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Seeing a spine surgeon in 8 days for DDD

It's been a while since I posted on this forum. My 2 month wait to see a spine specialist is almost over and I must admit it still feels like months away. Everything has been getting worse. The back pain unbareable. I constantly feel the buckling from my collapsed L5-S1, along with radiating nerve pain with almost every move I make in both legs, not to mention frequent bathroom trips, no errection for months ( that really worries me but no one will listen it seems, and it's not medication induced that I know I have been off it for 5 days after 4 months of oxycodone treatment with no DT's whatsoever). I decided to stop my pain medication because even while taking it the pain remains an 8 on a scale of 1 to 10. This is a good thing simply because I do have hand surgery coming up (find out tomorrow morning) and I need the pain meds to work. However my GP recommends I get the back fixed first, then the hand, (I wanted both done ASAP but maybe that's not such a good idea. I have spent the last 4 months studying everyday about the human spine, how it works and how it can be fixed and in what way, I am feeling prepared for my spine specialist appointment but not so much for my left hand. We will see what happens!!


  • I totally understand. I need the back surgery and probably another, this will be the fifth, foot surgery. I am doing the back first so the foot is going to be put off for quite a while. It totally sucks that we have to "choose" between 2 surgeries and which to do first. Blah.

    One thing I would recommend is to take a written list of questions with you to see the surgeon. If you don't, inevitably, you will forget to ask something. Also if you can take someone with you that way between the 2 of you, you will catch everything. Hang in there and good luck!

    Single level L5/S1 360 fusion with 6 screws and a rod (10/29/12)
    Diagnosis: Grade 1-2 spondylolithesis, Pars Defect, L5/S1 disc tear anterior and posterior, DDD, spinal stenosis
  • everything you have mentioned is happening, I'm not taking no chances with my spine. As for my hand, it's a thumb fusion I need because the two bones below it auto fused from a very old injury. Now the thumb joint is destroyed from that process. Papers signed for surgery already with a two month wait No biggy, minimal surgery 8 weeks in a cast. But the back I'm afraid will be much different It will push that two months to maybe 5 or 6 depends how I do.
    It does suck big time, I'm usually the go hard or go home type, Sitting for the last 6 months has been life sucking if you know what I mean. You hang in there as well.....it takes determination to get things done and tenacity to keep holding on. That is one lesson I have learned.
  • 6 months siting around seems short time for many as spine is so complicated it can cause a life time of complications,
    If it was me i would get the hand surgery out of the way as it should heal faster then recovery if you have a big spine surgery,
    Even after spine surgery some of us are never the same and end up with years or lifetime complications,
    I been much worse after my 1 st surgery and once surgery fails to resolve the problem as we was hoping more surgery is often needed,

    So thats just my take on it, I been messed up for 8 years now from my 1 st surgery, So you might want to consider that and posibly fix the hand now because you have no idea what results spine surgery will bring,

    Best of luck,
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Concern as well and still is but once I see the spine doc and get his take on it it should help determine the direction. And trust me I am very aware of the failure rate of spine surgery. But as this foraminal stenosis keeps getting worse I will loose my legs. If I am left with back pain, makes no difference because I have had it for 17 years ever since my first surgery in 1995.
  • Gabriel, what are your symptoms of foraminal stenosis? Also what is the proceedure. I have that as well.
  • As for symptoms I have severe back pain. I can feel muscles buckling, bone pain when i move. The back pain reaches down to the back of my lower thighs. Remember nkay I am not taking any pain meds so I feel everything along with occasional ripping and burning.
    I also have bi lateral leg pain numbness and constant pins and needles. Pain increases decreases when i move my lower spine. Sometimes I have breath taking and stabbing nerve pain in the back of my left or right leg. Sitting is 5 min before i have to shift or unload my spine. Legs are super weak and a max of 10 min before its unbareable. I can not walk more then a few steps before progressive weakness to a fall. I am pretty much bedridden but I refuse to give in. I still get up and move around as I can. My L5 nerve is so trapped there isn't any therapy that will untrap it so I am told by very proffessionals...it sucks! lol
  • I def have some of that, not as severe!! I hope you get relief from the surgeon! Keep us posted!!!
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