Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Don't get epidural injections for pain

ArachGirl422AArachGirl422 Posts: 13
edited 06/11/2012 - 9:03 AM in Lower Back Pain
Please do NOT let your doctor send you for epidural steroid injections for pain!!! You WILL be sorry!!

I have Adhesive Arachnoiditis from injections. It is incurable with intractable pain!! I am on pains meds for the rest of my life now.

Here are the symptoms of AA (Adhesive Arachnoiditis)

Extreme lumbar and leg pain.
Numbness in feet - a "hot" feeling
Feeling of walking on broken glass
Feeling of bugs crawling on your skin or water dripping down legs
Cramps and spasms in legs and feet.
Tinnitus
Twitches
Nerve pain, especially in legs
Night disturbance (terrors)
Balance issues
Electric shock type pains

Spinal surgery can also leave you will AA. If you think that you may have AA, you must get an MRI with contrast for a neurosurgeon to diagnose this. Mine was diagnosed by a neurosurgeon at Johns Hopkins Hospital.

Please come to our website to find out more about AA:

Link edited by Tam.
advertisement

Comments

  • well i thought it was just the medications but maybe some of these symptoms were due to the injections then again...i see the surgery also have the same AA. Good info to know. Night terrors.....didn't have them until all of this started but i summed it up to the medication never thinking it could have been something else too. Thanks for the info.
  • So if surgery can cause AA and injections also then what should we do stand on our head for pain ?
    Medications can be addictive and kill you and so on and so on,

    Assuming that everyone will get this condition from an injection would simply make an
    Ass out of you and me, Ass-u-ming !

    Smoking can cause cancer and fat foods can cause heart issues, Does that mean we stop eating,

    Too much of anything can cause harm and thats a no brainer, So way too many injections of course can cause harm, So for that reason alarming everyone from geting an injection for pain when needed is overkill, Most are aware of the risk with injections and surgery and surgery has a much higher risk then an injection along with pt often help people recover and avoid surgery,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • I agree there are risks to everything and all we do. I just took it as him giving information and really didn't pay attention nothing doing it at all. (I have already had it done) I just found it informative about night terrors but you make a valid point.


  • Also, here is a good video a friend with AA made:

    image

    Thanks,
    Geri
  • Alex,

    Not everyone will get AA from surgeries, but the more surgeries you have, the more likely you will be injured. Right now I am working with a State Senator to introduce legislation to make it mandatory for consent forms to be given to patients getting surgery or injections, to know that they could be at risk for Adhesive Arachnoiditis and how crippling this illness is. They must sign before any invasive procedure is done on the spine.

    Regards,
    Geri

    image
  • Eric,

    Here is a good video that a friend made about this subject:

    image

    Best regards,
    Geri
  • I'm sorry that you have to deal with AA. I know a few others who do also and it isn't easy for them to manage their pain, but somehow they do manage.

    Each of us in our journey of pain come across a diagnosis or a treatment that just makes us want to cry out from the mountain tops to bring it to everyone's attention.

    When I see someone crying out so adamantly, it makes me wonder if that individual is getting all the help and support they need from their own medical team.

    Of course I also laugh to myself, because in my head I hear the old Hee Haw song "Gloom, despair, and agony on me Deep, dark depression, excessive misery If it weren't for bad luck, I'd have no luck at all Gloom, despair,and agony on me".

    Sometimes I have thought of that as my theme song until I realized it was feeding the negative energy in my life. So then I took on another theme song by Chumbawamba "I get knocked down, but I get up again, you're never gonna keep me down"

    I guess what I am trying to say, is that I hope you have reserved time in your life to see the silver lining in the clouds.

    Kindest Regards,

    "C"
  • I agree each of us will have to embark on a journey to try to get pain relief. FOr some it will be a short and easy journey and for other it could be a long hall. After four surgeries i wanted to give up , after all the medications i could have given up but i didn't I either continued to want to live with pain relief and I look at the side effect from all the possible medication, surgeries, procedures and let that be the reason why i suffer in pain.
    Nothing is 100% and nothing will have no affects. You have to take the good with the bad and believe that something will help you. 9 almost 10 years later the pain pump helping me. I could have just focused on the negative about the pump and/or it's medication but i kept positive and looked at my options. It is alright to be scared or even doubtful about side effects but dont let that have you in fear and in pain for the rest of your life. If you have time to fear then i wonder if your pain is already manageable. FOr some of us the pain was or is unbearable the side affects would be a down grade to the pain we are/were living everyday.
    Good Luck.
  • Have too very much agree with alexhurting. What is the percentage of people who get injections get this. 1 out 5, 1 out of a 1000. You make it almost sound like it is a almost sure thing. Could other factors besides just getting the shot cause this? Or a combination of things?
  • I sustained nerve damage from surgery that i will be dealing with for life and even after a scs implant i am suffering,

