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Hi, new poster/long time lurker from Florida

CheekyCCheeky Posts: 40
edited 06/11/2012 - 9:02 AM in New Member Introductions
Hi - I've been lurking on this forum for 6months, and finally decided it was time to introduce myself :)

I had an accident in October, and essentially blew out the facets of the entire Lumbar spine and part of the thoracic, both SI joints, tore a few discs, etc etc etc. I've been on medical leave since the accident.

So far I've had 3 steroid injections (caudal ESI -november, bilateral SI - December and 5 level bilateral facet January), and RFA - February. The steroid injections have all worn off, and the nerves are already regenerating from RFA. I'm scheduled to see a neurosurgeon on May 25th, and am a bit nervous about what might be next. I know I'm in good hands - I'm a patient at a wonderful spine institute and have terrific doctors, but I'm so scared that the rest of my life is going to be constant pain.

Before the accident, I was extremely active. I worked 45-50h most weeks (I love what I do), I walked my dogs 3-5miles most days, did yoga at least 5 days a week, and used a fluidity bar (ballet isometric exercises). I also cooked gourmet meals most nights after work for my boyfriend & I, spent time with friends, went to live shows, danced, played, and just enjoyed life.

Now, I'm on month 6 of medical leave from work, rely on a cane to keep myself from falling over when I walk (numbness in both feet, right leg drops out), wear an LSO brace anytime I leave the house, have a disabled parking permit, and have to use an electric cart if I want to go grocery shopping. If I don't, I can't move for 2-4 days after. I'm not allowed to walk my dogs or do yoga, I can't stand long enough to make dinner, I can't clean my house... I spend my life on the couch or in bed, but I rarely sleep because the pain is so intense. I function on an average of 2-4 hours of sleep per day, usually in the form of cat naps - we've tried all kinds of sleeping pills, but the pain either wakes me up or keeps me up.

I tried to go grocery shopping the other day - there were no electric carts available, so I decided to push a cart. I managed to get only essentials, was in tears within 15 minutes, and am still in so much pain that I want to rip my spine out of my body.

I went to physical therapy, but the head physical therapist (who is also a chiropractor and DO), stopped all treatment other than H-Wave because of severe spinal instability.

I've managed to keep a fairly positive, optimistic outlook, but I'm frustrated and scared, and I want my life back.

I'm 33 years old, and I am terrified that this is what the rest of my life will be like. I know I'm extremely lucky - my boyfriend is super supportive - I know he isn't going anywhere, but I feel so guilty that he is stuck with a girlfriend who can't DO anything any more. I know I'm not the only one feeling this way - How do you all handle that?

I really didn't mean to write a whole novel about myself - if any of you managed to make it this far, I'd love to know how you handle all of the changes :)

Hope you're all pain free and doing well :)
Slipped on a wet stair case the morning of 10/31/11, landed flat on my tush & blew up my spine & both SI joints.
3 level ACDF C4-C7 7/11/12 (collapsed discs & severe cord compression)
lumbar fusion to be scheduled once healed from ACDF


  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,730
    Welcome to Spine Health. Don't feel bad about lurking for 6 mo. I also lurked for a long time before becoming a member and posting.
    It sounds like you've been suffering with this for way to long. Isn't it time to move on to the next step. And see a spinal specialist, Have some imaging and getting 1 or more opinions, from a orthopedic or neurosurgeon. And do something about this?
    Keep in mind there are a lot of success stories out there. they may not be on this forum. Because they are out living their lives. There are no guarantees except for what your doing now. And that's just not a good one.
    Good luck, Jim
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
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