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another bad week of spasms on my spine

tammycttammyc Posts: 894
edited 06/11/2012 - 8:58 AM in Lower Back Pain
Hi all,
Oh yes another bad week of my spine going into spasms. It started mon. night with bridging backwards and then forwards,tightening so much that by the end of the two hours i had broken veins around my eyes. My husband and daughter helping,holding a large ice pack on my back as the spasms were hitting and giving me pain killers and muscle relaxants between spasms.My daughter was in tears by the end of the second hour. They wanted to call an ambulance but of course i said no.This was the second time now i said i didn't want one but then looking back i should have gone,perhaps the doctors there may have done some tests. When the spasms started to calm down i started to get a horrible itch that went down my spine into my bladder,then up my spine into my upper back and down my arms. Two days later i had a massage and during the massage i started having spasms again,my therapist was so frustrated not being able to get my muscles to relax. Every time he touched my spine it would spasm out of control and the massage made the itch worse. The next day was my apt. with my naturopath. She gave me some more remedies that i'm hoping will help but i don't have much faith anymore that this is going to be fixed.On the way home my back was spasming again. Every day all week long. I'm taking muscle relaxants that are helping mini spasms but not the big ones. The itching ,driving me crazy ,its just started to subside and now the pain is returning. What the ----,i don't understand why thats happening. Has anyone ever had pain turn to an itch and then back again??? I can't get into see my doctor because she's gone on holidays and no one is covering her hours. I guess i have the option of calling the neuro. who didn't want to do anything for me,but i think that would really be a waste of time.He had no idea what the spasms were from when i saw him and he didn't want to find out.I can't continue to have these,there severe spasms that i can't control. What should i do??


  • I'm sorry you've been having so much trouble lately. In your history you've mentioned MRI in 2009. Have any tests, including an updated MRI, been done recently? You might ask your doctor about that. I hope you feel better soon. Love 'n >:D< >:D< >:D< , Ess
  • No tests done since my last Mri. I asked the neuro. that i just saw about doing another mri because that one done before a lot of new symptoms over the last year but he said that he didn't want one done unless i continued to regress over the next few months. He wants me worse off first. He didn't even look over my old mri fully. barely read the report and only looked at one level on the mri which had thoracic and lumbar areas done. He looked at an mri of my cervical spine that was done four years ago prior to my surgery then he did the one of my thoracic and lumbar spine.I haven't even had an x-ray done this year, no tests at all.
  • Why don't you see a different neurosurgeon?
    ACDF C4-5 June 23rd, 2011

    Another surgery in the near future. I am 26 years old.

    Current Meds- Norco 7.5/325, Cymbalta 60mg, Gabapentin, Adderall 20mg
  • SavageSavage United StatesPosts: 5,476
    ...about a doctor who does not have someone covering her while she is off.

    If me...well when it was me...I just continued telling doc nurses... pain still there...pain like this...pain still there... awful pain still there..

    When they asked me questions, I would answer but always bring it back to... pain still there.

    Not using ER instead of doc visit, but many times I needed to go to the ER for pain management during doc's off hours. Pain so out of control I needed like to be rebooted.

    The EMG was most revealing test to my doc for me.. and validated all I was saying. I am not a doc, but I don't know how docs can comfortably ignore you with severe symptoms. And seems odd your therapist is not reporting to doctor what happens during your treatment with her.

    My pain management doc is the one who knows and understands me best. My primary couldn't help me so she referred me out. I don't understand why your docs not sending you to someone who can help you better.

    Maybe your husband could go with you to help explain the degree of pain. It is exhausting trying to handle the pain and advocate for yourself, also.

    Lastly, it seems..I may be wrong...that you are strong and like to hope it will lessen and just tough it out...kind of minimize it. If it were your daughter in that kind of pain, what would you recommend for her to do? My guess is to not give up!

    Not going to ER because you know they can't help you.. but at least you are continueing to express... pain still here... and maybe you'll run into a doc who can help or refer you to someone who can help.

    I wish you and your family the very best! Please keep us posted how things go when you see doctor.

    Take care!
    Spine-Health Moderator
    Please read my medical history at: Medical History

  • I've told my doc. over and over the pain that i'm in,she sent me to a pain specialist whose been doing the ESI's. They help a bit but not for that long. Last one i had i was able to sit comfortably for two weeks then i had to lay down again. He thinks that if i'm getting any improvement at all i should keep doing them. My physical therapist has been a great help to me,she's the one who talked to my doctor and got her to send me to the pain specialist and back to a neurologist. Without her help i'd still be fighting with my doc. to do anything.As for her not having anyone cover for her,she goes on vacation a lot and has a night clinic for her patients to go to if there sick,but they can't do mri's or any tests.There basically for people who have a infection,cold,flu something along that lines.No use to me. Going to the hospital,yes I've gone that route before when i was having so much neck pain,they give anti- inflammatory and tell me to see my doctor.Whenever i call my doctor it takes four to six weeks to see her and if its something that needs to be seen that day they say to go to the hospital. Its a sucky situation.
    When i saw the neurologist that had gone on medical leave she had done an emg and it showed nerve damage in my left leg and she was concerned about the numbness i was experiencing that's why she had ordered this mri. Unfortunately she went on medical leave before i could see her again to see what she wanted to do next, she was the neuro of my choice. Hopefully when i see my doc in Jan. she will be back in practice and i can see her again.
    The pain doesn't seem to be a factor in deciding what there going to do, that's what i was just told by the neurologist i just saw. He said that it definitely needed to be addressed because pain can be debilitating and that's why he wanted to switch my medication but he's changed it to something I've already tried which isn't going to be helpful to me. He obviously wasn't a very good listener. My husband went with me to the apt. He just sat there and listened to him.He's not good with doctors and usually will say well they know best. He thinks that all doctors are gods and we should listen to them because they know best.I'm i this on my own unfortunately,but i'm getting really tired of advocating for myself,i did it for so long with my neck and i really have no drive to do it again with the rest of my back.
    When i see her in January i plan on asking her to send me back to the neuro. that i was seeing before this one hopefully she's back to work,she's the only one I've found in my area who seem to understand whats happening with me and has a plan on what to do.
  • After what feels like 100 operations but really its only 25+ I have back spasms that get so bad they involve my abdominal muscles and yes I have had the itching associated with the spasms I have tried every muscle relaxer in the world and the only thing that helps seems to be diazapam but I am on so much narcotic pain meds the will only give me 1 diazapam a
    day so sorry to say I tak them in about 10 days and then over indulge on the oxycontin wish I could help but just know that you are not the only one out there with these problems you might want to see another doctor for a second oppinion or ask your doctor to try some of the older and better in my opinion muscle relaxers

    I am not a Doctor so am in no way trying to give you medical advice except for the fact you need to see your doctor or another doctor just for piece of mind I am a vet and not allowed to see any other doctor
    but that is what I would do if I could
  • I have had a history of esophogeal spasms for which I have a prescription of Diazapam for and now am having central back spasms also. The (if I can't find enough drugs to take) duration can be 7 hours and occur every minute or so. I have taken 60 mg of Diazapam and 5-500 mg of onxycodone (over 7 hours) and it doesn't even knock me out. It is exhausting. I have gone to the e.r. but they just give me morphine and charge $6000. I also have sever skin itching . They now want to do a endoscopy down my throat and all I know is I have to find some relief and some drug that stops the pain. It can lift me right off the bed. I hate to say this but was so glad to hear other people have suffered through this-just wish there was an answer. Any news out there??????
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