    But i am still not going to parade the forum telling everyone dont have surgery when there is no alternative to there spine issue and what hapened to me obviously dont hapen to everyone,

    Same goes with injections, There is a long list of risks with injections not just AA,
    Injections can also cause diebetes along with many other conditions,

    Either in surgery or injections we are usualy already told all the risks involved and the list is as long as the medications side affects that takes up 90% of commercials on tv when advertising these drugs,

    So even with medications we take the risks when we are out of options,
    And if medications alone have so many negative side affects injections or surgery is 1 more step up that we try to avoid,

    But when you cant avoid it and pain gets the best of us we have anything done even if the list is a mile long about the risks,

    If we could of helped ourself then we would of avoided the dr,s all together and avoided all the risks,

    Trust me i am usualy the last 1 to defend any dr as i have had my share of anger of being left with this kind of suffering after my surgery that no dr can correct,

    And honestly i am tierd of being angry at the loss of my normal life and i already used up too much of my energy on it as it brings nothing positive in to my life to deal with my chronic pain,

    I have shared on the forum what ADR surgery has caused so much complications in my life and nothing more i can say about it,

    I cant tell any one else not to have ADR surgery if the posibility is there where it might work for them. Same as you cant say injection will cause someone harm when the posibility is there it can save them from having surgery,

    So as you can see i am in the same boat as you are with nerve damage as you are with AA, Its a sad sad situation to have this kind of outcome affecting our life and we dont wish this on anyone as we know this sucks horses ass,

    The AA condition has been brought up even with my situation about the posibility of having it, But i did not push to find out more as i already know they have no way to fix that same as what nerve damage diagnose that was giiven,

    The warning should not be just injections as thats just a small part of the medical treatment,

    Only thing people have to know is surgery does not fix everyones pain and yes can cause more damage and this is the reason most avoid it at all cost,

    This would explain why some dr,s make you suffer so long before they agree to do surgery to make sure you have used up all alternative measures and make sure you cant heal on your own before puting you in such high risk of cuting you open and start poking around to try to fix something,

    So if injection has less risk as of course it does then injection is still worth a shot ,

    Lets face it not everyones case is simple and clear of what surgery is best, In some way the most lucky ones are who have a clear case of the cause and drs can clearly see if surgery is the only option and bamm they fix it and person is back on there horse and have nothing but positive results,

    And then you have some of us who they have to do injections for months just to connect the dots to try to find the cause of pain, If they are not a 100% sure of the cause and you go in for a surgery that they thought would work, Now you were set up for failed back surgery its that simple,

    Now you are back to having the same problem you had and just added another problem to it, This is why we stress geting a 2 nd opinion or even a 3 rd opinion to make sure all drs agree !

    Its your spine and your body they are going to be messing with so you might as well get 2nd or 3 rd opinion to lower the risk factor % of having the wrong surgery,

    So thats it for today boys and girls, Tune in next week on how to get back at your dr by puting dog poo in a paper bag on fire on his doorstep,

    Git-ir-done
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • I suppose what i am reading and agree with is what i have said before. You must find what is best and will work for you and not be discouraged by any side affects. Everything you do , eat, wear, wash, drive to, walk to etc "could" have a side affect. Once again either live with the pain or do something about it. Good luck to you. GJ alexhurting.
  • alexhurting said:
    So if surgery can cause AA and injections also then what should we do stand on our head for pain ?
    Medications can be addictive and kill you and so on and so on,

    Assuming that everyone will get this condition from an injection would simply make an
    Ass out of you and me, Ass-u-ming !

    Smoking can cause cancer and fat foods can cause heart issues, Does that mean we stop eating,

    Too much of anything can cause harm and thats a no brainer, So way too many injections of course can cause harm, So for that reason alarming everyone from geting an injection for pain when needed is overkill, Most are aware of the risk with injections and surgery and surgery has a much higher risk then an injection along with pt often help people recover and avoid surgery,
    You know it isn't so much having the medication that is in these epidurals but how they are given. I know. I was fine with the first two, they went in so smooth, no problems at all. But then I got the third one by a different Anesthesiologist and he punctured a nerve, it felt like I was being electrocuted and within about 15 minutes the right side of my right thigh is paralyzed and forever. When I said something to him, he said that it was suppose to feel that way. I said no it isn't and he let me go. Also, when treatment is not performed as soon as you start feeling the low back pain chances are it will get worse. Mine started in the NAVY, all sick call would say is that it is back strain and said with rest it should feel better, well it didn't get better because my right foot and leg started going numb on me. I was losing my balance and falling. They discharged me on false pretenses. I had no choice but to go to a private doctor, but you know I was young then and didn't know anything about anything but the Navy, I mean no medical understanding. I kept on getting worse until I could not stand from a sitting position without falling to the floor. I went to the ER where they admitted me and put me in traction only to make matters worse, he called in a Neurosurgeon to come over and examine me, but I almost passed out during the exam. He said he wanted me to transfer over to the hospital he worked at, so the next morning that is where I went. He scheduled me for a Myleogram that afternoon. He came in afterwards and talked to me and said I had a badly herniated disc and he had me scheduled for surgery the next morning. It took about 6 weeks for me to stay in the hospital, I went home and was not getting any better, so he admitted me again did another Myleogram and surgery again.

