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Back/Leg Pain & Spinal Stimulator Help

donnalee.bddonnalee.b Posts: 12
edited 06/11/2012 - 9:02 AM in Spinal Cord Stimulation
Hi Everyone,

4 Spinal Surgeries & now looking at a Spinal Column Stimulator.

I have been reading this forum for years now and have finally decided to post something on the forum, hoping for some more information/light.

This was all caused from a Motor Accident.

In the space of almost 5 years starting from May 2009 until today as I type this, I have had 4 spinal surgeries, First being a laminectomy to fix a disc protrusion which has also been pushing on my spinal nerves, this then failed and exploded, at Level L4/L5 I was advised at this point that the nerves had been even further damaged and that L5/S1 was showing the same signs of exploding. I had a double TLIF Fusion of both L4/L5 L5/S1 using screws/rods. Next it was part of the bone had broken away and I was to have the hardware removed as the scans had shown that 1 of the screws had been hitting the spinal nerves. During the removal my Neurosurgeon had removed all scar tissue (due to this also attacking the nerves) put a protective coating over the spinal cord at that level, and scraped down the nerves. During this my Dura was accidently cut. But was fixed during the surgery. this was April 2011.

6-8 weeks after this surgery I was going down hill really fast. And then got a fine Cut CT done, it had shown that the spine was broken at the L4/L5 and at that stage I was waiting to get to see my Pain Specialist to go over my medications, but the pain was getting worse so by Oct 2011 I was back in again, but this time they went through my stomach - due to the scaring which was now also doing the same as before. I now have Plates/screws holding everything in place. I felt really good after this surgery and was pleased that things had finally started going my way.
But the good old nerves had other ideas still (even though my surgeon had told me the nerves are badly damaged and it will not fix the pain that I have there) I was hopeful that with more walking and slowing increase the exercise that things would loosen up with time.

Here we are now almost 6 months later and the nerves are sending shooting pains down my legs (both) it use to be just the left leg but now its both. I have numbness in parts of my left leg, spasms, tingling, throbbing, stabbing, and now after the surgeons going through the abdomen I have burning in the right foot and some pretty full on pain in the tail bone and bum cheeks that shoot down my legs.

They are now talking SCS and i have been trying to do as much research as I possible can as I really dont want to keep going into hospital. (I am on Naproxen, and have been on Gabapentin for almost 4 years and have just been changed to Lyrica) And other pain medication to take during the day. I have heard of 3 SCS - St Jude, Boston & Medtronics. I would ideally love to hear from people who have similar issues as myself who have had good and even bad results and which SCS they are using and why.

Please I hope you can lead mean in a direction that will help me decide which one to go for.

I am located in Queensland Australia and have only spoken to 2 other people - but they are using them for something totally different to my requirements.

Please send me a private message also if you wish.

Thanks Everyone


  • I have an ANS stimulator, but Meditronics makes them as well. I have heard Meditronics has a new device out but I have yet to check it out. I have chronic sciatica, allodonia, DDD, and nerve damage.

    I am happy with my device but it does not take away the pain- it makes it more manageable. That seems fairly typical. Don't expect a miracle cure.

    I also had another disc. surgery and I think the leads were moved during surgery, so I don't seem to be getting the relief I got previously. Or my body is adapting.. I need to go and see my programmer in Denver. The programmer seems to also make a difference.

    I now have SI joint pain and the stimulator does not seem to help that, so it is hard to say what will work for you. It is protocol to do a trial before a final implant so that should give you some answers.

    I felt it was worth it as it is reasonably non invasive ie no drugs, minimal surgery, and the worst that could likely happen is no long term relief. It was a positive decision. Would I do it if insurance did not pay.. that would be another set of questions. I am happy to answer more questions if you have them.

    One negative- no MRI scans after device, only CAT Scan with contrast, not a pleasant experience, believe me...

    All the best-

    Wendy S

  • I have to agree with Wendy I have Boston Scientific Precision. Its help with pain along with med
    Just remenber Its not a cure

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