What do you do when you know more about your condition then the so-called experts?? How do you get them to listen to you??
I have been suffering from severe coccydynia for about 20 months now. Bear with me, this isnt actually about coccydynia
My pain doctor originally said he thought it was muscle and ligaments, but I don't buy that for a second (he has since changed his mind as well) Non of the conservative pain treatments have helped worth a damn. Based on my symptoms, my research, etc I am pretty sure that I have either hyper mobility or luxation in the joint
The only way to really diagnose this is with dynamic sit/stand xrays. So, I asked my pcp to write me a requisition. I went for the xray, had to beg the techs to do the sit/stand. They didn't really know what I was talking about and I was sure they didn't know what they were doing or subsequently how to read the results. Basically, they took standing images, sat me on a footstool - on a cushion - and took seated images immediately after. I said, "I'm not feeling the pain at the moment, shouldn't I feel it to properly assess?". They looked at me like I grew another head and told me it made no difference. The images came back normal.
I have since done more research, including reading some articles by the Paris doctor who actually developed this x-ray technique for coccyx diagnosis and coined the term "dynamic sit stand views"
Surprise, surprise. I was right. The Paris doctor specifically says, the xrays need to be taken as follows:
1) patient cannot sit down for at least 15 minutes prior to first image (standing view) to ensure that coccyx is in neutral, pain free position
2) patient then needs to be seated on a hard stool, with feet elevated so knees are bent at 90 degrees. Patient needs to straighten up and lean back to put pressure on the tailbone
3) patent needs to sit in that position for as long as it takes or the pain to begin, then images is taken
4) seated images without the presence of pain are USELESS and cannot be used as accurate diagnosis
Now, what do I do? I can ask my doctor to give me a new a requisition, but how I get the techs to listen to me to ensure they do the test under theproper conditions and in the right position??? I printed the article as well as 2 othersvthat describe the technique, but what would you do if a layman patient tried o tell you how to do your job?
Please give me some suggestions on how to approach this. I absolutely have to have these xrays done properly. My pain doc is telling me that I should now be considering coccygectomy surgery, but all the studies indicate it's success really depends on candidate selection. If do ave a dislocation, there s almost a 90% success rate. It's a long recovery - can take up to a year. I can't go through that only to comeout on the other endcwith the same pain because I wasn't a good candidate.
Sorry fr the lengthy post, but please help...thanks in advance!