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Adult tethered cord

I am 46 years old and had surgery in 2006 for tethered cord syndrome. I also had a large lipoma tumor that has infiltrated the dura and attached to the spinal cord. Parts of this were excised, and subsequently I experience periodic leakage of spinal fluid accompanied by horrendous headaches. I have done relatively well until one month ago when I developed the identical symptoms I had in 2006 except these are worse. I am having an MRI done this week, however, there is not a doctor here that will touch me. I had the original surgery at the Cleveland Clinic, and am hesitant to return there since my surgery was deemed a failure. Does anyone have any ideas, or suggestions for pysicians that specialize in tethered cord surgery? The only one I have been able to find is in California, which is not feasible living in Ohio.


  • Check out Colorado there is one of the best spinal clinics in the world, just can't think of the name right now. You can also check out the mayo clinic. But also just because they considered your surgery a failure that is not really true they won't see you. It is a failure as they didn't conquer the pain you have. There are many of us whom have failed back surgery syndrome or really in our case it is failed neck surgery syndrome, but there isn't a ICD-9 code for that. If you have nerve damage it is going to be that way. Nerve damage can't be fixed and I am also guessing you had a condition called myelopathy, which is going to be a failure of sorts. The surgery is done to stop the progression but not necessarily to undo the damage that has been done. Actually you will live with the damage that has been done. So don't think because the first surgery failed to elevate your pain that they won't do surgery on you again. Good luck and keep us posted on your results of the MRI.
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