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I can deal with the physical pain for now.

KarenAnnKKarenAnn Posts: 10
edited 06/11/2012 - 9:02 AM in Matters of the Heart
But the emotional pain. The pain that brings you to tears multiple times a day. The job I loved SO much for 10 years is all but gone now. Going from being a strong, independent woman to having to rely on my boyfriend to support me and help me just pick up my laptop or open a bottle of soda some days. I didn't have to think about being motivated because I just was and now it takes an hour to get the energy to get in the shower after I take my son to school. Going from being someone who could sleep 8 hrs easily everynight to being lucky to get 4 in a 24 hr period. And I try to sleep alot.

And what makes it all so much worse...?

How about dealing with the nurses and/or doctors who just really don't get it. I'm in enough pain and it's affecting every area of my life the last thing I want is to be talked down to by these 'professionals'. Friday as I was finishing up an MRI and the doc at the hospital was prescribing me essentially all the Fentanyl and Dilaudid I wanted, there at the hospital through IV, because they had been trying for over an hour to just relieve a bit of pain. I was even showing signs of pain while under max sedation so they kept pumping Fentanyl and Versed into me. Now at the exact same time as all this is going on, my nurse at the clinic was leaving me a message saying they wouldn't prescribe me anything for the weekend and I shoud go to the ER if I have any more pain (only have it 24/7). Because I had left a message asking for some pain meds the day before. I haven't had a prescription for almost 3 months. Anyways, my thought is this was really the last thing I wanted to deal with. I left the hospital and when I checked my voicemail I immediately called and left a message for the nurses at the clinic which of course was never returned. I just get so frustrated dealing with 'professionals'. They believe it's their way or no way but I'm not so much a believer of that theory. I'll go find another dr. I've got WAY to many medical issues to be dealing with nurses who think they know everything. One even lied to my Mayo nurse last week because she was too lazy to place an order. I eventually got the lie resolved and the procedure ordered but I just don't need those stressors from 'professionals' I've turned to for help.

So I guess I'm really just venting about the care I've been getting from the nursing staff at the clinic. I hate to switch my PCP again since I've finally got this one pretty close to understanding me and some of my medical oddities. So I'm going to call the office on Monday and talk to my PCP and let him know what went on in the office last week when he was out of town. If he doesn't do anything about his staff treating patients this way then I'm gone.


  • What kind of surgery have you had?
    ACDF C4-5/5-6 - 04-09-2012
  • I haven't been offered any type of surgery. I've got lots of spinal issues and no one locally wants to touch it. I just had my thorcic MRI on Friday but regardless of that, as of right now I have cervical kyphosis, lumbar stenosis, a total of 7 herniated discs, 4 of which are causing cord compression. Not to mention the occassional tear or cyst that I was told are no big deal. Nerve compression causing Severe/life threatening deficiencies (adrenal & vitamin), loss of sleep (11% restorative and sleep max of 4-6 hrs daily), loss of 150 lbs (obviously I needed that), skin disorder causing lesions all over body (assumed due to deficiencies), lesions/masses on four organs (assumed due to deficiencies).

    I literally get a prescription for 30 pain pills every 2 or 3 months and only get them from that office. So plenty of reasons that the nurses should've at minimum explained to me why, all of a sudden, I can't call my primary for pain meds. Just pisses me off that I have to sit here in pain all weekend with no relief and no explanation as to why.
  • SugarplumsSSugarplums Posts: 77
    edited 07/11/2012 - 3:35 PM
    Malpractice insurance. PCP malpractice insurance isn't going to cover your PCP giving you a prescription over the phone. You will have to go in for an actual appointment. I know that stinks because to get to the appointment you have to go through even MORE pain!

    I recommend you get a pain management doctor to cover your pain needs. You should also get a nurse case manager with your insurance company to help you find specialists for your other medical issues to help you regain your health. If you end up with a doctor you don't like, you don't have to have THAT doctor! Please save yourself anguish and find another and have your medical records transferred.

    Life is too short to have a doctor who doesn't truly care about YOU!
  • dilaurodilauro ConnecticutPosts: 9,832
    I read your original post, then re-read it. What I got out of that was that you are in pain and basically the medical professionals are not doing anything to help you. To compound this, they have never offered surgery as an option

    That may be true, but what options has your doctor given you? There are plenty of conservative treatments that can help

    But back to my original question, I am still confused as to your current medical situation, your doctor recommendations, what medications you are , etc..
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
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