work full time. I was fine except for niggles but put that down to the heavy lifting involved with my work, I was a bar manager and used to do the stock and moving barrels. Any how went on to have 3 children and the pain in my back by the third ( born 2004 ) I could just about walk, but I carried on determined it was just the usual pregnancy niggles.
In 2007 I was involved in another motorway accident this time the crash barrier won.. you getting the drift here I am not very lucky LOL.
I chose to go home and not the hospital... think it was shock. I should of listened to my partner but hey thats hindsight.
Any how in late 2009 I started getting pains and numbness down the right side leg and bum cheek and burning pain in my lower spine. I was referred to see a Spinal specialist and when to my appointment in January 2010. I was referred for a urgent MRI which I had in May 2010. After MRI I was advised no urgent surgical intervention required so was sent to Physiotherapist. I was at my initial appointment he refused to touch me as he felt the lack of feeling in the right leg, and lack of reflexes in the left leg meant that it was nerve and not muscular damage. Also due to the incontinence I was and still having he felt I needed to be seen by a consultant.I have never seen one. Only due to the facr I have an amazing GP that she has pursued the hospital for me to be seen again. She has had me on dihydrocodeine 50/500 for the last 19 months including Tramadols, and Cymbalta 120mg daily. ON friday I have finally had an apppointment with the Pain Clinic for January 10th 2012.
In the last 2 yrs though, I cant walk more than 10 to 15 mins at a slow pace. I can't sit for long periods. I have weeks were I might sleep for one or two nights because I cannot get comfortable. I cannot drive far distances as I can lose all sensation in my legs. That can happen if I am sat anywhere. I will be honest my pain score for the last 2 years will have been 7 and 8's.
Today my GP has put me on Matrifen Patches..Fentanyl 25mcg. I am hoping to get some relief while I wait to go see the pain clinic. I don't know what's wrong with me, and I don't like to guess. I just hope that I might be taught to find a way to live again, instead of just surviving.
Sorry for long rant, and thank you for taking the time reading xxx


  • hi and welcome to the forum! we are here to offer you support and answer what questions we can. if i understand you correctly you are still having bladder issues!! you really should have this looked at by a qualified doctor.. this is not something to take lightly!!i do hope the pain clinic has alot to offer you.. they should have a wide range of medications and therapies not avaliable to your GP.. this might just give you some much needed pain relief..my pain clinic has given me some new pain relieveing modalities that have proven very helpful.. be sure and have a good look around and make yourself at home here on the forum... stop by anytime!! Jenny :)
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