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IS there a chance i have it

beatleschickbbeatleschick Posts: 6
edited 06/11/2012 - 9:02 AM in Fibromyalgia
hi all i have mild-minimal facet hypertropy, and mild spondylosis although its mild the pain is far from it, if i scratch my leg it feels as if i have been hit with a hammer from my chest down i experience severe pain, i do get pains in my arms and wrists but nothing to the pain i get in the legs.
I have read a few sypmtoms and i do relate to a lot of them but i wanted to know from as many different people before i even suggest it to my doctor, any advice is appreaciated thanks in advance xxx kell


  • Suggest what to your dr? If you already seen a dr and described your symptoms its his job to tell you what is the cause and what can be done about it,

    Take the guessing game out of it and ask the dr, Unless you want a bunch of strangers without any medical degree taking stabs at what is wrong with you,

    We are patients not Dr House!

    Good luck and let us know once dr provided you more information,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • my doctor is doctor mouse and is the one that is taking wild guesses infact so is most of the doctors and consultant that i have seen, coz as far as im led to believe spondylosis isnt a diagnosis. i dont understand why im in so much pain. and funnily enough this all happened 3 weeks after i had an etopic pregnancy which i had to have keyhole surgery for, i cant get answers anywhere else so im looking at strangers desperation is creeping in, i dont have funny money to go and get seen privately otherwise id do that!
  • I appreciate your post as im only wanting to talk to people that understand how much pain im in, I have 2 posts so far in this site and i must be wording it wrong or coming accross in the wrong manner as twice the reply is rather blunt, everywhere i go i meet a brick wall :(
  • Maybe write down all your symptoms and show your Dr. When does it hurt and what makes it worse. Anything that relieves the pain, like resting after walking 5 minutes? Any pain or numbness in your legs or arms? You need to present this to your Dr. and be specific.

    Fibromyalgia is diagnosed through so many trigger points on your body in different areas.

    Has your Dr. done blood works on you to rule out any inflammation?

    X-rays and CT scans or MRI should be ordered also if this is new and see a Orthopedic Surgeon and get another opinion if you have seen one already.

    I only know all this because I was a ER room RN but not medically trained to diagnose as only a Dr. can do that. Keep after the Dr. to get these tests done.

    Many of us here are going for surgery or living with chronic back pain although there are maybe a few people here with Fibromyalgia. I hope you get some answers soon and keep us posted. Charry

    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • ascertain your medical problems is with medical photography and bloods and a full physical examination ..it would be work seeing your family GP and getting a consultation with a suitable medical professional its not worth guessing
    tony {UK}
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • As i see you being a new member and you might not be aware of spine health rules before posting, If you read the rules spine health asks that we dont give medical advise and for new members to provide us with medical information from there dr and only from there on we are able to help and suport ,

    Not the other way around where members give us there symptoms and we play guess new members medical condition ! A new member has to do there part also by seeing there dr or a specialist,

    So lets see you joined 5-16-2012 and the best advise you can give is to agree and state = Dr,s Dont have a clue ! As if our advise was beter then any dr who has a degree in medical field,

    Its obvious you just joined and claim to know what this forum is for when you dont have a clue ! Or you just joined to disagree with the most simple and most logical advise that was given to another member to see a spine specialist,

    There is no beter advise that can be given as you can see from others as well,

    So no mater what side of the bed i get up from answer is the same !

    So if you have any beter advise besides Dr dont have a clue to figure out a persons medical condition as specialists , I am looking foreward in reading it,

    Ps. Welcome to spine health ,!
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Alexhurting-

    Perhaps a refresher course on the forum rules wouldn't hurt anybody.

    "Its obvious you just joined and claim to know what this forum is for when you dont have a clue !"

    Forum Rule- "What I ask is that everyone's posts be treated fairly. That should not matter if a person is making their first post or making their 3,000 post. We are all equal in so many ways here." and,

    -"Many times we come to this site to get more information about what is going on with us. Its one thing when we go to a doctor, but so many times, the doctor's words just fly over our heads or there is so much information, we tend to come away with only a little information. So, we turn to this site to get more answers. I do believe if we polled everyone here, the majority would agree that they found information here that they couldn't find elsewhere. So as members, we put out a question to other members. Sometimes we do so in hoping that the responses will come back supporting what we believe."

    Hmm supporting what we believe, that pretty much sums up what the OP was doing I think. It seems like they were 'polling' other members here to see if they share the same symptoms in their experience with Fibromyalgia.

