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Thoracic syrinx anyone?

Char-MichiganCChar-Michigan Posts: 2
edited 06/11/2012 - 8:59 AM in Upper Back Pain, Thoracic
Could anyone please describe the pain you experience from a T-syrinx.....also, did you have the surgery? Any info is appreciated....I am in extreme pain and doc's think I might need shunt or drainage.....



  • Anyone recommend SM doc's in Chicago, Detroit, Cleveland?

    Thoracic syrinx pain is getting worse, please, if you have any knowledge of this condition, please reply....

  • Hi, I've had a T-12 level syrinx diagnosed 3 years ago. After months of seeing doctors who kept referring me to others I went to the Pain Mgmt. program at Rehab Institute of Chicago. They found the syrinx in 1 week and treated it w/ SAVELLA. My burning pain and fatigue were gone after another week of treatment.
    Since that time, the SAVELLA quit working and I am back on pain meds, anti depressants and anti-inflammatories, none of which alleviate the symptoms.
    I am getting ready to go to the pain management program at Memorial Hermann in Houston to get detoxed and then have them add meds back slowly to see if I can get relief. I have not had surgery but have bneen told that it is only 40% effective.
    The pain I get I refer to as sunburn from the inside out along with stabbing back pain at the level of the syrinx. At best I get 3 hours releif each day. Just enough to care for my 11 year old daughter of whom I have 3/4 custody.
    I hope I've been some help.
    Best wishes.
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