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So discouraged, another MRI tomorrow. What does that help?

sparkledctssparkledct Posts: 120
edited 06/11/2012 - 9:03 AM in Chronic Pain
I was diagnosed with DDD when I was 30 (I am now 39 and HOLDING :) It was first found in my back them my neck. Had an ACDF in April of 2010. MY back is worse and always has been worse than my neck but they keep tellin me surgery wont help. I have 5 levels (bottom 5) at various stages, the bottom has nothing in between anymore. The surgeon that did my neck took a look at my MRI a year and a half ago and said it was less than 50% chance that surgery would work because I have "too may bad" areas. We did an MRI last August and I was told the same thing. Now I have noticed a severe change in the way my body is holding. Many days I have a severe lean to the right (right has always been my worse side) the pain in my legs, hip and bottom make my daily life such a challenge. Even simple tasks like cooking are hard and my house is falling apart. I have another MRI tomorrow and I just do not know what to do if I am given the same answer AGAIN. I asked last year to get a second opinion referal for the Cleveland Clinic but my doctor refused. They have me on Percs and flexeril and I worry about the toll on my health. THey put me on the pain patch last year for about 4 months but I could not stop throwing up. THey just seem to want to medicate me. I just want FIXED. I know this is not always an option but I am tired. I know when I was preparing for my neck surgery this board saved my life, hoping for someone with some words of wisdom. I need help, feel lost right now and sick of leaving the specialists office crying every 4 months. Any help is apprecaited!!



  • Hi Melissa :wave:

    I am so sorry this is happening to you :hug:

    I need to go do something right now and can't post a longer response, but I want you to know I did read your post & I will be back later this evening to post a real response ;)
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • Ok I am back again. I did not want you to come online and not see a response so I posted that quick note to you before I got off line.

    I know how you feel - kind of. My spine injury is much like yours nothing left in my S's and in my L's and recently after a fall my Dr thinks I injured a disk in my T area.

    My life has totally 100% changed since my injury.

    My home use to be so clean it was like a operating room ;) Now I hope no one just stops by without notice.

    Cooking, cleaning, making a bed, doing laundry and so forth is hard and most of the time impossible.

    Like you I am on pain meds. The Drs tell me I am too "messed up" for surgery.

    I am now faced with finding a new normal! I either have to find a way to live or give up. I have days when giving up sounds like a good idea, but I know I can't/won't.

    I don't share any of this with you to say "poor me". I want you to understand your not alone.

    What was your Drs reason for not letting you get a referal?

    If he is not going to allow you to seek out help then what is the purpose of a new MRI?

    Please let me know how the MRI goes.

    I will be keeping you in my thoughts :hug:
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • But sad for others to be going through it. I have 3 kids, single mom and a job working 10 hours a day at a desk. I am not ME anymore. I snap at people and some days feel like I don't have it in me to fight anymore. but I have to, for my kids. My house is a disaster and feeding them is hard enough without having the energy to clean it up. I just do not know how to keep it up anymore, I know I am depressed..after 9 years who wouldn't be. I know they can't just "fix me" but I need hope and they don't give me that either. Worry what the meds are doing to me. My main dr I see every 4 months is an ortho. He has a surgeon from his office look at my films and that is my "second opinion" he says I think I will get better care going somewhere else but I won't. I just think if I had someone outside of their practice tell me the same thing, maybe it would help it sink in. I just feel likebsomeone could fix me.. I don't know. But I am betting you understand everything I say, having been there yourself. Dr is giving me MRI in case something "changed" then he would send me to surgeon again for opinion. Just so costly with no result. I always leave there crying, just feeling so beaten and without hope. Dreading tomorrow. Thank you so much for writing. It means the world to me.
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