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Chronic neck & back pain

In the past 6 months my life has went from being normal to complete chronic pain...i am 37 my last mri stated C5-C6 herniated disc, T1-T6 bulging disc, I have one disc I believe L5 mild fracture, very tiny sprinx, S1 thru something degenarated disc disease & disscreation I'm pretty sure theres more I've misplaced my MRI readings, this happens when you are consumed by chronic pain. I'm barely able to work, if anything the few hours I work a week I pay dearly for. My life has come to pain meds, laying in bed on a heating pad or on the couch, & even that is getting to where I am still in pain & always uncomfortable.....standing & seating makes it worse..somedays I can barely walk, my shoulders feel like they have tons of weight on them, my shoulders blades feel like they are caving in, my hips hurt so bad, at this point there's not much that doesnt hurt. Ive been to two neurosueons already 1st said you got alot going on but i dont think its causing your pain but i could do neck surgery but it wouldnt last long & out the door he sent me with more pain meds, 2nd surgeon barley looked at my mri said samething you have alot going on but I can't help you..you need to go to Duke Hospital so I go on the 30th 9 long days away....my life has changed so much & is only getting worse to me the drs just don't care that i can barely walk & when i do work im already in pain but after an hour its worse, by two its severe, by 3 unbearable & if i make it to 4 Im pretty much in the floor...housework it takes me a week to do which i never finish due to just can't stand or seat...no surgeon has really went over my mri & me being in complete pain im usually in shock & disbeilf by them saying they cant help me that im dumbfounded to ask questions & the ones i do remember to ask is just brushed off. If my memory is correct out of 29 disc i have maybe 10 good ones...idk what to think i know i can't continue to deal with the pain, med only takes the edge off...any help would be thankful....im sure ive left things out pain does that all i know is my normal life stopped in a snap of a finger


