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Neck injury - how can I make a case to the medics?!!

locksmithllocksmith Posts: 9
edited 06/11/2012 - 8:02 AM in Neck Pain: Cervical
It has been a long time since I posted. I had a neck injury 1 year ago and since then have had excruciating pain in hands and feet, with loss of movement in big toe of left foot. Swollen knees for four months and general heaviness when I walk. (Plus usual neck pain and fatigued right arm) Now I have chest pain and a wildly erratic heart beat with from 50 ectopic heart beats per minute. Exhausted and now quite upset. Can pass out at the drop of a hat. Have seen spinal surgeon who recommended disc replacement C5/6 but cannot afford it. Will now need to make a case to an NHS rheumatologist for surgerybut need further advice. My disc shows dessication and consistent loss of cord signal through C5 route - no nerve impingement but forminal narrowing on left side. Large disc bulge that hasn't herniated, nor has it reduced. Disc lower down has small bulge and there is also forminal narrowing.

Point is, I have to make a good case that the neck injury is causing all the other symptoms - I was in perfect health and never had problems before an assault on me last year. How can I argue this with the evidence that I have. Tendency in the UK is to dose you up with drugs or give physical therapy that in my case makes me worse and leaves me in agony with head pain that brings me to my knees. I would be so grateful for a response. Many thanks.
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Comments

  • Sorry i am not sure i understand what you mean you have to make a case to NHS,

    If the spine specialist found a leaking disc in the cervical and recomending surgery for that issue why would you need to make a case to have surgery by a rheumatologist?

    I know you are in the UK and things are done diferent there then here in the USA but i am not realy sure i understand your question,

    Only the spine specialist can cofirm if all your symptoms are caused by that disc leaking and without fixing that problem with posible surgery 1 st it will be hard to realy know what other symptoms are related to in my opinion,

    Best of luck,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • The surgeon I saw originally was in a private consultation but the surgery he recommended is not always available on the NHS. Unfortunately I can't raise the £16,400 needed for the operation to be done privately. In Dorset, where I am from, you cannot get a direct referral to a spinal surgeon via the national health service and everyone has to be assessed initially by a rheumatologist (bizarre but true). They take a very conservative approach to all surgery and will cost cut as well by trying to just recommend increasing pain killers. It seems harsh that I have been paying into the NHS for thirty years but cannot get the treatment I really do need.

    I agree with your point though that it is hard to say whether my other symptoms are curable via the surgery until 'after' the surgery, though I have a strong intuition that should I have surgery, many of my symptoms will resolve.
  • I understand from other posts on the site, that the NHS can take awhile. Posts from those in Canada relate the same issues. We don't realize how lucky we are in the US.

    I would keep detailed info on pain, what, when & how caused and managed(or not managed). It's alsways hard for me to remember all that stuff at the appt. My journal got to be pretty long, but was very useful.

    Keep reminding them that the longer & more severely that nerves are impinged, the more long term damage, (and costs,) there are.

    Hoping you will get the appropriate treatment soon,

    Dee

    PS- Come back & let us know how you're doing, those who have had the same issues may be able to offer better suggestions.

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