Hello everyone. My name is Amber, I'm a 36yr old mother of one.
This is a summary of how I got to where I am now and hopefully get some feedback from others who have been where I am.
In 1993 I was in a car accident and suffered many injuries including a compression fracture of my L-4 vertebrae. Thanks to the "fast tracking" at the ER I was unaware of it until 7 months later. I ended up having a laminectomy of the L-4,5,S-1 discs. The surgery did what it was supposed to for about 2 years then the L-4&5 discs re-ruptured. I decided to tough it out and I did, through working a physically grueling job, having a child in 1999.
Then in 2008 I could no longer take the pain and could tell I had gotten worse. I was referred to an Orthopedic Surgeon who informed me that I had Degenerative Disc Disease and from my last MRI films compared to new ones had degenerated approximately 75% and would need a fusion.
In March of 2009 I had the fusion. By May something felt very wrong. In August I awoke with severe pressure on my lower back and could barely move. I had been sitting in an armchair and went to stand then felt something very wet on my shirt and shorts. I reached behind and lifted the edge of my shirt and immediately my hand was soaked. I rushed to the bathroom and yelled for my son who came into the room and freaked out. My back had opened up and liquid was literally squirting out like a fountain. I was taken to the hospital and sent back home with a band-aid and a kiss. Later that evening I began to run a fever of 103° and was taken back to the hospital and admitted. I underwent debridement surgery for a infection (to this day still don't know what kind) and was on a wound vac for 2 months afterwards.
Everything went well until September of 2010 which another infection ruptured. They performed another surgery, told me I had MRSA and sent me home. Yet again, everything went well until August of 2011 and had the worse of the three infections to date. This time having a lump raise 3inches off my back, I was quickly admitted to the hospital and underwent my 3rd surgery for infection removal. The difference this time, the Ortho who performed the fusion and other debridement surgeries had moved so my GP took over. They called in Infectious Disease, Neurosurgery and Wound Care alongside them. I was put into quarantine because of the MRSA. After the surgery I felt like someone in the TV show "House"! I was informed that I did NOT have MRSA it was another type (I cannot remember the name) but I would have to go home with not only ANOTHER wound vac but a PICC line as well for the antibiotics.
Here's where it gets fun. I have found out in the past month that it's Osteomeylitis that I have and that my screws are severely loosened to the point they have bore impressive holes in my vertebrae. I was also told that I have to have Reconstructive Spine surgery, which will consist of at least 3 surgeries over the next at least 3 years.
My questions are:
Has anyone out there had to have the Reconstructive surgeries and if so what do I have to look forward to?
Has any of you had to deal with Osteomeylitis in their spine and the surgeries to get rid of it?
I'm just really REALLY scared, tired, angry, did I say scared??
I know this is a huge post, I am so sorry about that. Thank you all for reading it and please any and all advice is welcomed!!!