  • Were you in an accident that caused your spine issues? Have you tried physical therapy, injections, acupuncture, etc? You can't give up if the pain has consumed you to this degree. There are ways to help the pain. I think you should go and visit another spine specialist. I went to see 3 neurosurgeons and they all recommended surgery, so I had my surgery. Although I am better, I still have pain everyday. A good pain management doctor could also benefit you.
    2011 ACDF C5-6 for Spondylosis with Myleopathy
    2012 L4-5 herniated disc and hernated disc at C4/5 2013 Taking Amitriptyline for headaches
  • Over the past 22 years I've been in 2 car wreaks, I fell on ice when i was 17 (you know drs they just give you meds and send you home) 1999 I was robbed workers comp of course was told the man had pulled and torn every muscle in my back was out of work for months of course we heard the 2nd dr state damage to my lower back but refused to tell us that again workers comp I lost everything....Im at the point of going and getting all my records from these accidents...PT said they wouldnt touch me till they new what was wrong, i have refused epuridual shots due to the bad ones that were out there during that time line..still unsure about them...ive had steriod shots which at this point Im not taking anymore due to i was given to much and meds that messed my Bp pressure up as well as my heart rate being to high....the 1st surgeon said he coould so surgery but it would only help for a short time the 2nd nothing really which really upset me after sitting in his office for 3 hours in complete pain & he was suppose to be the best in the city..hoping Duke helps me...
  • Ive been on so different meds in the past serveral months..at this point im on oxycodine which seems to help the pain in my lower back so its not unbearable...but it no longer helps my neck, shoulder, or shoulder blades...
  • Good luck tomorrow and let us know what the doctor says. Hang in there!
    2011 ACDF C5-6 for Spondylosis with Myleopathy
    2012 L4-5 herniated disc and hernated disc at C4/5 2013 Taking Amitriptyline for headaches
  • surgery isnt gonna help at this time is what ive been told, they will continue to keep an eye on the syrinx its not tiny like the other drs said its pretty much all the wy down my spine but they arent doing a shunt at this time..they want to get the Fibro under control if that even exist...but at least he explained my mri to me and showed me where the problems are....im at a lost about the fibro i cant work or shall i say i have barely worked in months i have no idea how i can continue with this pain....i have a high tolerance for pain but i have never ever felt pain like this..and thank you so much for replying i dont know how they expect us to deal with this
  • If I may, I had a fracture w/ a slip of the lumbar, and once I had my 2 level spinal fusion, I no longer sufferred from chronic knots and spasm same side upper back and shoulder. I definately agree w/ PT until they have a very recent mri and dx, as they don't know what they are up against. You never really know. I never thought I would have spondylolisthesis, but I did, w/ fracture. Trust your body, and care for yourself, it may take one doctor a while and another, a minute to "see" you pain generater. How are you eating and sleeping, I hope your meds at least let you do that much.
    can't shorten what I've been through in 255
  • Have barely had pain meds in the past couple weeks, percosets helped take the edge off but thats about it, which anything is better then nothing..sleep i dont get much of havent in years, even with the fact that Im in bed or on the couch for the most part i dont sleep much at all...ive tried to excerise but my legs dont wanna coperate & esp if i try squating its a struggle to get back up after dropping something which is often....my hips feel like they are coming out of my joints..when i 1st get up im stif nd sore but i can move yet the more im up i start walking as if im crippled...it's amazing how fast this hits and how much it changes your life...i know the weight gain isnt helping but its not like i can walk it off didnt help having steriod shots & the pain meds make me eat...its crazy how you can go from a 5 to a 12plus in a year...i can say drs tend to not say much about my weight gain cause I told them if you cant figure out whats wrong with me then dont put me down for gaining weight..mood swings i guess and that topic for me is a real trigger to flip out...i guess its long road ahead & something I will overcome the best i can..thats all we can really do is our best...I would love to have my life back my poor grandson misses his happy nana playing with him but seems like that is far fetched right now...i have noticed the past few days ive barley ate which is shocking but im back having the vertigo and nausea again so im guessing thats why that and the mirgranes food isnt really on my list just keeping the lights out and covers over my head...better days will come eventually...how is your pain and progress coming
  • lstellerllsteller Posts: 1,428
    edited 12/03/2012 - 8:30 PM
    that I couldn't have surgery because I had too many levels that needed to be fused. My doctor would have done two levels, but not three. I burst into tears in the office and then sat in the car in the parking lot and cried for an hour. I had been scheduled to have surgery two weeks later, but they cancelled it. I could barely walk. Needed a cane or holding onto the wall in the hallway at work. Sometimes the pain spasms would get so bad I'd freeze up and have to reach down and grab the leg of my jeans to get my leg moving forward again. I really felt as though I could not go on like that, so I found someone who would help me. I had to go to the research hospital two hours from me -- believe me, driving back and forth to those appointments was NOT fun -- but I found a wonderful surgeon and he did my three level fusion. I won't kid you, it was sheer hell. Nine hour surgery the first day that was supposed to be PLIF turned into to large incisions, one on each side of my spine. They couldn't get my discs out because of the scar tissue, so they just put the hardware in. Four days and several units of blood later, they took me back to surgery and went in through my abdomen. Got the discs out and put in the allograft, BMP, and my own bone marrow. I'm all fused now. I'm stiff, I still get painful at times, but I can walk. I can take the dog to the park and throw the ball. I can even crawl under the house and replace the sump pump! Not recommended, by the way, but I did it.

    I would think that if anyone could help you, it would be the docs at Duke, but then again, you never know. Although I had a brutal surgery and recovery, I'm so glad I did it. I couldn't have lived long like I was.
    3 level spinal fusion, L3/4, L4/5, L5/S1, November 2008. Stiff, but I can walk.
  • I took care of a patient who was sent from hospital to nursing home for rehab. She came in and while I was doing assessment she showed me and I was horrified to see staples from top of spine all the way down to S1 and she needed constant care. Could not bathe or even go to bathroom without assistance from several people. She wa in hospital for 10 days and in rehab for one month. She came back to visit after 3 months and was doing great. I didn't even know they could do that and didn't think she would be doing that well afterwards.

  • They seem more concerned that the Fibro is causing most of my pain....he did say the issues with my back was causing pain but not all the pain. Im being sent to a pain clinic but that will be 3 to 4 weeks my maine problem is this point is living with the pain nuerosugeons were giving me pain meds..my pd refuses to give me the med that is helping some...i called his office yesterday i was told no he wasnt gonna write it 3 weeks of this i was also told to just go to the er...i was in shock ive had this dr for several years & he has seen me continue to go down hill over the months yet is acting unprofessional to me....but then again hes not the one his this pain he can get up and walk without looking crippled, he can do everyday life guess he just doesnt understand so at this point im looking for a new pd if he doesnt care about my pain then he doesnt deserve to be my dr anymore
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