Hi, this is my first time on this site and need your help and some answers. I am 32 yrs old and have had 4 spinal fusions
With the last one this past sept. 27th. The first one was when I was 13 due to severe Scolosis. I had to have repeated spinal fusions at 15 and 17 due to the fusions never taking and the last one they actually used cadaver bone cause my body kept rejecting my bone for some unknown reason. The past 17 yrs I just lived w/ the pain and told myself this is how my life is and it is not going to slow my down and I did. I refused to take narcotics and did natural pain relief, including stetoidids injections several times, physical therapy, even acupuncture. I did do it and even gave birth to 3 kids, ages 8, 3 and 16 months. Well my third child was a big surprise and that is when my back went downhill fast. The last 3 months I had to be bedridden cause my back could not hold out. My son was born 6 wks premature and I thought ok my back will feel better. Wrong, it continued to get much much worse until July of last yr I was using a walker and had to break down and use narcotics and not Vicodin we are talking 20 mg of OxyContin and that was just to function I had 3 kids to take care of my husband was working and I am a stay-at-home mom, plus the baby is special needs child so he needs constant care. Anyway after searching and searching for a neurosurgeon that would even look at my because of my previous surgies I found on Dr. EDITED at Henery ford hospital in MI. He said I needed surgery now my metal was loose and I needed emergency surgery. I went in Sept 27 for a 8 hour operation. He came out and told my husband I was a ticking time bomb that my back never fused in 17 yrs and the metal had become loose and wrapped around my spinal cord compressing all the nerves and he had no idea how I had done or for 17 years with no pain medication and had 3 kids. Anyway sorry I am rambling, I started my recovery and at first I had instant relief, got off the OxyContin and just took 4 vicodins a day w/ cymbalta and a muscle relaxer. I thought was on my way when my husband got a job in North Dakota in jan. and I was left to basically be a single mom. My surgeion told me he thinks the pain and numbness is worse cause I was doing too much to soon but he knew I had no choice and he is thinking my body is rejecting the metal implants and scar tissue is wrapping around my spinal cord but my back seems to be fusing this time but that means a another future surgery and I don't have the energy nor do I think emotionally I could handle another one knowing it may not fix anything or make the pain worse. So 2 weeks ago I moved to ND from MI to be w/ my husband and I have no idea what I am going to do. The pain is 10 x worse cause i really have no help lifting the kids and we had to get an apartment on the second floor (no choice) so I have to carry everything up the stairs several times a day. I am still taking the Vicodin 7.5 2 tablets 4 x a day and it is doing nothing for the pain. The leg pain and numbness is back worse than ever. I need to do something and have been looking online for options and came across pain pumps. I would like to know if they work is it worth it ( I read how involved it is to put one in) or should I have another surgery to see if it relieves any of the pain but I know I can not live like this my kids deserve better and so do I cause at this rate I can see myself wheelchair bound or bedridden and I am way to young for that. The reason the pain pump sounds like a good option is I can get off these oral pain meds and it sounds like u use way less medication and u do not have the side effects like u do w/ oral narcotics. I hate the feeling of not being clear headed especially trying to take care of all the kids. Sorry to sound desperate I just don't know what to do but I know living like this is not an option. Just a side note I have done the trial w/ the SCS and it did nothing for me due to so much nerve damage plus I could not stand that constant feeling. Any advice will be welcomed thank u so much.
Post edited to remove name of medical professional. by The Spine-Health Moderator Team