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Permanent nerve damage one year after fusion

Hodge2120HHodge2120 Posts: 5
edited 06/11/2012 - 8:59 AM in Back Surgery and Neck Surgery
Hello, this is my first post after visiting and reading several times. I'm 25 and have already had a successful spinal fusion surgery (hardware wise). I dealt with severe nerve compression for about a year and a half prior to the surgery. I was expecting immediate relief after the surgery. My mother and sister have both had this surgery that's what they got. Instead, it's now over a year after the surgery and I'm bouncing between my family doc here in Indiana and a specialist in Nashville. I'm currently taking Oxycontin 30 mgs twice daily, along with Percocet 10 mg twice daily, and Cymbalta. I'm not much better now then I was prior to that very painful surgery. I've been told I'm basically stuck taking pain meds for the rest of my life or possibly a pain pump. I'm scheduled for a myleogram this Friday to see if the doc from Vandy can find anything different than expected that's causing the pain. It sucks to be in pain everyday and my family doc won't change my medication because he's worried about what aim going to be like in 10 to 15 years I'd he does. I understand the logic in that, but like ai told him insane relieve now I'm not worried about 10 years from now. I guess I'm just curious if anyone else has experienced these things. It is very hard to explain my family and friends why I'm pretty much a completely different person than I was 3 years ago. Pretty depressing hence the Cymbalta. If anyone has experienced anything like this please let me know if there is anything you that helped you or you recommend trying. At this point, I'm willing to try anything. Thank you


  • Damn IPad auto correct. Like I told him I'm want relief now and I'm not worried about 10 to 15 years from now.
  • You didn't talk about what led to your surgery. Did you go through pain management at any time? If not, it might be something to consider. Pain management might be able to provide some relief.

    I hope you find some relief soon.

    4 level ACDF C4-C7 5-2-11, laminectomy & discectomy L4-L5 1/26/12, ALIF L4-5, L5-S1 12/10/12.
  • I had a L4/L5 fusion. I've tried the pm with epidural shots, lyric, etc... He pretty said he didn't know what else to do
  • I had a L4/L5 fusion. I've tried the pm with epidural shots, lyric, etc... He pretty said he didn't know what else to do
  • I think that's great that you've scheduled a 2nd opinion. It cannot hurt to have someone else look it all over. That's what I would have done, too!

    If no surgeries are needed and it is a last resort, you might consider asking your doctor for a spinal cord stimulator to help with your nerve pain. They do a trial run first for 3-5ish days to see if it gives you any relief. That's nice so you don't have to commit to something without knowing results.

    You can also ask if Cymbalta is the right drug for your depression. Course, I suspect a lower pain level might help with depression, too!

    I don't understand the logic of what you will be like or need in 10 years. I've heard that before. I guess they should worry more about whether we make it to that 10 year mark without harming ourselves due to intractable pain. It sounds like you are on a low dose of oxy. Big whoop-de-do. Pain can affect our overall physical and mental health. Your body has trouble healing correctly and timely if it is under stress from too much pain. I think so what if in 10 years my narcotic dose will be higher. In fact, most likely it will be higher as further deterioration happens and that would be completely separate from my tolerance to the medication after time.

    :? :-? : BIG THING: Is that nerve still compressed or is the damage from corrected compression? If it is still compressed, I would hope they would do something surgically about it.

    This are just a few thoughts. I'm not a spine dr. but I try to draw from my experience any examples that might help others to understand(cause I sure didn't at first) and give them info to start a conversation with their medical providers.
  • Next month it will be on year post TLIF and I am in as much or more pain as before the surgery. I now have a small synovial cyst pressing on my spine and constant pain due to narrowing of the foramina (where the nerve exits) No doctor seems to take it seriously or they do not want to try to fix what another doctor did. I have an appointment for February and hopeful that something can be done. I am on hydrocodone, muscle relaxer and Neurontin for pain. I still have siatica and just rolling over in bed is horrible. My husband had the PLIF which has a bigger scar (about 6") on his back but he does not have the pain anymore. I wish they had done the PLIF on me instead!
  • Might be too early to jump the gun and consider pain pump. They usualy offer the scs before they ever consider a morphine pump implant,

    I have nerve damage that goes down my left leg and it is very painfull, i am also l4l5 fused,

    If its only been 1 year for you might be worth having a hardware block done to see if the hardware could be causing issues also, if they do an mri and they say everything looks ok then you could end up with failed back surgery syndrome as myself and many others,

    I had my hardware removed from fusion about 3 years after because it was also puting a lot of pressure to the legs,

    None of the nerve medications were helping for my legs but found on line this neuroveen that seems to help a lot, Wish i would of tried this stuff sooner because it realy has no side affect as i was geting with lyrica and neurontin,

    Many times i searched for something natural to help with my nerve issues because medicarions was just not doing the job, Most of the stuff helped but not for very long,
    They sell so much bs products on line you dont know who to believe but i have run out of options and had to try this,

    I am just very suprised nobody in here mentioned this as far as i know that they use it,
    I dont know how it works and why it works and dont realy care as long as it helps calm the nerves,

    Good luck

    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
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