Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

SI joint pain-Can you describe your symptoms please?

techgurl1988ttechgurl1988 Posts: 108
edited 06/11/2012 - 9:02 AM in Sacroiliac (SI) Joint Problems
Hello, I am fairly new to the boards, been posting and reading the last couple weeks. I had a discogram done at 3 levels with concordant pain at L4/L5 and L5/S1 but the doctor doesn't trust the L5/S1 results because he thinks I was still in pain for the L4/L5 and could not tell the difference (I say it was concordant and I was NOT confused).

Anyway, my symptoms are burning pain at the top of the pants or let's say the belt line area. This radiates on both sides, like back of hips. It starts to burn worse towards the tailbone after sitting in an office chair for 15 min. In my recliner it starts around 20 minutes and feels like it is in my buttocks and tailbone. Again, it is a burning pain and if I feel back there, the skin is numb or tingling. I do not have leg pain but gluteus weakness like I have a hard time standing from a sitting position and the pain is temporarily worse in my tailbone area when moving from a sitting to standing position. Currently I walk with a cane and after 15 min I start walking funny due to back of hip groin pain.

The MRI for the L5/S1 area just says 1-2 mm bulge with Sclerosis noted about the articulate facets. See signature below for complete diagnosis. Mainly I am interested in others description of their SI joint pain. I also might mention that I have not been checked for SI joint pain, I have not had diagnostic injections to this area. Do you think they can do the injection without the steroids? I'm done with those!
Tracy,

Grade 4 tear in l4/l5 was missed in first MRI so did injections for a year
SI joints "messed up" not sure if I will get them fused at a later time
Had Open PLIF L4/L5 5/28/13
Woke up to permanent nerve damage in legs and feet.
advertisement

Comments

  • Sorry I just realized I left a pretty long paragraph above (second one)where I described my pain and didn't really ask the subject line question again so here I am again-

    Can you please describe you diagnosed SI joint dysfunction pain? Please go into detail as far as is it being burning, stabbing, dull, sharp and the locations? Is it back of hip, middle of back, coccyx area? I wish I could put up an anatomical man and have you draw on it! :)
    Tracy,

    Grade 4 tear in l4/l5 was missed in first MRI so did injections for a year
    SI joints "messed up" not sure if I will get them fused at a later time
    Had Open PLIF L4/L5 5/28/13
    Woke up to permanent nerve damage in legs and feet.
  • The important thing for you and your doctor, is for you to describe and map out your pain and symptoms. Knowing symptoms of others suffering from specific maladies generally serves only to confuse and hinder the diagnostic process that doctors and patients go through.

    It is easy to find anatomical drawings on the Internet. Print one out and over the course of a week or two, map out your pain on it and take it with you to your next appointment.

    Best wishes,

    "C"
  • Chagland, thanks for the response. I see you are a moderator so I apologize if I have broken any forum rules.

    I am one of those people that believe in being proactive and don't necessarily believe doctors have always got my best interests in mind. Not that doctors are evil, it's just that they are very busy and don't always listen while our bodies are constantly telling us something every second of the day!

    With that being said, I have told my doctor repeatedly about my specific pain and he has not tried to do any diagnostic injection into the SI joint and has told me he thinks it is referred pain from the L/4 L/5 area. So I am giving him the benefit of the doubt and trying to research where others feel their pain, and specifically what type of pain. I realize mileage may vary, but I am a researcher, it's what I do :)

    I also have at least 50 different anatomical drawings on my hard drive since I work with doctors on developing reports for patients to fill out. I was speaking generally about having one for this forum where people could check mark their pain so I could gather the results (speaking only about SI joint pain).

    If you know of any studies, I would love to read the reports. I have looked on the web and have found one pretty intriguing one, here is a portion of what it said:

    "Slipman et al. (74) conducted a retrospective study to determine the pain referral patterns in 50 patients with injection-confirmed SI joint pain. In contrast to the findings by Fortin et al. (72) and Schwarzer et al. (30), the authors found the most common referral patterns for SI joint pain to be radiation into the buttock (94%), lower lumbar region (72%), lower extremity (50%), groin area (14%), upper lumbar region (6%), and abdomen (2%). Twenty-eight percent of patients experienced pain radiating below their knee, with 12% reporting foot pain. Based on the existing data, the most consistent factor for identifying patients with SI joint pain is unilateral pain (unless both joints are affected) localized predominantly below the L5 spinous process (30,59,72–74)."

