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I guess it's here to stay...

Hi to the Forum Members,

I've decided it's time for me to tackle my chronic pain head-on.

I've been living with it for nearly 20 years now (I'm 35) and have been seeing Dr's and physical therapists and pain specialists and counsellors throughout that time, but have never made it a top priority til now.

I have bad back pain, migraines, severe period pain and generalised chronic pain (which may be something like fibromyalgia)

Ever since it's started, I've just wanted it to "go away"....

Now I may have to face the idea, that pain is here to stay - it's a normal part of life - and all I can do is to reduce it to acceptable levels.

I've only recently found out how sport triggers my migraines. Until then, I'd just avoided sport pretty much altogether, because the effects (pain) were so awful. Now that I've found migraine-free ways of exercising, I'm hopeful that the exercise will help with improving my back/ fitness/ muscle pain.

I don't really understand how I've been able to go almost 20 years without making my chronic pain to an *issue* or priority in my life.

I guess one reason is that it started so young, that I didn't really know how to deal with it at all.

Plus, in my family, there's a general attitude of "shut up and bear it" - which I guess I internalised.

So I've ignored my pain when it wasn't at its maximum and have allowed it to control my life when it was really bad.

I need to turn this around.

I need me and my life to be the focus. And chronic pain to just be one small part of that - and something that I am confronting head-on.

I hope to find a new orthopaedic specialst in January and to start a proper chronic-pain-management plan with him. Until now, my current Dr has just been seeing my and superficially treating whatever symptoms come up, as they occur... No plan or road-map for how to deal with the pain long-term, or how to move towards a more healthy and pain-free life...

So I hope I'm going to get more aware of my pain and of the impact it has on every day of my life, so that I can learn to deal with it properly - not feeling so helpless and wishing it would go away.

Looking forward to talking to people here...

Best wishes


Happiness is your chronic pain being less than it usually is...

Migraines and so many herniated discs (the same ones over and over) that I have literally stopped counting


  • dilaurodilauro ConnecticutPosts: 9,856
    I do have to say, that your introduction as a new member to Spine-Health was something that I read and re-read.
    Your total look at your situation is something that many people never understand.

    You know pain, pain has been with you for so long. In all those years, it has seemed that in one way or another you have
    found methods to allow you to continue, pushing ahead despite of your pain and discomfort.

    I hope that you do have a good session with the upcoming Orthopedic review. I would also suggest, looking into the Eastern way of medications. Discuss this with your doctor. I know, I spent so many years going along with the traditional Western ways ( Physical Therapy, Injections, Narcotic medications, etc). But there came a time when all of those no longer worked and after so many spinal surgeries, another one is something I did not want, nor did my doctors suggest.

    Instead, they turned me in the direction of other medication routes. First it was with Osteopathy treatments, then all the acupuncture treatments, finally onto true Eastern methods such as Aroma Therapy with Essential Oils, Music therapy and meditation and true Deep Tissue Massage.

    Today, I am in a much better place because of combining the Western and Eastern views of medical treatment.

    I think you will find a lot of information here that can in one way or another help you in your journey.

    Welcome aboard!
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Hi Ron,

    Thanks for the lovely welcome!

    Well, haha, that makes me feel like less of a dunce then, for having only realised that stuff 20 years "late"...

    Like you, I've also incorporated Eastern methods into my treatment and found them very enriching.

    I'm currently trying Neuro/ Bio-Feedback as a new treatment and finding that very interesting and helpful too.

    I guess for me, with the chronic pain having started so young, it's merged to become part of my personality, almost.

    So I think it's important for me to tackle this head-on and tell myself "I am a chronic pain patient and that's why I'm (almost chronically) grumpy. I'm not just a grumpy person by nature..." and things like that...

    It's certainly interesting reading ppl's contributions here - it's a relief to see that we're not alone with trying to make something positive and valuable out of our lives, despite the pain that makes that such a struggle.

    I'm feeling very grateful, that my chronic pain is on a 20 year low, at the moment. It's still no-where near where I want it to be, but SO much better than where it's been in the past.

    I've had some long, bad, dark stretches of time, where nothing at all seemed to help. Where I've been at my wit's end...

    So I'm blessed now and have been lucky to get to a place, where I know what my pain is and what it isn't and to sense what is going to get me out of the place where pain seems to go on forever...

    I've certainly not been smart or wise enough to work that out for the past 20 years - and since major pain makes us mentally and emotionally drained, it's not exactly easy to work out what you need to do to help yourself effectively, when you are *in the middle* of the pain...

    I've had a lot of bad luck in the medical treatment I've tried, but also some truly good luck (or maybe I'm grateful for small blessings, haha!) but it's been enough luck, to help me get to a place where I can now "work" with the pain.

    For a long time that wasn't possible and I feel with everyone who is currently stuck *right in the middle* of it. It feels like hell.

    I guess in a way I am really grateful, to be on a new part of this 20 year journey... On another level, I really resent the pain I went through too tho - if the medical system were a bit smarter, better educated, more patient-friendly, more open to Eastern medicine, etc, etc, about 90% of my pain would have been totally and utterly avoidable. So that was difficult too - knowing that I was stuck in pain, because I couldn't find treatment that was truly competent and smart and helpful... sigh...

    Ah well, we live and learn, I suppose.


    Happiness is your chronic pain being less than it usually is...

    Migraines and so many herniated discs (the same ones over and over) that I have literally stopped counting
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