    Next - "The time you spend each day on Spine-Health should be time you read other members posts to learn, make some of your own posts to ask questions, but it should never be spent trying to defend your position or feel that you are being attacked." and,

    "As newer folks read replies from other members, it is important to keep that rule in mind. Any information that you get from other people here is Informal Advice , Personal opinions, and information from personal experiences and it is Not formal medical diagnoses or advise. You should always consult with your physician regarding any health or medical problem. Having input from the members here can be very valuable. In some situations, it may be about the only source of information people can get."

    As I already said I believe the OP was just making an attempt to poll other members who may have a better grasp on the full range of symptoms. I'd like to ask you, Alexhurting, if you yourself have fibromyalgia. If you did, you would realize what it is like out there in the medical arena and how doctors treat you. You'd also know that you still fight to make yourself believed by medical professionals who still believe it is not a real problem. And finally, you would be aware of how long it takes to be diagnosed. It's not a simple w and w/o contrast MRI. Also, the OP clearly advised they were going to discuss it with their doctor so why it was necessary to give self described logical advise which advised them to do what they already said they were going to do, well, is rather curt.

    Finally I'd like to draw your attention to this as it is from the president of this site - "This is a warm, nurturing community of all types of people, just like yourself, that are suffering from recurring back-related problems. It's a place where you can ask almost any question regarding spinal conditions and will find friends who will jump in and try and help."

    Friends who will try to jump in and help...this implies in a friendly way. Not a cross or snippy way, which is how your reply made me feel. Since you didn't seem to know anything about fibromyalgia or it's symptoms or it's diagnosis criteria I have to question your motives for even answering in the first place. On face value, it seems your intent was to belittle and snipe on the OP (which I'm sure is not your intent as you are on this board after all and the forum rules clearly say the people on this board are nurturing). From the outside looking in your comments were mean and grating and that is neither helpful nor productive. The OP is scared, clearly, and if your beliefs were so steadfast you might have approached it with a simple 'we are not allowed to give medical advice, let us know what the doctor says.' and left well enough alone. But you clearly felt the need to antagonize the person who came to the aid of the OP by putting them on blast with how little they knew about the forum rules. This has become quite a pattern though I have noticed. Everything I listed is available for everyone to read in the forum FAQ's by the way.

    I'd like to add that as this is a community of just words we must always remember that our 'tone' is reflected in the way we word things. Because we cannot see the poster's body language we are left with making determinations on character based on the words in front of us. I personally make every attempt to convey a friendly, yet strong personality without being curt or short with people. I'd also like you to, if you having any confusion that is, to go back and count the number of exclamation points used in your response to donang. Now, go back through my post and count mine.

    I will close this with something to keep in mind. Doctors 'practice' medicine...they don't always have the answers, and neither do specialists. Shoot sometimes dogs know a person has cancer before doctors do. So please, be mindful on how you phrase things...remember that exclamation points convey anger and are considered yelling online, and if you feel the need to tell an OP something they already said they were going to do, don't. It just sounds patronizing.

    Flame away.
  • I think it's a great idea to speak to your doctor about your concerns. I have had fibromyalgia for more than 15 years. I was even asked to participate in a study once with the largest teaching hospital in my area! I turned it down as I don't do well with medications. Bummer.

    When you say if you scratch your leg you feel it in your chest, this is something I haven't experienced. That is not to say you do not have this problem or a problem like it such as CRPS.

    Required disclaimer: I am not a physician, specialist, dentist, prognosticator, or any other person capable of knowing your body better than you. My ramblings are my own personal experiences and should not be construed as advice ever.

    Now that that's out of the way ;) I agree with Charry that you should write down your symptoms, and I mean all of them, and give the list to your doc. Even if the symptom doesn't seem related, it very well could aid your doctor, who once again isn't me, in helping you both discover the problem. It took my doctors, lots of them, over 7 years to diagnose me with fibromyalgia. This was not unheard of at that time, where now I hear it doesn't take that long. People do not realize there are no blood tests, no imaging tests that point to this problem. It's one of exclusion, and once they put you through the ringer and back, several times, and exclude every other thing, then viola! Fibromyalgia. It sucks to put it bluntly.