    Pretty interesting that 72% of SI joint pain was in the low back region which is consistent with what I have read here where people undergo a fusion at the L/4-S/1 region only to find out the pain is still there and later discover a positive diagnosis is made with a diagnostic injection into the SI joint. It makes me wonder why doctors aren't automatically checking or using the SI joint injection during diagnosing low back pain or at least rule it out on a consistent basis?

    Tracy,

    Grade 4 tear in l4/l5 was missed in first MRI so did injections for a year
    SI joints "messed up" not sure if I will get them fused at a later time
    Had Open PLIF L4/L5 5/28/13
    Woke up to permanent nerve damage in legs and feet.
  • I just read this post and I was in awe...your symptoms completely mirror my own. Have you had an SI joint injection since your post? If so did it give you any relief?
    I have been very frustrated since I have had two lumbar surgeries in the last year and am still left with the same pain. I am now wondering if part of my problem could be my SI joint. I have so much burning pain in my sacrum and burning in my hips. At first it was only my left hip, but now it is both. I was diagnosed with coccydinia, and have a terrible stabbing pain when I stand after sitting...cannot sit for long.
    When I lie on my back my sacrum area is very painful and it feels like the sacrum is going to break in half. My doctors have never mentioned any si problems on mri or xray, but have read on here that it can be hard to diagnose except with injection.
    For those of you that have been diagnosed, were you diagnosed with injections and do my symptoms sound similiar to yours?
    thanks all!
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • quicksilverqquicksilver Posts: 126
    edited 07/11/2012 - 12:12 PM
    I had an L5S1 PLIF last July and I finally got my doctors to get me in for SI joint injections. I had them Monday afternoon. My sacral area was remarkably pain-reduced right after I awoke after the procedure! I went from nearly a 9 to a 5 in just minutes. For the first time in several years I found some real pain relief. After all this time, someone finally managed to locate a significant source of my pain.

    My injections were a mix of lidocaine and a steroid of some sort. My relief was short lived as the lidocaine wore off that night. The next couple of days were more painful, as the doctor warned me they would be. Today I woke up and while I had my usual pain right above the pelvis (and up into my fusion), my SI joints were remarkably pain-reduced. I was at a 3-4 and felt a whole lot better. My day has seen a bit of an increase in pain, but not like I've been experiencing lately.

    What makes this more amazing is that I woke up Monday morning in such pain that had I not had the injections that day I may well have called my doctors to tell them that I needed some disability leave. That phone call was literally just a matter of hours away. I have been in such constant and increasing pain that I was at my breaking point. I'm still not that far from it, but I am making some progress.

    Michael
    Disability retirement
  • Michael I am so happy for you that you experienced such a decrease in your pain right after your injection...to go from a 9 to a 5 is very significant. I hope that as the steroids kick in you will get some lasting relief.

    Great that it happened for you at a time when you were considering disability leave and you now have hope. I have also been close to my breaking point lately, and have not been getting answers for my continuing pain. When I read techgurl's post I felt like she was explaining my pain. It gives me a hope that this may be a cause for my continuing pain. Do you also have hip pain and burning feeling in sacrum?

    Did they say that the steroids could take up to a few weeks for you to feel the full effect? I look forward to hearing more about how you are doing as you progress. Did they let you know how often you can have the injection if it continues to bring relief?

    My fingers are crossed for you that your pain levels continue to drop
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • Thanks for your comments and support. My symptoms generally revolve around my hips and sacrum. As you've guessed, my sacrum often feels like it is burning. My hips occasionally feel as if a sharp stick has managed to find its way into that area. The maddening thing is that these symptoms come and go as they pretty well please. The only constant is a fairly sharp pain across the small of my back. Some days it shifts left and other days it shifts right.

    The last two years have been a nightmare and the year just past (my post-op year) has been mostly pure torture. The best part is that my doctors have done their level best to try to wean me off of narcotics. Frankly, narcotics provide a very minimal amount of relief. I'd much rather that they identify the source of my pain and correct that! I'd be ecstatic if they could do that. I'd dump my pills in the toilet in a flash if I could find relief.

