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2 year anniversary

Hello everyone. My name is Tom. I've been reading posts for some time here and decided to tell my story. I have a 12 year history of lumbar pain. I have managed with PT sessions, epidurals, tens, numerous doctor visits and prescription drugs now and then. In July 2010 my wife and I were at our cabin. One morning I reached for the coffee pot and down I went. Back pain and leg pain like I never felt. Being that we were on our vacation, I just took it easy for the next few days. I went to my general practitioner after a week. By this time I had an excruciating amount of pain in my lower back and down my left leg. I was prescribed muscle relaxants and pain meds. After several weeks I could barely walk and the pain was unbarable. I saw a neurosurgen. Had epidurals, PT, mri and several myelograms. Tests revealed a far left herniation at L3/L4 with nerve root entrapment. Things were getting worse so I had surgery on October 7th, 2010 (open laminectomy and nerve entrapment). Resulted in failed back surgery with nerve damage affecting left leg. I now ambulate with a cane and see pain management on a regular basis. I have seen many differnt specialty doctors for options and suggestions. All conclude that further surgery would result in failure and possibly more damage to my already compromised nerve root. I have been on opioids and other drugs since 7/2010, (having the doses increease over time). I have had a spinal cord stimulator trial that was a failure in June 2011. I have not been able to return to work and was awarded SSDI in January 2012. Over the past year I have been having pain on my right side lower back as well as pain in my right leg. I had an epidural injection 3 weeks ago on the right side which has done very littlle. I see pain management October 2. As my two year surgery anniversary approches, I have to wonder what lies ahead. Thought it was time to introduce myself.
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Comments

  • MballardMMballard Posts: 101
    edited 09/27/2012 - 2:42 PM
    I'm new here, too! I've also been suffering since 2010, and I've been through all of the conservative treatments as well with little to no success, AND I walk with a cane. I am 11 weeks post op from a discectomy and fusion at L5-S1, so still too soon to tell if it was a success. Fingers crossed!

    I hope with all my heart that you can find some relief soon. Just wondering what kind of meds you are using - anything for the nerve pain, like Lyrica, gralise or neurontin?
    Michelle
    L5-S1 Fusion, Discectomy on 7/10/12
    Herniated Discs at L3-L4-L5-S1, Spondylosis, Spondylolethesis at L5, DDD, Partial CES, Lumbar Facet Arthropathy
    Chronic back pain since 12/2010 (slip and fall on ice)
  • tmwttmw Posts: 7
    edited 09/27/2012 - 2:58 PM
    Michelle, I'm currently on 75 mcg/Fentanyl patch, 10 mg oxycodone q4 hrs prn and 300mg Lyrica/day. I've been on so many different meds over the past years. At one point I was on 3600mg neurontin, a hefty dose.
  • I think my highest dose of neurontin was only 1800 mg. Of course, it didn't help anyway. You and I are essentially on the same meds, but your doses on all of them are literally double mine. Hopefully within the next few months I will be able to stop the meds completely and be pain free or pain reduced at least. Still holding out hope that this surgery is successful and I won't need any more surgeries. But I'm a realist - I know once you start with the spine surgeries, it's like dominos.
    Michelle
    L5-S1 Fusion, Discectomy on 7/10/12
    Herniated Discs at L3-L4-L5-S1, Spondylosis, Spondylolethesis at L5, DDD, Partial CES, Lumbar Facet Arthropathy
    Chronic back pain since 12/2010 (slip and fall on ice)
  • Michelle, I wish you the very best! Hope it continues to go well. I'm on here a lot, so if you you need to chat, just let me know.
  • I've been checking in several times a day, too, usually on my phone. It's nice to know that there is always someone else around who understands all of this. :)
    Michelle
    L5-S1 Fusion, Discectomy on 7/10/12
    Herniated Discs at L3-L4-L5-S1, Spondylosis, Spondylolethesis at L5, DDD, Partial CES, Lumbar Facet Arthropathy
    Chronic back pain since 12/2010 (slip and fall on ice)
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