Hi guys! It's been a while - I haven't been on Spine Health for a couple of months as I've changed jobs and medication and have only recently felt like my head has come back to me (sort of) lol.
Anyway, I was wondering if any of you have heard of the newer "Nevro" scs system? Unfortunately, my back/leg pain issues have not gone away. In fact, with this new job, my pain levels have got far worse! My new job is mainly office-based and therefore I mostly sit for the whole day. My occupational health doctor has told me to get up more often and walk around, but it's not always possible when I'm with a client, or in training or attending meetings. Also, I don't like drawing attention to myself, so sometimes I'll sit there in more pain just to wait until the end, so I can get up when everybody else does. But that's just me - silly, I know.
I'm now on Fentanyl 75 mgs/hour, but to be honest, it doesn't really touch the pain. I'm still taking oral morphine solution - and that doesn't do much either. The only thing that does happen is that I feel like I'm in a fog sometimes mentally and the longer this pain goes on, the more low I'm feeling. I get extremely tired and find it very difficult to concentrate and it's starting to worry me alot during work hours. So far, I've managed to bluff my way out of it, but I'm sure it won't be too long before someone notices. I am expecting to get more used to the new medication and am now on holiday from work for about one and a half weeks, so maybe, by the time I return, I won't have these symptoms any more. I hope not.
In the meantime, I've been back to the surgeon and they've said I can either have the hardware removed (but they're not sure if it will help to relieve the pain) or have bilateral sacro-iliac joint injections (again, they're not sure if it'll help or not). I'll just see how things go on that score - I'm due to return in December, so I've got time to make decisions if I need to by then.
My pain management consultant has discussed with me about a spinal cord stimulator. I attended various appointments to discuss this, at great length, and my hubby and I decided that I wouldn't lose anything by going for it. The original scs device they recommended would have at least addressed the sciatic pain (though they said it wasn't really for back pain) and I thought, seeing as I'm getting pain from 3 separate issues, having one less to worry about can only be a good thing.
So, last week I went to yet another hospital (it's all part of the assessment process) and after chatting with this 'nueuro' man, he said he didn't think the normal scs would be that effective for me so he's not going to put me forward for it. However, he then went on to talk about the "Nevro" spinal cord stimulator device, which is newer technology, possibly more advanced (who knows?) - and obviously is much more expensive - and he said it actually helps to combat back AND leg pain at the same time. Plus, there is no vibration/tingling at all - you just cannot feel it working. He will obtain my last MRI scan from a different hospital, then write a report and take everything to a 'panel' meeting. Only then can they decide if I am even to be considered for this new device. It's through the NHS, so he has warned me that it takes a 'very long time' and that there would be a funding issue, which might mean they decline me as a candidate in the end anyway. Well, it's not as if I'm going anywhere and neither is my pain, so I've not lost anything by going through this process and being patient. I'm good at that.
By the way, I changed my job in September. I was working with children and found the bending and constant standing too much. So now I'm only working 3 days and it's mainly office-based. I said earlier that my pain levels have gone up because there's too much sitting now. You can't win 'em all. Last week, I received a standard letter of 90 days consultation for redundancy. I've only been there a month! How rude! However, to be honest, I knew it was a temporary post till March next year, but I was given the impression at the interview that funding was there for another 3 years. If my job does go, it'll be my own silly fault for taking such a risk in the first place. I didn't really have a choice as I couldn't have carried on in my previous job, even though it was a permanent post. I feel as if I've gone from the frying pan into the fire with this one - jobwise and painwise. I'll just have to wait and see what happens and am relying on my local doctor to look after me as best as he can. I've had the same doctor for 6 years now and he knows all my history. It's unusual in the NHS to see the same doctor continuously for so long, so I feel really blessed about that.
I thought I'd give you all an up-date on what's happening with me lately and also to ask if any of you have heard of the 'Nevro' device? Indeed, do any of you have this inserted and does it work for you? I cannot seem to find much information about it from a user's point of view, I can only find advertising for it. I might not be considered for this device in the end, and won't know either way for many months yet, I was just trying to find out some more information about it if possible.
I hope you are all having a good day (pain-wise) today!!
See ya xx
2 x Microdiscectomy 2005 / PLIFusion 2-level 2010 / revision surgery 2011 / NEVRO Senza spinal cord stimulator implanted February 2013. I WILL NOT GIVE IN / UP !!