    Michael
    Disability retirement
  • Symptoms can vary greatly from person to person. Mine started with lower lumbar back pain which progressed quickly in a two months time to leg weakness, si joint buttock pain, eventually going up my whole spine of stinging/burning pressure. It felt like my spine was being twisted and breaking! Eventually it was painful to even touch. It then progressed to where I was unable to sit or walk, then neurological symptoms followed, quick weight loss, vision changes, and severe tremors. Eventually became bed ridden only able to walk with a walker to get to bathroom. Husband and family had to care for me 24/7. MRI showed mild degeneration, arthritis, and I have scoliosis but Dr.s were baffled as none were significant enough to cause such symptoms or do surgery. Sent to pain management Dr. who prescribed steroid pack which did nothing, other than that she "did not know what to do". ordered blood test and other radiology of pelvis and head CT all negative. Also went to a rheumatologist who did full workup, all negative except positive for HLA-B27 gene marker that can be a precurser for rheumatic disorders. Finally went to orthopedic Dr. on my own who examined me and stated he thought it was the SI joint and to have pain Dr. do injections. Even though he diagnosed me he was not trained to treat. She reluctantly agreed stating " I dont think that is it" So I asked well then what do you suggest, she replied "I dont know'. I insisted she do injections to atleast try, her reply was " ok, but dont hold your breath". Had injections done with only local anesthetic as thats how She did them, which gave some relief in that area and quickly found another pain Dr. who thankfully was reassuring that she would do what it took to give me some relief. She scheduled me the very next day for injections with full anesthsia of facet joints in area of arthrits and again two weeks later as it usually takes two rounds. Through it all i was put on norco, fentanyl patch, Aleve for inflammation, flexeril muscle relaxers, and began taking Ensure mucle supplement, calcium, MSM, and glucosamine supplements, heat and ice also alternating. Slowly pain subsided some and I started Physical therapy with deep tissue message. Eventually the SI joint injections wore off and had to have them redone, again in two doses two weeks apart. Periformis muscle was also affected and injections were done in muscle which worked great. The injections eventually enable me to get back to walking without assistance, driving, and taking care of myself. But I was still limited as to time allowed up as pain would increase the longer i was up. Wanting to get back to work next month I finally decided to have the RFA (burning of nerves) at S1, S2, S3, L5 done just yesterday. And will have L4 and L3 done in two weeks. I am a little sore but nothing like the pain before injections. Injections have allowed me to get off fentanyl patch and I can manage with just Aleve some days or Norco once a day. I had ER drs. trying to put me on Valuim, and other pain meds and sending me home on four occassions before I found new great pain management dr. I refuse to keep being handed more and more pain meds and sent home! My first suggestion is to get injections in SI joints to see if it helps, I was nervous first time, but theay are really no big deal compared to the pain of SI pain. Can take up to a weelk to kick in but well worth it. I also found and consulted with another orthopedic Dr. who does treat SI joint and does surgery in case I end up needing it down the rode as a last resort. He confirmed to continue with treatment plan of new pain management Dr., injections, and or RFA, as this would also be his process first before considering surgery. Hope this helps and dont give up. You MUST be persistant with Dr.s and as I encountered it is difficult to find ones who treat this condition so do your research.
    elise janssen
  • Thank you so much for your informative post :) How are you feeling now that it has been a few days since the RFA? I hope that it brings you relief. Is this RFA around the SI joint ? or Facet joints...or both? I had a facet injection once but did not have relief from it...even though I have moderate facet hypertrophy.
    I really hope that my doctor will agree to give it a try and I can try an SI joint injection. I have had epiderals,caudal block, and facet injections...as well as two lumbar surgeries without relief of the burning pain in buttocks, coccyx, hips.I have asked about my si joints before, and was told they looked okay on MRI. The symptoms seem to match though...


    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • Reading your post was like having a light bulb go off.. I have been treated for back pain this past year that seemed worse after my fusion.. Today I finally saw PM for the first time and he told me I have SI Joint problems that could be causing a lot of the pain in my hips and back (aside from the post fusion problems). I am scheduled fo an injection the 27th and am kinda excited to see if it does anything in alleviating the pain I have been under!
  • Sorry to hear that you too are experiencing just as much pain after surgery as before. Glad to hear that you are going in on the
    27th for an injection (I would be excited too!)

    Please keep us posted how you make out after the injection.Hope that it brings you lots of relief.
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • cjeuckccjeuck Posts: 4
    edited 10/26/2012 - 6:38 AM
    After reading these posts I had to add on and share my experience. I had an injury last may 2011,Felt a pop in my back and my leg went numb. I also was no longer able to urinate on my own. I had to learn to self-cath with a back injury that was fun :(. Aug 31 had discectomy/lami L5 S1. Leg pain was better right away but back pain never seemed to get better than a 5/10.

