Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

New girl

DragontearsDDragontears Posts: 3
edited 06/11/2012 - 9:02 AM in New Member Introductions
Hi all, 21 years ago I had a double Laminectomy at L5 S1. For many years I was pain free. Not any more. For the past few years the pain has been getting steadily worse and is unrelenting. An MRI was done and I was told I had 'severe degenerative damage at L5 S1 and a ruptured disk at L4'. I have severe pain that radiates down my right buttock, right leg, into my foot. I have lost the feeling on the bottom right side of my right foot, and a couple toes. I haven't been able to work for over 2 years now. I have a hearing scheduled for disability but of course in the meantime I have no health coverage. So I see a pcp at a clinic that has pay by your income. (I had to move to this area once my savings was gone so am stuck with this doctor) My doctor has put me on 5/325 Vicodin 3x a day for pain and THAT IS IT! Needless to say, I am in agony 90% of the time. Without health insurance I cannot go to a pain clinic as they don't take uninsured patients here. My doctor UTTERLY refuses to give me anything more for pain. Not even a muscle relaxer. We did try Lyrica but I simply can't afford it. It didn't seem to do much the week I took it anyway. So I suck it up and deal with the pain as best I can.
Ok, sorry for being a whiner there. I just wanted to lay everything out up front. What I am hoping to get out of this, is to hopefully have people who understand what I'm going through.
Thanks :)


  • hi and welcome to the forum! we are here to offer you support and answer what questions we can. i am sorry you are suffering so much without adequate pain mediation and therapy.. we understand and are more than happy to listen!! please have a look around the different forums and make yourself at home.. i hope you find some pain relief soon! Jenny :)
  • j.howiejj.howie Brentwood, Ca., USAPosts: 1,732
    Hi there and welcome to S.H. forums. If you do qualify for SSDI and it's before your regular qualifying age. You will be eligible for medicare at 2 years after that date. But there may be other benefits while you're waiting. I had to get an attorney to fight for my SDI. I tried on my own twice. And was denied. You only get 3 tries, so on the last one. I hired a attorney that specialized only in SDI. And we won.
    You'll find many people on S.H. just like you. So you came to the right place.
    Click my name to see my Medical history
    You get what you get, not what you deserve......I stole that from Susan (rip)
    Today is yours to embrace........ for tomorrow, who knows what might be starring you in the face!
  • Glad you found us, not glad why you had to find us.

    This is great site to search for help, get other ides,and vent, cry whatever you need you will find someone on here to help ya out.

    It's good you have a computer, much easier to search.
    Not sure what state your in.

    Check out teaching hospitals or doctors that work with interns. Great way to get free test and blood work up.

    Also search in your area for a y they are free and warm water walking is great.
    I can't do laps but I searched online for water exercises and my condition.

    Also hit your local library it's great place for medical books, do a lot research on different types of treatment plans

    This way when you get into see a doc you will be prepared, and good to keep a pain/medical journal.

    If most docs won't take you due to health insurance, don't give up on them so easy, email them keep calling.
    You need to see a specialist.

    not sure how works were you are but go into er if you have to. We have few hospitals here they can't refuse you.

    welcome and I hope and pray you get the help you need.

    With all that pain, and the results/numbness that doc sent you away. oh yeah that's right I had few of them.
    neck,bone spurs pain started 04, back issues and fusion l4,l5 06~hardware removed.
    good few yrs. 09 pain sharp, numbness feet,legs, diagnosed fibro, neurop. legs.lung issues.
    daily goal do good thing for someone.
  • go see another doctor .it sound like you will require more surgery maybe a fusion {speaking from personal experience.}as for pain relief its barbaric to leave you in so much pain ..you could also try a good TENS machine ..best of luck
    tony {UK}
    1997 laminectomy
    2007 repeat laminectomy and discectomy L4/L5
    2011 ALIF {L4/L5/S1}
    2012 ? bowel problems .still under investigation
    2014 bladder operation may 19th 2014
  • Thanks for the replies! Yes, I have a lawyer for SSD. He seems convinced that I'll get it at the upcoming hearing. I sure hope so. My doctor finally gave me gabapentin, 900mg.day for diabetic neuropathy. It seems to help my pain a bit. At least the pain going down my leg is tolerable.
    Without insurance I can't see a neurologist so that has to wait but I was told that it will probably mean more surgery.
    I live in northern maine. No teaching hospitals here and the only pain clinic in my area won't take me because I don't have insurance.
  • sorry to hear that you were once pain free and now pain has come back. I suppose that is my greatest fear because i am often reminded by the doctor to expect things to get worst as i get older. Maybe you could ask for Oxycontin or opana which are slow releasing vs what you are taking now. I had much success for a while with those vs. codine, vic, Vol, etc. Good luck to you
  • Well, out of the blue, my doctor had a complete personality change. The last time I went in she said she's going to schedule a new MRI for my back. Then she prescribed morphine er 15mg 2x/day neurontin 600mg 3x/day and flexeril 10 mg 3x/day. So finally I can sit up for hours at a time and even walk around a bit. The whole thing was kinda creepy but I'm not going to complain.
  • Have you checked into medicaid. If you have low income, you can qualify for at least the insurance. Many people think state aid is for young single mothers with low paying jobs, but in reality it is there to help many people, young, old and in between. I would apply, the worst that can happen is that you don't qualify for help and your only out a little time, but you never know, you may even be able to qualify for other assistance as well until your disability kicks in. Good Luck to you!
Sign In or Register to comment.