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Can't take anymore...

pigfarmerppigfarmer Posts: 32
edited 06/11/2012 - 9:03 AM in Sacroiliac (SI) Joint Problems
Hi out there in spine world. I was just wondering if anybody out there has ever had there si joint fuse together without the aid of surgery. I just had an EMG and a CT scan done by a well known surgeon who has been dealing with the SI joint for over 20 years. Oh I also had a bone scan done. He started out by showing me my bone scan with my SI joints lit up nice and bright, which tells him something is going on there. But then he goes to the CT scan and shows me that my SI joints, on both sides, have already fused together so there is nothing surgically he can do for me. He is referring me to a rheumatologist to see if he can help with the pain as he thinks it's some kind of arthritis. And then he basically said have a nice life and walked out of the room. And I was like wait a minute, I can't even sit for more than 5 minute's without excrutating pain and you're saying there's nothing you can do for me because I'm already fused, then check something else out if that's not my problem because something is wrong. He didn't care and said I could talk to the rheumatologist. I'm just really sick of life right now and don't know how much more I can take!! When I take enough morphine to get rid of the pain, I can't stay awake, and my wife and kids like to see me. Has anybody out there ever tried dilaudid in the pill form, and does it work better than morphine? Sorry I just had to vent my frustration to somebody who know's what I'm going through. I'm also dealing with what's going to be my fifth surgery on my ankle, due to falling off my roof. That's going to be in July, and I am getting an epidural shot into my SI joint's on monday by my pain management doc, who is very good to me, and to talk about a morphine pump in my back to try to help with the pain. Sorry again for being so long, but I just don't know how much more I can take. I just want to go to sleep and not wake up until I have no pain, and if that can't happen.....
11 back surgeries, fused from L3/S1. Now have four herniated disc in neck from C3/C7. And two new herniated disc in lumbar at L1-2, L2-3. Passed 73 kidney stones, five surgeries on left ankle that now has seven screws in it and is fused. Both shoulders


  • Have you tried using a Tens Machine? I get more relief from it than any of the oral meds i've tried. I have trauma around si joint and hip Bursitis and get injections in these areas. I find my Tens machine really takes the edge of the pain. It's awful to be in such pain and feeling like a zombie because of meds is an awful feeling too. You should try the Tens, it really makes life a bit more tolerable for me !! :))

  • charryccharry Posts: 5,657
    edited 07/15/2012 - 7:00 PM
    I don't get tired as much as before while taking MS Contin or Oxycontin. Do you take instant relief morphine as that may make you more sleepier than the slow release medication. I hope your SI join injections help and there's a good post here under the pain pump forum by Pat White about her pain pump positive experience. Never give up as there may be something else that works for you. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • KarenDKKarenD Posts: 742
    edited 07/17/2012 - 6:14 AM
    You said your SI joint fused. Did your doctor see if there was any fusing going on elsewhere? If so, you could have ankylosing spondylitis, which is a type of arthritis. There are many types of arthritis and different medications that a rheumatologist uses. I am on an injectable - Humira (it's not as scary as it sounds). It has helped my pain. Maybe you could go to arthritis.org to get information on arthritis. It is appropriate for the surgeon to refer you to another specialist if he can't do something surgically, but he could have been nicer. I hope you don't have to wait long for your referral to go through!

    4 level ACDF C4-C7 5-2-11, laminectomy & discectomy L4-L5 1/26/12, ALIF L4-5, L5-S1 12/10/12.
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