    I went back to work in oct. 2011. I am a floor nurse on a busy oncology floor, while rushing/running a patient to the ICU and turning a corner I was trying to get the bed to turn as well and ended up with several tears in my left hip. In the process of finally getting that problem taken care of the orthopedic surgeon said he will not do surgery because all my pain is from my low back and not my hip..needless to say he left the practice and I went on a hunt for another doc. At least I had already went through an arthrogram, one injection (felt great for 4 hours) and failed sessions of pt.

    I received an email from this website and it was talking about SI joint pain and how underdiagnosed it is and found someone talking about their SI joint pain and problems they were having. Which is exactly what all of you are also feeling. Laying down on my back I feel like my sacrum is going to snap in half, laying of the left side would just cause pain due to the hip, so the right side was all I could do unless I had many pillows to find comfort and pushing hubby off the bed..ooops!

    I had a follow up appointment with my neurosurgeon and told him I needed an injection to see if my SI joint was also involved. He said sure no problem but I needed to get PM to do it. I talked with my PM it took several attempts to even get him to do the injection because he thought I had piriformis syndrome from having back surgery. Because this is a work injury it takes forever to get a procedure scheduled but finally it happened. Had my first one in June with sedation. I had a mixture of steroid and lidocaine. I felt no pain until the lido wore off then, unexpected intense pain that I was not told about. After about a week I felt about %75 better and now I could look for a new Orthopedic surgeon. I found a great one and will be having hip surgery Dec.4

    I also just had my second SI injection two day ago and this time recovery is taking a little longer than I had hoped. I had to use my cane most of Wed. and was unable to sleep except for 15 min. Later on thurs. I managed to get in a few more hours but only 1 hour last night. When the injection no longer work then he will do RFA. I will be getting an injection into my right side as it has taken a beating. After hip surgery is done and I am good as new :) I have one more back surgery to fuse L4,L5 and S1 and possible T12 and L1. I have done some reading about fusing the SI joint but what I have found so far is recovery is hard. I hope that never comes. I did see several studies being done concerning the SI joint on this website.
    Sorry for just babbling and I hope it helps. This was my very first post here and I got a little carried away. Good luck everyone and I hope we can be pain free one day!

    Carol
    Discectomy/Lami L-5-S-1, DDD, tear and disc herniation at T-12- L-4

    Carol
  • Welcome to spine health, though sorry that your pain brought you here. Thank you for sharing your story. Glad to hear that you have found a new orthopedic surgeon and that you are having your hip surgery soon. Will your neurosurgeon be doing your fusion?

    I too was in nursing before my injury(long term care) but unfortunately have not been able to return since my surgeries and am now on disability (oh how I miss it, but what a toll it took on my body.) Have you been able to work in a modified capacity? I was able to do that for a time, until it got to the point that even sedentary work was impossible.

    I can totally relate to the feeling of lying on your back and feeling like your sacrum is going to snap. I also developed increased pain in first one hip, and now both. My surgeon feels that it is related to my back, but I am still hoping to have an SI injection to see if this helps. I hope that your injection starts to bring you relief soon, and that the pain of the last few days subsides.
    Please keep in touch and let us know how you are feeling as the days go on with your injection. Will be keeping you in my thoughts as Dec 4th approaches and hope that it brings you alot of relief.
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • Thank you for responding to my post. It really makes you feel better about yourself when you can share and someone can actually understand what you are going through. I am feeling much better today, so much so that my husband took me out to dinner. It was really needed because I am at home all the time and sometimes you just need to get out. After my hip injury last year, I was ultimately let go from work. I was devastated but what can you do. I have applied to many other places but seemed to be shut out from anything in my area. And of course workman's comp will not pay if I can work so I have been unemployed technically since July. I will be talking to my ortho surgeon next week and asking him If I should even be trying working with this injury.

    I will be seeing my neurosurgeon soon and to decide what we will be doing and when. I would like a break between surgeries as I am sure anyone would. I am nervous to have another back surgery. I had some problems after the first one and I had hoped I would never need another one, but when he says "you will need a fusion in a year" I was like "what?" why didn't you do it then? because of WC. So I get to be in pain my whole life due to working my ass off. I guess that is what you get when you work in healthcare.

