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3 Years+ Back Pain?

gr33zyincggr33zyinc Posts: 37
edited 01/15/2016 - 10:10 PM in Upper Back Pain, Thoracic

I have been dealing with this issue for about 3 years now. I'm 18 now. I started getting headaches that would last random amounts of time (from as short as 45 minutes to as long as 5 days). They also ranged in severity from mild (like seasonal allergy headache) to so severe I couldn't stand / felt sick. Along with this I had a stiff neck and upper back/trap area pain. I had this for about a 14 months and then it just sort of disappeared for approx. 3 months.

After the time of no pain, I started to get these same symptoms again for another couple months. Then Had maybe a month and a half of no pain. Then it came back but slightly different. I began to get upper back pain, pain along scapula and spine of scapula, shoulder pain (AC joint?), forward shoulders, lordosis, lower back pain, tight rhomboids(?not sure), tight neck, tenderness/pain if I touched the middle of my back (spine in Thoracic area) and in my neck area (Cervical Spine area). It is worse it the morning when I wake up (The earlier I wake up the worse it is). Get's better as the day progresses and then towards the night I'm in pain again. There are periods of a few weeks where it's unbearable/severe and then it gets better for a while (but still in 24/7 pain) and then Severe again.

I have had blood work done, the results were fine/normal. I had x-ray's done: Show Minor scoliosis of my Lumbar spine, and minor kyphosis and degeneration of my thoracic spine. The doctor said this was "normal". I saw a rheumatologist who said they think it is muscular pain and is suggesting an Mri and a Pain management therapist.

I have tried: Deep tissue massage, Acupuncture, Physiotherapy, Regular massages on a daily basis (from family for temporary relief)


  • You will have to see what mri results will show, No simple answer to any of these spine conditions,
    Skoliosis is part of your answer, Mri might show it to be more severe then an xray,

    See what hapens after mri results and posibly pain specialist treatment,

    Let us know what they come up with, good luck
    Flexicore ADR 2004 resulting nerve damage l4l5 Fusion 2006 same level, 2009 hardware removal with lami !
    2012 scs implant ,
  • Well I;m back and still struggling. It seems every time I get something good going for me my pain comes and takes it out from under my feet.
    The MRI came back - t11/12 old fracture which healed. T5/6 herniated. Pinched nerves. Smorles Nodes. However the surgeon who read my mri told me surgery is not an option and did not really seem to believe I was in pain.
    I can not remember the last time, in the last five plus years in which I have not been in pain. It fluctuates from mild to severe but it is always there. It does seem to be muscle pain.
    I've seen a rheumatologist who concluded I don't have rheumatoid arthritis. A spinal surgeon who gave small bits of advice but no real solution. My pain management specialist discharged me from their office after decided there was nothing they could do for me (I was given anesthesia type needles which only helped the day of). Six months at a very good physiotherapist and absolutely no difference. Now been at a physiotherapist/massage therapist who specializes with fascia for about six months but still in a lot of pain.
    I'm not sure what else to do now.

    My current symptoms: Muscles always feel bruised and sore, All back muscles from the middle of my back down are in constant pain, Pain in neck and rear/delts/shoulders. Tight hip flexors/chest/quads. When pain is severe, hurts to sit, stand, walk (i feel a pain in my mid-to-low back on both sides of the spine with each step I take). I can only sleep on my back. Headaches.

    I was taking Gabapentin 600mg 3 times a day, and a muscle relaxant 30mg 3 times a day. The gabapentine I had been taking for two years roughly. I recently stopped them both (myself, I didn't get a doc appointment in time, was going through a hell of a time and just ended up weening off it quickly). Although I wanted to stop myself. The first week was hard, at this time I do not feel any different than when I was taking these meds.

