I have been reading this forum for a while and have decided to post my frustrations with the hopes that someone might have answers that has suffered with these same symptoms. I have tried the conventional route now I am open to anything, for the most part. My quality of life is suffering and I am frustrated.
I am past the point of exhaustion with severe spasms and leg cramps. Earlier this year I was diagnosed with Stenosis, you know it’s bad when the dr. Walk's In and apologizes after looking at my MRI of my spine.
I have been through Hell and back with spinal issues, unfortunately now I feel like I am at a point of questions and no good answers. I have not had to fuse any of my lower levels yet and my current Dr. would like to now do a fusion, with 4 back surgery's and a fusion on my Neck level c5/c6 and age of 51 it doesn't seem that It is getting any easier.
My current symptoms were described in November to the current Doctor and the only real discomfort I described to him was day time spasms which do not have pain for the most part, it's the muscles locking up in certain parts of my legs from moving the wrong way or when I exert any physical labor like move something,etc.
My surgery was a laminectomy and was performed in early Nov my Doctor said that he wanted to clean up the canals that could be creating pressure on the nerves generating the cramps and spasms. Some of my other symptoms were drop foot on my right side. We discussed the issues but again my main reason and what I emphasized was my spasms and severe cramps.
Quickly three weeks after the surgery I was fine with symptoms being better. Went to visits the Dr. and explained it felt better, the next day everything returned with a vengeance. The cramps were back so bad I would get out of bed three to five time a night. And the spasms were all day and severe. You could look at my legs and watch the spasms in my legs like I had snakes crawling inside my legs.
again not to use up too much space, the spasms and cramps have been going on now for 5-6 years, I have been tested for MS with an EMG in my arms (not very comfortable) and nothing was found, I have been to a nutritionist and he has not been able to help. and I am now at the end of my wits.
I feel like it is definitely neurologic but have no idea what is causing this and or what to do. My doctor now wants me to have another EMG in my legs and has put me on a anti Spasm medicine and it doesn't seem to be working at all.
Again I apologize for writing so much and I only told a short version, I am desperate for relief as I am not able to sleep comfortably as I move my legs lock up, I am taking so much Advil which seems to help very minimal and would like help knowing why and what is causing this????
The back surgery that I just had could have been avoided or if I had known that this was not going to alleviate the spams and cramps I would have passed on going down this path.
ANY HELP WOULD BE APPRECIATED ALOT