    I really hope you get an injection Karen. At least you will know either way. Just because they looked ok on MRI doesn't mean that they are not the cause of one of the issues. If you have too keep on them until they do it. Who are you asking to do the injection? You can get it done from: neurosurgery, pain management and sometimes orthopods.
    I also really miss nursing so very much. I am hoping that when this is over I will go into hospice care or private nursing. We shall see if my body decides to hold up. I am not sure I would even qualify for disability. I really do not have a clue about that area of expertise.
    I really hope that an injection is coming your way. Also thank you for keeping me in your thoughts about my up coming hip surgery.
    Discectomy/Lami L-5-S-1, DDD, tear and disc herniation at T-12- L-4

    Carol
  • cjeuckccjeuck Posts: 4
    edited 11/09/2012 - 12:43 AM
    I had hip surgery that was scheduled for Dec.4 but, I received a call Wednesday morning and was asked if they could change the date for Thursday. I said that would be fine. So a very busy Wed. to get everything done. Surgery went very well and I was able to come home the same day which never happens because my BP doesn't want to go along with the program. After a wonderful talk with the anesthesia we figured out the problem. During the entire surgery you are given pain meds and morphine is no good for me which is what I was given with back surgery. With a nice cocktail of fentanyl and 3 anti-nausea meds and of course being under, I was able to sail through. Had a tendon repaired along with a labral tear also cleaned the joint out They also found that I have a rare type of dysplasia, so shaving some bone was needed. He said he has done hundreds hips and only see this about 4 times. Pain is under control so I am doing good so far. Today I will be getting a cpm device that runs cold water through to keep the swelling down and does passive rom along with a squeeze to the calf to prevent DVT.

    I will post how the healing and rehab goes. Thank you for reading my babbling

    Carol
    L-5/S-1 discectomy/Lami, DDD, SI joint dysfunction.
    Discectomy/Lami L-5-S-1, DDD, tear and disc herniation at T-12- L-4

    Carol
  • ouch2oouch2 Posts: 1,270
    edited 11/09/2012 - 1:36 AM
    Glad to hear that you are on the other side of your hip surgery and at home already. Kinda nice that they bumped you up, less time to worry although a scramble getting ready I am sure.