    I do a "stretching routine" regularly, multiple times through-out the day as I feel needed. It sort of helps but I can barely get through school, I can't hold a job and I'm losing my mind. Ps. I'm only 20 .
  • gr33zyincggr33zyinc Posts: 37
    edited 11/18/2015 - 9:12 AM
    Medications I have tried:
    cyzlobenzaprine - Did not do much
    amytriptalyine - Did very little
    nortriptayline - Did very little
    Gabapentine - Helped a little (at 1800mg /day)
    Cymbalta - Did not really help
    Lyrica - Helped maybe, but had baddddd side effects
    Advil, Tylenol, Ibroprophen* - Do next to nothing
    (Currently not taking any of these). Between not wanting to take them because i felt like i was taking too much, and not being able to get a doc. appointment and being in a whole lot of pain... i ended up coming of them. (No, I was not taking the entire list at the same time).

    Medical marijuana - helps with pain management and keeps me from going crazy from pain! But still in a great deal of pain.

    Vitamin D and Omega-3. (no noticed difference?)

    X-ray #1: slight scoliosis at L2-3.
    X-ray #2: minimal lower thoracic scoliosis and ddd
    MRI: schmorls nodes between T6-%12 with disc space narrowing and loss of disc signal, T10-11 moderate broad-based disc bulge + posterior osteophystes causes mild cord compression, ddd T6-T12, partial wedging T11, T10-11 herniation with mild cord compression. (This mri is about two years old).

    Also remembered and thought I should add, been having weakness in my legs and some balance problems. I also feel like i am clumsy/fumbling things.. such as going to picking up a pencil or spoon and dropping it, or going to put a cup in the sink or cabinet and hitting the side of the sink/cabinet instead of placing it directly inside.
    As well not remembering things as well, I'm not sure if its an actual memory issue or if I'm in so much pain i can't think straight. I'll wake up *some* days and not even know what day of the week it is, or someone can be talking to be say something to me - i will respond and literally five seconds later have to ask them again because I have no idea what they said, watching a tv show and by commercial break not remembering what I watched, or watching a tv show and the next day not having even the slightest memory of what happened.
    I feel tied during the day, but not tired like I just went for a jog.... but more like I have the flu and I have no energy type of tired.
    I've been telling myself i have to go back to see my gp (doctor) for two weeks not but have not got myself to make an appointment.

    Anyone have any suggestions for advice, I could greatly use some. (=
  • gr33zyincggr33zyinc Posts: 37
    edited 01/15/2016 - 10:09 PM
    No one seems to respond here :( ...but I'll keep posting anyways..... hope is there....hope is there..

    Had another mri, everything has progressed slightly worse. Disc protrusion in thoracic spine with cord compression.

    The last surgeon I saw was aware of the disc protrusion, but said they saw it as a greater risk to get the surgery done (Can't guarantee if I would see an improvement in pain, and also couldn't guarantee whether I would not be able to walk again or not if I was to go through with it).....called it "A Very Big Surgery".

    Lately my cervical spine (neck) has been bugging me more and MORE, with a fairly similar feeling as that of my Thoracic spine, however no one seems to acknowledge that.... is it because they will NOT even EVER consider Cervical spine surgery unless you are basically already almost paralyzed? (from what I understand)

    ...so even if they go in there and fix my disc protrusion at my Thoracic spine, how do I know how any other parts of my spine will react? As well, my pain doctor said even if the protrusion was fixed, they would have to determine if that is actually what is causing my pain... as I also have dis degeneration in that area.

    I'm basically living in hell.

    What I don't seem to understand is, okay..disc protrusion in thoracic spine and I can FEEL that believe me! And whatever is happening in y cervical spine which won't be investigated. However, this does not seem to explain why almost all my muscles are almost always sore or tender (my back anywhere, my quads, my calves, feet, hamstrings...EVERYTHING?!)

    I was given more referrals however the new; sports injury specialist as well as the rheumatologist both declined my referrals saying they could not do anything for me. So here I sit....not knowing what to do other than attempt to mask the pain to the best of my abilities (with doctors help and meds).

    To keep all responses together I have linked these 2 threads

    Liz, Spine-health Moderator
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