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for those who have scoliosis and kyphosis

scoliosissscoliosis Posts: 2
edited 06/11/2012 - 9:01 AM in Scoliosis
Hi all here is some kyphosis ans scoliosis excercises
Kindly share it, comment,vote for me please
image

Duplicate posts removed. Please read Forum Rules and FAQ before making any additional posts

Spine-Health Moderator Team 04/09/12
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Comments

  • I am 47 with severe scoliosis diagnosed at age 12. I wore a full Mill brace for about 2.5 years. I don't know what my curves measured then, but now I have a 72 degree curve in my thoracic spine and a 60 something degree curve in my cervical spine. My spine also twists. I now have stenosis in my lower spine as a result of the scoliosis. This has caused me severe leg pain and I have had numerous epidural injections and they help for a while. I have spoken with a surgeon, but he says that the stenosis surgery would be greatly complicated by the scoliosis. I would have to have my spine straightened, rods put in and all. Does this sound like something anyone else has heard?
    I just finally registered with this site after several years of reading other people's posts and finding myself in the same situation as many of the people whose posts I have read.
    Virginia
  • Hi Virginia,

    Let me start off by saying that I'm in a similar situation. Both in condition and in being a lurker on the site :-).


    Here's a little on my situation so you can compare. I had a fusion @ 12 as well from T5-L4 (in 2000).

    I fell and broke my rods in 2009, had the lower part removed in 2010 (a minor fiasco I won't go into now).

    Now (2012), I'm told the lower part of my fusion did not hold so I will need to break parts that did fuse, reattach onto the existing hardware and go down into the pelvis. They will also be 'shimming' up sections of my spine with osteotomies (which I think is what you are also describing as straightening out your spine).

    All this because the unfused section has become a 70 plus degree kyphotic nightmare on top of the scoliosis which is somewhere around 55 degrees as well.

    While I don't have stenosis specifically, I do also experience the rather random numbing/tingling of limbs as well as rather terrible pain during/after movement.

    I've been to several doctors both osteo and neuro in specialties about this problem, so if you have a specific question please feel free to message me.

    -Laura
  • Laura,
    Thank you so much for the response. I know that I will have questions and will message you.
    I sometimes wish that at 12 my parents would have opted for the surgery route. Although at that time ( about 1977) I don't think the results were terribly reliable. I know of several people my age that had that surgery then and they have had the rods removed.
    Again, thank you so much!!!
    Virginia
  • Your welcome.

    I've experienced rod removal as well, and since I'm gearing up for more instrumentation due to the removal you can guess how well that went.

    I agree though, that in 77 the technology & instrumentation used during that period would have lent itself to something out of a horror story for a patient. (not quite sure it still isn't considered a horror story)

    Yes, please ask questions! Nothing is worse than going into this with more anxiety than you need to.
  • I am 52, I had to wear that brace also.
    I was about the age that you are now, when my back just totally "went out"
    I knew it was getting worse.
    This sounds kind of ridiculous but I was putting of surgery until our house
    Was paid off, I was so close & thought in less than a year I would go to
    A surgeon & have the long, oh so overdo surgery.

    The summer of 2007, I noticed that my left ankle & left leg had started
    Hurting & kept hurting. I thought, surely, this had nothing to do with
    My back, well, it did.

    Finally I went to my regular Dr. & she told me, this putting it off time
    Is over. I had 2 curves, both had started to progress quickly. When I
    Looked in the mirror, I noticed that I looked twisted, as if I were
    About to turn around, that was also something new. I also had to
    Buy some clothes that were too big because my regular sized clothing
    Was showing my " lump" on my left side.

    My Dr. Sent me to a surgeon as an emergency. My curves were in the
    High 60's. I had the S situation in my back. After tests, long MRI's
    Catscan, all kinds of tests, I was told that I had to have sugary at
    Once. My rib was going to eventually puncture a lung, I had been
    Short of breath because my crooked back had pushed my diaphragm
    Out of place, eventually, my spine was going to push my heart out of
    Place.

    I had a 10 hour surgery in Feb. Of 2009. It took 3 surgeons. Yes, I have
    Some nerve damage & still have pain but not only do I look like
    A different person, I will not end up in a wheelchair, bent over, unable
    To sit up. that is what would have eventually happened to me.

    I went directly from the hospital to a rehab hospital, where I had the
    Most gentle nursing care & they helped me get stronger. I had lots of
    Physical therapy.

    Just an example of how that scoliosis had done things to my body, I had
    A tipped uterus, my Dr. Mentioned every year during my exam, how
    Tipped it was. -

    After surgery, several months later, I had my yearly exam & my uterus
    Was not tipped anymore.

    I had developed high blood pressure about 3 years before surgery. After
    Surgery, my blood pressure was normal.

    It's 3 years later & I have to try not to let that experience be the center of
    My life.

    I had 50 staples, the titanium rods & I have 24 screws.
    I still have some issues but if I had ignored this, at the
    Very least I would have been in a wheelchair when I was in
    My mid 60's, this is what my surgeon estimated.

    I have to say, I have not yet tired of looking at how beautifully clothes
    Lay on my back. I have a trench coat that fits closely & sometimes
    I put it on, just to look at how it fits my back & I look in the mirror
    & remember how I avoided 3 way mirrors in dressing rooms.

    Virginia, this is what happened to me, I do not mean to imply that
    Your back is like mine. My Dr. Had to remove 1 rib also. He is
    a neurosurgeon & an orthopedic surgeon. I have had so many
    Health care professionals comment on what a huge, complicated
    Surgery it was.

    I made it through. I don't even try to imagine what would or could
    Have happened to me.

    Again, I want to stress that this was what happened to me.
    Also, I was in that much trouble & my surgeon was able to
    Do repairs but also keep me from the very grim future that I
    Personally faced. I had 2 curves to correct though.

    I am on s.s. Disability, I have some limited mobility issues,
    Some nerve damage but for what I lost, I gained so much!

    Good luck to you Virginia, I will be thinking good thoughts for you. Susie

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