    Rest well, stay ahead of pain with your meds. Did your doctor tell you how long recovery will be for your hip?
    Look forward to hearing how you are doing as you heal. One more surgery after that for your back , and hope you are as good as new.
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • rockfish55rrockfish55 Posts: 3
    edited 11/09/2012 - 6:45 PM
    Recently learned I may have the S-spine problems u describe, as tho I need more types of spine problems. Already diagnosed with DDD, resulting in bone spurs, herniated discs, missing discs, and arthritic changes, plus spinal stenosis & foriminal stenosis at many levels. Problems go from C2 down. Already had fusion of C4-5-6 and L3-4-5 and need another at C6-C7-T1 plus L2-L3 where the vertebrae have slipped way outta joint (severe spondilothesis). The S-spine problems apparently explain my hip/pelvic pain, or why it's so severe. As u might imagine, I have a LOT of pain and other problems. At some point, I've experienced nearly every symptom associated with spine problems except full-blown quadraplegia or paraplegia. Even have had symptoms rarely mentioned on websites. But know very little about S-spine/joint problems cuz prior to this year, I knew only that I have a missing disc at L5-S1, but I found out I have far more extensive problems than that.
  • I have had SI Joint problems for many years - at least 5 or more. It has been so puzzling, with no one to answer why I have been feeling so uncomfortable. My symptoms: 1. A tight area on the right side of my back. 2. Tingling and numbness that radiates across the top of my back, and down both legs. I am not diabetic. The tingling and numbness is caused by the SI Joint nerve entrapment. 3. Difficulty standing up from a sitting position. 3. Difficulty standing in one place, unless I have something to hold on to such as the counter, or back of a chair. 3. Off-balance walking, and I have a lift in one shoe. My right leg is longer than the left leg - SI Joint related? 4. Steps are not user-friendly, unless I have a rail to hold on to. 5. I walk with a walking stick in my yard for balance. 6. Difficulty sleeping on my back - right side or left side is the best way to sleep. Usually take a small sedative to get a good nights sleep. 7. Extreme difficulty sitting anywhere - couch or a chair.
    SI Joint problems are not fun. I have had both hips replaced 10 years ago - hip dysplasia. I think the SI Joint problem was beginning before my hip replacement, and never diagnosed. My first SI Joint injection was last week, and I felt remarkable changes right away. I am on the right track now!
  • S Martin....I have all those things too .....you described my symptoms exactly there.....although I have has yet only been diagnosed with a fused sacrum at L 5 with the prominent transverse process whatever that means.......don't take this the wrong way but I am glad I have found someone with the exact same symptoms as me..
    Back pain arghhh
  • Sharon GavinSSharon Gavin Posts: 2
    edited 12/29/2015 - 9:41 PM
    Hi, everyone. Am new to the forum and am a veteran of seven spinal surgeries, numerous pain procedures and a rt. labral tear repair/busectomy in 2014 that did nothing to help my rt posterior hip. pain. Rothman institute led me to believe they'd fix the glut tears, but said they were too extensive for them to repair. Still looking for a doctor who can fix them. Apparently I have bad si joints and gluteal /psoas tears. The gluteus medius tear seems to have first occurred during my L5-S1fusion in 2000, when I woke up with crushing pain aross my rt. hip, lke a board had been nailed into it, numbness from the knee down and inabllity to use my leg, for days or move it normally again, and tearing/spams with any internal rotation of my rt. knee. I didn't have these problems going into surgery This rt. posterior hip/glut problem has gotten progressively worse until I think the additional tearing may have freed up my ROM but caused new problems. My ability to walk is now extremely compromised. Walking and wt. bearing is excruciating throughout my body, but especially in the area of the rt. buttock and upper leg. Also my entire rt. foot and bottom of foot also has pain, spasms, and neuraligia. at times but ironically longstanding daily bi-lateral calf pain and spasms have lessened. r.. .. Was told by my local latest ortho that I need a bi-laterial but especially rt. I-fuse done on my deteriorated SI joints. Pain Mgmt confirmed they are bad; had RA twice that didn't help, but no other surgeons perform this in my area, so few understand the procedure. I also have been dealing with now very pronounced gluteal medium and minimus tears plus a recent less extreme psoas tear. Feel like my entire low central back (S-1 to S-4) is so sore to the touch and is being strained beyond capacity just to sit or stand, as well as the rt. hip/buttock is in a tight spasm constantly as I try to walk. Can't sit for long or ,my legs and body lock up and then I can't move my legs for a while,. I also Can't stand still or walk long or the low spine pain abd glut/posterior thigh pain is too much. Must walk with a shopping cart since I can't seem to hold my body erect with the pain and dysfunction. My local ortho who performs I-fuse said he'd see if someone could examine me for that scoliosis like problem after the I-fuse surgeries are finished, but scoliosis films I think were negative. Think it's may be glut tears and low-back weakness from too much pain causing it, as well as increased weight from not moving fast or as much for years. Many rounds of PT and ablation didn't help my joints, and I feel I have a structural/spinal load issue: feels like my very low back and gluts need to be lifted and supported. Am waiting for out of state surgeons who repair glut tears to get back to me after reading my hip and pelvic MRIs, but it's been a slow process getting a response. Sent records to a few but a [edit]. Surgery is supposed to be great at fixing large, complicated glut tears with a new procedure.
    Meanwhile, has anyone had the I-fuse surgery while experiencing severe spasm and glut pain, and did it help the glut pain? I'm not getting enough specific answers about this surgery from my doc, and it's a newer surgery not many docs perform so I'm afraid to sign up until I get info about my muscle/tendon tears and how to proceed.. I don't want to get the I-fuse surgery until I'm sure it won't add additional strain on my already terrible gluteal region and rt. leg,, since I'm barely walking now. .Pain has gone from bad to pretty much unbearable over these 15 years and am allergic to opiates, so not easy to deal with constantly on muscle relaxers, IBU and Tylenol alone. Hoping also to get a doctor familiar with or who does I-Fuse to respond. Thanks so much for any input and insight.
  • SavageSavage United StatesPosts: 5,233
    edited 01/02/2016 - 11:27 AM
    Welcome to Spine-Health
    Please click on link for helpful information!
    Sue
    Spine-Health Moderator
    -------------------------------------------------------------------------------------------------------------------------
    Please read my medical history at: Medical History

  • L5s1llyL5s1lly Palmdale, CaPosts: 4
    Got x-rays recently showing I have quite a few problems. Starting from the bottom i have oversupination with flat feet (rare I know but my feet turn out and knees turn inward. Bad) I also have spina bifida occulta, my l5s1 disc is about 95% degenerated, I also have a very obvious Lumbar Lordosis,which in turn causing my l5 to go out of alignment with my L4. I also have a nearly 2 inch cervical lordosis. As well as hip misalignment(my left hip is noticeable higher than right) and shoulder displacement. Oh and scoliosis. I've have pretty nasty tendonitis when I was younger. And I'm 19. Guess it really does run in the family. Does anyone else have this much trouble with their backs? My limp is starting to become unbearable. Even after setting my pelvis quite often.
advertisement
This discussion has been closed.
Sign In or Register to comment.