Im Looking for suggestions or answers... Im in so so much constant pain!
I am 49 (female). Have severe Lumbar spinal stenosis. Had all kinds of testing done: Xrays, MRI, Nuclear Bone Scans, pain management, physical therapy and acupuncture. I’m at my wits end with pain, with so much pain, I only sleep 3 hours a day at best!
I had been to hospitals many times, referrals to numerous physicians, specialists for the past few years. One referral to another . For the past few years I had gone for pain management, epidural injections every two months which I thought would help but soon found out, it did the opposite. Not only the cost every two months, $4,000.00 for pain management injections, I got sick from meds and gained more and more weight over two years time with the steroid injections.
I had gone to Europe on vacation and was told by my family and friends to opt for another opinion. WOW It opened my eyes. After testing was done, saw a chief neurosurgeon in Austria. He took one look and told me to STOP all the medications that made me ill. My spinal channel was clogged and narrowed. No circulations to my legs and severe spinal stenosis and much more. He explained to me that the Epidural injections deposited fatty substance in my spinal channel and it would have eventually paralyzed me if I would have continued. He told me to see a neurosurgeon here in the US that would do surgery to unclog my spine and widen my spinal channel which would allow blood flow to my legs. He told me to stop all meds and LOOSE WEIGHT. That day, I joined weight watchers, swallowed the pain for months. Lost 45 pounds! As the doctor told me, the day you wake up and no longer can walk, call me! I did August 2011 and had Lumbar Spinal Fusion R L3 and RL4 fused with a titanium implant. Come to find out, I also had been running around with broken vertebrae’s.
Well the recovery is slow, had to be back to work in 6 weeks and having to walk up the stairs otherwise I was not allowed to come back to work I was told!
It is almost a year later, still with severe pain, my posture is better but the pain has worsened and never did leave me. A constant dull pain which never leaves whether I lay down, sit or walk. I cannot walk much, always with a cane and after a few feet, will have to sit down again. When shopping have to use a Motorized cart mobile. My life at 49 is not what I thought it would be.
The worst of all is that I went back to the surgeon due to the pains, I shiver and am cold a lot, at times cannot even walk, asked to see the doctor for my symptoms, an explanation . I get sent to other doctors and get ignored by my current that did the surgery. He had me tested for possible infection, blood work, nuclear bone scan done at the hospital, MRI’s and Xrays and this is two months later and I cannot even get an appointment to go over the test results! I must have just thrown over $10,000 out the door, with no medical explanation to my constant pain…. Severe muscle and joint pain, always exhausted, tired , fatigued after my lumbar fusion, sleep only 3 hours. I feel my legs with pain at night, like restless leg syndrome, the legs could walk by themselves, that how much pain I have! Everything hurts all the time!!!!
Is my body rejecting my spinal implant?
My skin is sensitve to pressure and I can never get comfortable. My fatigue , muscle aches and joint pain are constant and severe. I am unable to take this anymore. I was given by a physiotherapist a mediciane called “ nurotin” and it finally helps me sleep for a few hours for the nerve and leg pains. However when I get up and move again, the pains are constant with moving. Can my body be having an inflammatory response to the implants?? My body is being attacked by something I cannot explain.
I made an appointment to see my primary care physician for the earliest appt available in AUGUST and hopefully I get answers to my blood work which shows that: C- reactive protein quant is high 8.5 ????? When you google it, possible infection in the body that caused the C-Reative protein to rise. I hope I get some answers soon before I decide to admit myself into the hospital again if the pain doesn’t lessen. What to do? If I go to the hospital they release me to see my doctor who doesnt have an available appointment to see me?
Thank you, CST