Hi! My name is Karen. I am 35 and have a 14 yr old son. I am still currently employed as the office manager at the small business I work for but notice myself slipping further away, mentally, everyday since I started working extremely reduced hours in December of 2011. I have been having pain since Oct '08 in my left leg and as the yrs have gone on I've gotten more pain in more areas. When my left leg first started acting up I had 2 ultrasounds done at the cost of almost $8000 but since I didn't have insurance I didn't have the option to seek care for the pain. So I dealt with it. Continued working 40-60 hrs a wk and did my best to act like nothing was wrong.
In April of 2011 we got health care insurance at work and I started going to the dr. So apparantly I had somethin goin on in 2008 with my spine that has now affected my entire being physically. I have my thoracic MRI this afternoon but as of right now I have cervical kyphosis, lumbar stenosis, a total of 7 herniated discs, 4 of which are causing cord compression. Not to mention the occassional tear or cyst that I was told are no big deal. Ways in which not getting help affected me... Severe/life threatening deficiencies (adrenal & vitamin), loss of sleep (11% restorative and sleep max of 4-6 hrs daily), loss of 150 lbs (obviously I needed that), skin disorder causing lesions all over body (assumed due to deficiencies), lesions/masses on four organs (assumed due to deficiencies). So yeah, I managed to take what is a bad thing and make it a whole lot worse. Now my body doesn't absorb due to cord problems so we haven't found a pain med yet to relieve any pain so I don't take them and my body won't even accept IV iron infusions. My saturation goes down but my iron doesn't change. Now I think one of my biggest frustrations is dealing with health care 'professionals'. It constantly feels like they need a lesson in compassion and ethics! Grrr... another time, another place... Luckily I got in with the gastro dept at Mayo (because of the weight loss & severe deficiencies my spine wasn't checked till Jan when herniated cervical discs were accidently seen in a brain MRI) in November and when I called my dr there last wk he got me in with neurology there next week. So todays the thoracic MRI so they have my whole spine in black and white. Kinda already know this mri isn't gonna be good based on one I almost managed to fight through in March until the tech said he wanted another 16 mins worth of slides. Um no, I was already numb on the left side, horrible pain through the rest of my body, heat waves goin over me from top to bottom and I could feel my blood pressure rising. He pulled me out of there and said I prob need to be sedated based on the pain I was experiencing and the way my back is. Fun times! Not!
Anyways, I just wanted to say hi and I hope that we can be here supporting eachother through this battle for a long time to come