    Anyhow, good luck with your appointment and let us all know how it goes.
  • Interesting, After all that long post the follow up advise is same as what i said,
    To see a dr, Not not to see the dr,

    If anyone says dr,s dont have a clue and thinks we can do a beter job telling someone what is wrong with them just by them giving there symptoms is not going to happen,

    When there is no diagnosis and person is looking for an answer without all the tests thats needed to be done , Only logical answer is having to see a dr,

    And thats just what i said without sugar coating it, Now if thats considered rude as some person feels i might have woken up on the wrong side of the bed simply by giving the advise thats most likely the only logical advise and fhey dont have any beter advise then yes i am going to correct them on it,

    It is in no way a verbal attack of any kind and in no way ment as being rude, Its simply speaking in facts not fiction,
    Talking around in circles will never get a person where they need to be and its not helping them,

    Some consider being blunt as rude and some consider it geting to the root of the problem, Creating drama around the original post original question asked and advise given simply is not constructive so i am finished here,

    I will wait for it to come out on dvd ! None so blind as he who will not see ,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Hi ya Beatles fan,
    Welcome and sorry you've had to see out sh in first place due to pain issues. But it's great place to get support and from those who have been thru a lot of pain.
    So did a Doc evaluate you with these things.
    I have been thru the Medical car wash of test. And I have been to many ignorant docs that tell me just live with it.

    Nobody should have to just live with it. And for me I say keep searching, at teaching hospitals and such places, some place out there you will find the right doc that will listen.
    I was lucky after year and half to find a doc.
    With your legs, do they go numb at feet area?
    I'm with Charry keep a pain journal, it's very helpful to bring with meeting docs. And what I did is I interview docs, I go in with list of my symptoms and a lot of questions.
    And I have been lucky, for me a good sign is when doc will order mri, blood work up and will not hand out meds till he has an idea what he is treating you for. I don't do well on medications and I have given most a try.
    Please keep us posted and please get into see a few docs.
    tc and welcome
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • Anyone else responding to this thread must respond to the OP(original poster). The side noise needs to stop, and stop now.

    To the OP look at a dermatone map and you will see if you have issues in your lumbar region they are not going to show up in your chest area, as it is just not the way the nerve pathways work. My best advice to you, is decide what is the worst pain you are dealing with and if you are seeing a spinal specialist, address that with them. However if you are seeing a primary care doctor, then you can address all those other areas. I know it sounds bad but specialist doctors, look at what they specialize in. Your primary care doctor should be doing a complete blood work up looking for anything out of order. To many times when we have a spinal issue, the blames goes there when there is another underlying issue. So I see your looking at Fibro, which is fine, you can google the trigger points and see the location of them. There are many here whom have Fibro, but it is a side diagnoses to their spine issues. I say side diagnoses as their spine issues are causing them them the most issues.

    Many here have given you good advice about keeping a pain journal, and it does help the doctors find issues. Keep in mind the doctors must find the pain generator to actually solve the issue. Also what your speaking of, can the doctor duplicate the issue on a clinical exam? That is so important, to help them in the clinical stages. Do you have copies of your recent blood work, is there anything out of line? One thing I encourage all patients is to keep copies of your medical records, I am not suggesting you play doctor, but rather when you see another doctor, you have all the information at hand. Most of us keep it all together in a notebook of sorts, each is different. But we have it, and yes doctors are busy and sometimes they forget that something came up odd. There is a thing called idopathic(meaning there is no known cause), which happens in many different symptoms. For example someone might have a high WBC count without being sick and they search and can't find anything else, so it is termed idopathic.

    Also I am not sure how long you have been seeing your current doctor, but keep in mind it takes time, for them to get to know you and build that relationship, and start digging into what is wrong. Have you been seen by a neurologist? Often times they are more research doctors and might be able to help you.

    Good luck and keep us posted on how you get a long.
  • Well said mate well said
  • necksurgery3nnecksurgery3 Posts: 4
    edited 08/24/2013 - 7:08 AM
    Getting Tests done is the key. I have had 3 surgeries on my C1/C2. I have not been diagnosed with fibro but have been diagnosed with odontoid aplasia, constant muscle spasms, greater occipital neuralgia, permanat nerve damage, arthitis of the neck, and a permanant pinched occipital nerve. Now I having loss of feeling in my legs, fingers and arms, Migraines, pain in my hips, knees, and elbows along with increased pain in my back, shoulders, and neck. They have done cat scans on my lower back, upper back, Cspine, and brain. A myelogram on my C spine and my brain. They have done a full blood work on me and scheduled a EMG and a nerve conduction test. Let me tell you I am tired of tests but so far everything has come back normal so they still do not know what is wrong but they more tests they run the better chance they have to find out whats wrong. I found a great app for my phone that I have started using (*edited to remove name of app) so I can track my Pain, take notes, record my meds and triggers, and my pain level and can print for my doctor for my next appointment. I hope this helps.
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