I'm looking to hear from some others who might have the same symptoms as me and might have an idea of what's going on since my doctors aren't really sure.
I'm 24 years old, and my pain started as an ache in my right shoulder blade approx five years ago with a stinging/stabbing pain when it was at its worst. It would occasionally flare up and was slowly progressing over time until I was taking a regular daily regimen of ibuprofen to keep it at bay.
Then one morning in June I woke up to have the pain in my neck and much worse. Ibuprofen wasn't touching the pain. Within the next couple months it has developed into a constant aching, burning, stabbing, stinging pain in my neck, top of shoulder, shoulder blade, and the side of my ribcage. It radiates down into my upper arm and elbow often, and my forearm, hand, and fingers (especially my ring and pinky finger) will either hurt or go numb and tingly.
MRIs of the neck and brain were normal. Thoracic MRI showed prominent central canal but was otherwise normal. Nerve conduction study was normal. Chest, shoulder, and neck xrays were normal. Chest and head CTs were normal.
My pain management doctors have diagnosed it at myofascial pain syndrome and I don't think it's right. The physical therapist I just saw doesn't agree either, and I'm inclined to go with the pt's opinion more because they are actually working with me and watching my symptoms being produced. Thing is what could it possibly be and how can I get a doctor to listen to me? The last two times I went to pain management and told them I'm in pain everyday the PAs I saw both said that since all my medications and treatments are correct for MPS they aren't going to do anything different. One actually told me I should be glad that I don't have some horrible herniation in my neck or something (how I should be glad that my pain isn't being managed properly I don't know....) I know I probably need to seek out other doctors/opinions so I'm hoping that maybe I can find someone else, but the idea is a bit daunting.
I forgot to add a couple of other symptoms I've been having. Double vision and blurriness in my right eye and cluster headaches on the right side. A full story is here http://www.spine-health.com/forum/newbies-welcome/new-member-introductions/mps-lumbar-herniation-im-new-here
Microlaminectomy and discectomy at C7-T1 on April 26th.