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Bunch of Doctors...No Idea!

jicjacjjicjac Posts: 1
edited 06/11/2012 - 9:01 AM in Spinal Stenosis

I just was hoping someone with some expertise could weigh in on my condition or offer some advice. I spent the entire Spring, Summer, and Fall of 2011 chasing these symptoms and I'm still ever clueless. Long story, please bear with me. I have what I'd call Paresthesia in my left hand pinky tip, left hand ring finger pinky tip (partial), and a major part of my left top side foot. I DO NOT HAVE ANY PAIN in any of the effected areas or any weakness. I had been on the Atkins diet for 6 months when these symtpoms showed. I have since ended the diet to remove the possibility it was the culprit but I gained all the weight back and nothing changed.

Saw many many specialists including 4 neurologists, a chiropractor, an epidural doctor, and finally a spinal surgeon.

No definitive diagnosis from any of them. I had 2 EMGs that showed nothing abnormal. I had MRIs of the spine and head. No MS, but foraminal stenosis of Lumbar and Cervical areas on left side, but also slightly on right side.

I had cortisone shots administered in several areas along both nerves paths, but nothing. Finally my spinal surgeon reviewed all MRIs, and he said I could continue lifting weights and such or do anything I want. That the stenosis could possibly pressing on the nerves, but he didn't seem that concerned.

My main issue is I really want to continue weight lifting and exercising. I've been at it for 6 years, I just don't want to make the issue worse. I'm not throwing huge weight around, but I take it seriously and pay attention to form. I quit doing squats and dead lifts, but I still run for cardio and use barbells/dumbbells.

I'm sorry this is long-winded but I just want some thoughts please...


  • please see my post under spinal stenosis- lumbar fusion- possible implant rejection name" CST"
    my condition is different, however did want to mention, long term use of steriods and epidurals cause damage, I was allergic to them which caused fatty tissue build up in my spinal channel which narrowed the spinal canal, almost paralized me.
    have severe spinal stenosis, had lumbar fusion right L3 and L4, still constant pain, possible implant rejection. please watch and read prior to doing surgeries. I do take nurotin for nerve pain so that I can sleep. After surgery 7 months ago, i finally can sleep more than 3 hrs, maybe 4 or 5
    Thank you, CST
  • cstccst Posts: 14
    edited 07/10/2012 - 6:29 PM
    Oh yes, I do get sent from one doctor to another. Just make sure if you do have surgery and you have to go back to the same doctor who did the surgery, that he/she doesnt ignore you or send you to other doctors for answers. Or maybe not have time to see you anymore.
    Thank you, CST
  • First a few things do you know why they were doing injections and where at what levels? Typically the cervical spine would go to the arms and shoulders while the lumbar spine to the legs, unless of course you had a cord involvement, and your MRI's have ruled that out. Take a look at a dermatone map and that will show the different spinal nerve pathways. One thing about EMG studies is they are not always accurate. Did you get multiple opinions regarding your MRI and also obtain copies of the reports yourself. You could have a pinched nerve, but then none of us are medical experts, so we really can't say what could be causing it. The fact your still able to lift weights run and do normal living, I am guessing is why the surgeon said nothing really to worry about. While the numbness can be annoying, doing surgery, could also make all of it worse. Which is why I say, the fact your able to still function fine, I wouldn't risk a surgery. Surgery is no guarantee, and comes with the risk of making things worse. I would work with a physical therapist to insure that you are lifting correctly. Also perhaps it has something to do with the pillow you use at night, or how you do your job in the day time. You can also look up myofacial syndrome and see if that looks familiar.
  • Not a Dr, but i would not lift any weights till you find out what exactly is causing the tingling, pressure on the nerves, is the C7 T1 herniated, is it pressing on the nerve only or spinal cord too. Dont rely on one drs opinion, he could be right, he could be wrong. I have seen dozen Drs, had EMGs done, MRIs, and NOBODY told me about the herniated C7T1 that is also pressing on the spinal cord. I had to read and find out about it on my own. It all started after car accident, like you only tingling in left pinkie and 4th finger with no arm pain. My MRI still does not "remark" anything wrong with C7T1 and by now im in agony every day and unable to work, without health insurance, i can only figure on my own that my pain is in part caused by cord compression at C7T1 level. If you lift weights with in fact herniated disc at this level it might rupture and cause all sorts of damage to the nerves and spinal cord (i think). Again, im not a doctor and ive seen more than dozen of them and NOBODY told me about the source of my suffering. Your condition could be something completely different but please do the research to be sure you in fact can lift weights safely.
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