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Just a thought to ponder

MrGrouchMMrGrouch Posts: 108
edited 06/27/2012 - 5:52 PM in Depression and Coping
I have been dealing with this for a little over 3 years and in that time I have learned the only ones that understand are on this site and it has kept me sane many times.

What's the thought? It would seem we are talking to walls when we try to explain or get help. It seems that just keeping your mouth shut is the less stressfull route and let actions speak for themselvles.


  • Mine is different, I got more, and more disturb whenever I have this issue on myself and just taking it alone. I prefer to talk about it on my mother or best friend than go crazy.
  • dilaurodilauro ConnecticutPosts: 9,842
    I really believe that a lot has to do with the personal experiences people have. When you have walked the walk and talked the talk, you have better insight into situations.

    That does not preclude others from having compassion towards those dealing with Spinal problems chronic or not. I have been very fortunate to have the understanding about my situation from the ones I love. My wife has supported me from day one. That includes not only dealing with my ups/downs, but picking up the slack in physical things that need to be done to maintain a house. My two young adults have helped since they were in their early teens.

    But I do know and have personally seen how some people suffer from a lack of any true compassion and understanding.
    Many times that hurts more than the physical pain we endure. That is just one of the reasons many folks come to Spine-Health not only for information but as a Support group. Here, you will find people that always will listen, that they understand and try to help where they can.

    To me, besides all the medical information this site has to offer , the support for one another is the most important aspect.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • MrGrouchMMrGrouch Posts: 108
    edited 07/02/2012 - 4:31 PM
    I have given up even mentioning it to anyone. even my doc has the same attitude and and am looking for another but there are none that will even return my phone calls. my current doc gives me enough meds for 10 days max then delays it for another 3-4 forcing me in the hospital for 3 overnight stays so far ( heart attack and the pain supposedly messes up the EKG).
    In this area you have to be over 65 or have terminal cancer to be accepted into any treatment program.

    Worst is the people that never have had sever pain that automatically think you're an addict. I have severed my ties with them.
  • MrGrouchin, where are you located?
  • MrGrouchMMrGrouch Posts: 108
    edited 07/20/2012 - 2:20 AM
    Baltimore MD Washington DC area would be the best desription about 1.5 hours from each. I have struck out calling other places even going as far as the University of maryland Shock trama and med school in baltimore. All the commercial outfits will not accept me due to circumstances out of my control. Called multiple therapists and no luck. I even visted my fathers doctor 3 hours away in WV and got the same answer I get here " Due to the DEA snooping around I will not risk my license to treat you". Also many places will no longer accept new pain patients, my last place scheduled you out evry 30 days and if something went wrong you could not get back in before that date.

    And yes the lack of support is stressfull, that's why I have found it better not to discuss this with anyone other than people I know who are in similar situations.
    In one case I jabbed a phillpis head screwdriver in a freinds hip as hard as I could and said " that's how it feels 24/7" he never bugged me about again LOL.

    In anycase my GP doc who is handling my meds FINALLY read the ENTIRE MRI, ER,and multiple Hospital reports and told me what I had (Lumbar Disk Diesease, 2 herinated disks, and arthritus in the back) and has now prescribed tramadol and advil during the day and hydrocodone as needed for breakthrough pain. So far it works although he only presribes 2 weeks worth of hydrocodone.
  • GPs are good for just what their title is... General practice. Malpractice insurance is changing rapidly and many do not allow GPs to handle narcotics, and if they do it's very limited.

    I am about 4 hrs from the DC area. Here I have an Internal Medicine doc as my GP, a neurosurgeon to evaluate the MRIs and such (no surgery for me though), a psychologist to prove to them the pain isn't "all in my head," and a pain management clinic that schedules appts 60 days apart, but giving 60 days of meds with 2 Rx slips. I had one pain doc that was awful, but since have switched to the nurse practitioner who has saved my life! All my pain meds are through the pain management clinic, and if something happens and I need to see her before the 60 days I can get in to see someone--it just may not be the doc I want. All my other meds are through my GP.

    Prior to having all my "docs in a row" (hee hee! I made a funny!) I had to go through 2 GPs, 3 orthopedists, 1 other neurosurgeon, a neurologist, 2 pain docs who did injections, an 1 other pain management clinic that said my pain medicine wasn't showing in my urine and refused to prescribe it to me anymore (I think they thought I was selling it!! Aaack!!). I've been to the ER many times, and admitted at least twice. One time I went to the ER and they told me I was a drug seeker and had me escorted out by the police and I didnt even ask them for a pain medicine prescription, I just told them that morphine doesn't work on me---because it doesn't!! All this just in the last 2 years I have lived here...

    I guess what I'm trying to say is maybe you need more specialists to back you up. It may sound silly, but with all the dope addicts giving us honest people a bad name, this is what we have to do.

    What are the circumstances beyond your control for the commercial outfits to not see you?
  • MrGrouchMMrGrouch Posts: 108
    edited 07/20/2012 - 4:50 PM
    Your experience is vitrually identical to mine with the exception of finding a decent place. I have done all of that and I have all my docs in a row but no one cares. 5 specilists,10 epidermals, 6 nurotomys, PT , "pill mills" and so on and on and on. The circumstance out of my control??? The PM place I was going to messed up very bad and I had to go to the ER in full emergency. they gave me daluidid and told me to follow up with PM the next day. I did, the nurse practioner stepped out and 10 min later police and ambulance burst through the door. They said I was sucidial and I spent 5 days in the wacky ward ( I even have it in writting from the head doc that it was a false report) So even if I can get another PM place to look at my records they will not accept it because of that(risky case). Also after 3 phone calls and 2 vists to that PM place they have "lost" my records but will not put that in writting. So my GP is my last resort at this time. trying to get into Hopkins in Baltimore but that will take months.

    The frustration of all of this is what really gets to you and it's nice to know there are others that have been yanked around all over the place like I have. Also yes the a-holes that are abusing them are messing it up for the rest of us
  • lmlm Posts: 3
    edited 07/22/2012 - 7:19 PM
    Post Edited by The Spine-Health Moderator Team
  • That sounds awful! I had a neurosurgeon accuse me of having my pain being "all in my head." he actually put it in writing in my chart!! I consulted some legal help who advised me to get a psychologist (not just a counselor or LCSW, etc.) and have therapy visits to prove it wasn't all in my head. It wasn't til after that, I got a referral from the psych to a different PM clinic.

    Maybe this would help you? Maybe if you ask for a psychologist that specializes in helping with pain management so they see you aren't just looking for drugs, and then he/she can also verify you aren't suicidal. Then after a few visits he can give you a referral to a better PM clinic.

    I pray you feel better and I pray this helps you!
    (((Hugs to you!!)))
  • Are non exsistant around here. I called over 30 from a recommendation to a link someone gave me on this site. only one treated pain and did so through cognitive behavioral therapy which I already practice. In addtion been out of work for three years now and just had a 2 short term contract jobs so Money is a big factor right now.
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