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severe spasms AFTER neurostimulator put it

chaikonielsencchaikonielsen Posts: 3
edited 08/05/2014 - 3:59 PM in Spinal Cord Stimulation
Hello, Has anyone ever had a negative response to a neurostimulator? I have been opened up twice. First stimulator put in the wrong place and affected my kidneys. Second surgery, put in the proper place but has cause severe pain and spasms at and near the site of where they put the device in. IT has been a year and now I am just about bed ridden. Cannot use the device at all and am on heavier pain meds then ever before. The doctor said that it is what it is and to have the device taken out will not relieve the pain. I don't know what to do. Any suggestions? Thanks in advance!


  • Where was the unit implanted at? In the ass or in the hip, Mine was implanted in my ass and now thats its healed up is fine,

    Where are you geting spasms? If it was implanted correctly then it should not cause any issues under the skin,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • I would call your representative as soon as you can as well as your surgeon who did the implant. You should not be having pain. They can best guide you as to the next steps. I have an ANS stimulator and did not have any problems, but I have to get it adjusted frequently.

    Go luck,

  • the battery unit is in the buttocks. that does not hurt. it's the unit in the middle of my back that is causing all the pain. i havw spoken to both the maker of the unit and the doctor. according to them there is nothing that they can do. i asked the dr. to take out the unit and he told me that taking out the unit would not relieve the pain since the muscles/nerves have and will continue to be affected. when i asked him to do a catscan, he has refused. i am now going to another pain management specialist. she has a catacan scheduled for this monday. the surgeon told me that he secured the device in my back so well that nothing would move it. the first time he did the procedure, he put the lead device in the wrong spot which affected my kidneys.
  • Omg. It sounds like your leads/lead was not placed correctly the first time or the second time. Did they not do a trial?

    I hate to read the bad stories. I am so sorry that this happened to you. I hope that you can have another opportunity for a internal pain pump or something similar. I can't imagine that you haven't been able to use it for a year and your doctor has been in denial.

    Thank goodness you have a new pm looking at it. You may need to see a ns as well.

    Hang in there.

  • There should be no unit in the midle of the back. There is only 1 unit implanted as you have in the buttocks, The midle of the back is just where the leads go in at,

    I still have a bublble in the midle of my back after they drew fluid out 3 times already,
    The leads should not cause any issue unless dr did not anchor the leads correctly and they did not stay where it should be,

    The dr should be able to see if the leads are still in place or not at his office just like when he puts them in during the trial,

    Best of luck,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Wow I hate to say this but I to am having problems since they put my stimulator in. I went through the trial. It was only three days but it was pure heaven then my surgeon went ahead and put the permanent one in about 2 weeks later. The battery is in my hip and I have no problems there but I am having pain in the upper part where the leads end. Also having terrible pain if I stand for more then 15 minutes. Trying to help out in the kitchen and it hurts to empty the dishwasher or to put clean dishes in. I am convinced that my back will never ever be the same. The NS said he found something called Spondylitis (anklosing) and told me to take the disk to my Rheumatologist. It's just one more thing to add to the list. I am waiting now to hear from pain management because I was told any problems with the stimulator to call him. So just waiting. I know when they put it in they told me it would not be the fix all but I did not expect the pain to still be there. Any thoughts, any help would be greatly appreciated. Thanks. Michelle
  • I assume it's from where they had to cut to preform the laminectomy ( I have a paddle @T8 to T10). I take skelaxin during work and valium as needed at night. I find standing still is awful, I rock, put a leg up, lean or sit on walker but I've also found sitting straight in a normal chair can bring those on as well. To prevent the sitting spasms I sit with my feet on a stool or something which keeps my back rounded- I can't explain why it works, just that it does. I've added a program to my scs which covers a higher area for when the spasms are there. I'm sorry your suffering. I can start out in the morning great and within minutes it can change to a snake wrapped around my torso which prevents me from walking without my walker, that great day has changed to one of struggles.
  • kia155kkia155 Hedgesville, , WVPosts: 8
    I have come to same conclusion after having a doctor read my MrIs of cerev. and thorac part of spine.  He wrote spondlelosis and cervicalalgia.  I did not have any back problem going into trial.  I have explained my symptons from day one of trial.  PM doc and rep kept saying they dont know and sending me to be checked for hernia now after several months.  After looking up these terms I found that it explained exactly what I was feeling;  your spine separates just as I kept complaining that felt like it moved my esophahus out and my neck in.  Stomach also very protruded.
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