I have to laugh otherwise I'll bang my head against the wall! I've started a couple of topics related to my SCS tests and implant and the revision surgery that moved the SCS battery from my back to my abdomen and added a connection box because the implanted leads were to short to reach the battery now. Unbelievably, the connection box moved across my back and ended up pressing on the base of my spine just like the batter did back in May or June. I had to deal with the pain for about 3 weeks while some staff were on vacation and for a surgery slot at the hospital. Two weeks ago today (9/18), my doc moved the connection box back to about my left kidney and on my waist (pain in the bum because it is right on line with wear my trousers and shrots waist band). Of course, he turned off the SCS while he was operating and left it off until I had my first follow-up appointment last week Monday (9/25). I tried to turn the SCS back on last week and the SCS displayed an error message of a corrupt file. Yesterday, (10/1) I had my second post-op follow up and a St. Jude's SCS rep was there and for well over an hour she tried to turn on my SCS but she could not get it to respond. Conversations with my doc and the St. Jude's rep at the corrective surgery on 9/18, determined that they did NOT disconnect any wires when they relocated the battery and they said they tested my SCS and confirmed it operated correctly and then turned in off for my recovery. At my follow-up yesterday, the doc took several X-rays with his equipment and he and the rep could not see anything obvious. I am on stand by to see the doc and the rep again on Thursday (10/4) after they have had a chance to study the x-rays and try to determine why my SCS does not work.
So, after the initial implant surgery in February, the relocation of the battery off my spine in June and the correction of the battery 2 weeks ago, my SCS does not work. To add insult to injury, the relocated connection box is just under my skin directly under 2 incisions the doc made when he corrected the battery position 2 weeks ago. With the edge of the connection box gouging me at the incision sites is very uncomfortable and it is painful to sit in a chair and very painful to drive myself to these medical appointments. Thankfully, I have a Temperpedic foam mattress so I am able to find a position in bed that enables me to sleep for 3 or 4 hours.
My doc says he has done hundreds of the SCS implants using all SCS versions from all the manufacturers and I am the first patient to ever have SCS equipment move one time and he is shocked that it moved again. I'm not out digging ditches or running marathons! The most strenous think I do is taking the stairs in the house! LOL
When I found out the SCS doesn't work I just shrugged my shoulders and I'm still not upset. It seems the only luck I have is bad luck and my former colleagues joke with me that bad luck is all I ever have too. Oh, well, such is life I suppose. Definitely am NOT buying lottery tickets any time soon.
Wishing everyone a pain free day, Semper fi, Jerome