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lettydesignllettydesign Posts: 3
edited 06/11/2012 - 8:59 AM in Recovering from Surgery
Please can anyone help me,My husband came down with lower back pain and pains in his right leg in sep last year,by nov,he could no longer walk,He had a discsectomy of L4/L5 and de-commpresion of L5-S1,after surgery his leg pain had gone but after a couple of days the pain started to return,He also had an caudal epidural last week to see if that helps,it has NOT!! been told by surgeon that theres nothing on MRI and that the pain is being caused by inflammaion,yet his in the same amount of pain as b4 surgery,can this be right,he has also been put to the side,with no follow up app,been told that if in 3-4 weeks the pain has not gone,then pain managment is the only option,why do i feel like his being fobbed off!! spent last 4 months in NHS hell,as doc put him on the choose and book system,which i now know is a non urgent system,which put him off havin urgent surgery whilst i had to bring him home,go back to docs and get them to fax paper saying URGENT!!! so my question,has anyone had similar experience and is there light at the end of this long dark tunnel???


  • As you're husband is an NHS patient, can he return to his local GP and ask for a second opinion?

    Can he request further investigations to find out exactly where the pain is coming from? For example, if they suspect a disc could be causing the pain, can he request a Discogram to find out for sure?

    I have spent nearly 7 years with the NHS trying to find out the source of my back problems. I have had numerous conservative treatments first (which they will and should do before any surgery - unless it's an emergency of course).

    It wasn't until I'd gone through many years with NHS that they recommend surgery as the last option to try and resolve my pain and stablise my spine, and then, only after I had requested a total of FOUR opinions from different consultants (I ended up being treated in a hospital more than 90 miles away because I had total faith in their surgeon).

    Try asking lots of questions to find out exactly what is going on and ask what tests are available to give your husband a definitive prognosis and what can be done to resolve his pain issues.

    Please don't give up!!!

    2 x Microdiscectomy 2005 / PLIFusion 2-level 2010 / revision surgery 2011 / NEVRO Senza spinal cord stimulator implanted February 2013. I WILL NOT GIVE IN / UP !!
  • Sorry that surgery did not resolve his issues yet, Sometimes it takes a long time before they consider looking at what can be done next after they already did 1 surgery,

    There are many other tests other then mri to find complications that sometimes they cant see, Mylogram usualy gives them a beter view and emg so spine is still very complicated even in this day and age,

    Did he have microdisectomy you refering to i assume removing small porttion of the disc? I have to assume thats what you mean otherwise if total disc would of been removed then you be talking fusion also,

    I am not sure how soon after such surgery discogram can be done because discogram would or should of been done before that surgery,

    Just stick with the least invasive stuff if posible and even a pain specialist has to have a way to find where pain generator is and if it leads back to the same level that had surgery that failed,

    Always have to make sure at least 2 drs agree if not more of whats causing the pain and complications before just leting them do surgery ,

    Best of luck. Keep us informed,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • First I am so sorry this is happening. I agree with what has been said already.

    Please do keep us updated :)

    PS: I probably do know this just don't think I do right now...what does NHS stand for?
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • lol,NHS stands for the National Health Service,not that i feel we're getting much of a service at the mo!!
    Many thanks for your replies!
  • Hi,
    No he didnt have microdiscectomy,well his been left with a 6" scar,the thing im finding,is since the surgery,he has NOT been sent his MRI results,yet on the results prior to surgery,we were,he has been given no follow up app,so at the moment,we feel like his just been left!! feeling better knowing that i can rant on here tho!!
  • How are things going?
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
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