    You know there is so much more to tell. I do want to say that getting Arachnoiditis doesn't just happen, they, the doctors give it to you, through the injection of acids into your spinal column, and then messing up through surgery. YOU DON'T JUST GET IT LIKE ANY OTHER DISEASE OR CONDITION.

    I am going to go ahead and start what I always wanted to do, because I have a wondrous story to tell. But if you have Arachnoiditis and it hasn't been over three or four hours, you still have time to bring a mal-practice against whoever it is that gave it to you. Three years if you knew from the beginning and four years if they hid it from you. I am going to start the web-site and I would like to know if any of you would be willing to give me your stories. you can email me with your stgory at my email address I use for here. I have a disability claim with the Department of Veterans Affairs, they won't even claim its existence and I am not getting good treatment. The pain is so overwhelming I can't stand it. They are covering its existence. I hope that you will give me your stories, it is the only way that we are even going to get close to forcing the doctors to pay more attention to what they are doing and to own up to the horrible mistakes they make. They have literally taken our lives away from us and they have got to own up to what they have done to each and every one of us. Don't let them convince you of anything else on how you got Arachnoiditis.

    Just in case, my email is katinmemphis@yahoo.com.
  • In all fairness Navy boot camp sick call in 1963 is not a place that one would expect to be up to date on the intricacies of spine issues. They are set up to deal with common illnesses and injuries.

    When were you discharged? You say it was under false pretenses, but back before the mid 70's it was "by the book" to discharge a woman that became pregnant on active duty.
    Harmony1206 said:
    I do want to say that getting Arachnoiditis doesn't just happen, they, the doctors give it to you, through the injection of acids into your spinal column, and then messing up through surgery.
    I doubt doctors intentionally give injections that go a wry or intentionally mess up during surgery. It is all part of the risk we taking in our quest to squash pain and get back some normalcy in life. Trying to rally others to bring mal-practice suits against their physicians is another way to drive insurance rates through the roof!

    Please note that No e-mail solicitation or advertising of other companies, products, services, or web sites is permitted in the Spine-Health.com forums.

    Kindest Regards,

    "C"
  • I just thought I'd mention that I had a routine eye test today - it's been 2 years since my last one.

    Anyway, thankfully there was no change in my prescription, but I did mention, fleetingly, that I had experienced blurred vision recently. I suppose it has been for the last 3 months or so and it's only sporadic, so I wasn't overly concerned.

    The optician put some dye in my eyes and checked my eyes more thoroughly.

    She told me she is making a referral to my GP as he'll want to refer me to an Opthalmologist at the local hospital. This surprised me.

    She said that I have an 'abnormality' right in the centre of both corneas - but it's a little worse on the left side. She said it was slight 'clouding', and it wasn't a catarract or Glaucoma.

    Then she asked me about any current or previous medications. I told her I'd had a steroid injection just on 10 May, but before that, I had had several over a 3 year period - probably finishing about 3 years ago. I think I had about 9 injections over 3 years.

    Anyway, she can't be sure, but she mentioned that these injections can leave 'deposits' anywhere in the body and that this might be the cause of this 'abnormality'.

    Just thought I'd mention that, if it was the previous steroid injections that was responsible for whatever is going on with my eyes, then this was never mentioned as a possible side effect at the time I had them.

    Also, I find it strange that something that is put into my spine can have an affect on my eyes, but I won't know for sure what's going on until I've seen the specialist at the hospital - and it can take many months before I get an appointment (that's the NHS for you in the UK)!!

    Is this something that's connected to 'AA'?
    SUE
    2 x Microdiscectomy 2005 / PLIFusion 2-level 2010 / revision surgery 2011 / NEVRO Senza spinal cord stimulator implanted February 2013. I WILL NOT GIVE IN / UP !!
  • I absolutely agree with the 2nd and 3rd opinions. I'm offered injections as my surgeon wants to delay surgery a little while longer even though there is nerve compression, I'm allergic to anti inflammatories, I'm scared stiff, I have read everything on the net, talked people to death, gone into the NHS, gone private. Every treatment has negative side effects but you must think of the positives too. I always make lists pros and cons, what can go wrong but what can go right. I then ask myself can I continue to work and have a decent quality of life like this, of not then I will try very trick in the book till I can continue to work and and have a decent quality of life. Of the treatment goes wrong then I will have fully prepared myself. Will I have injections who knows I'm still making that list ;)

    I'm sorry you haven't got the result you hope for and I wish you all the best x
advertisement
Sign In or Register to comment.