I had my SCS implant almost 5 months ago but I am still having horrible hand pain where I had surgery after a car accident. I developed RSD throughout my hand, arm, and neck which is why I began treatment with a pain management center. I finally had the implant which helped my arm for the most part but my neck continues to hurt and my hand has not improved. The did a trial facet (sp?) in my neck which helped but I wanted more info on the permanent nerve burning first. However, my hand was hurting so bad and after waiting almost 2 hours to see the doctor, I had to leave and reschedule. I left a message on the nurses voicemail explaining that I had to get back home (which is 1 1/2 hours away) but was upset with the whole situation as I was leaving my message and I'm sure they noticed. I got a call later saying I needed counseling and biofeedback to cope with my hand pain since they have done all they can for me. Unless I did this right away, they were going to refuse to see me and treat me anymore. I don't know what to do since I've tried everything in the book ( PT, OT, meds, casts, injections, etc.) and went to the pain mgmt. place as my last resort. If I am in so much pain is there really no other option than to live with it? I still can't use my hand without dropping things or making it hurt worse when I do normal daily chores and activities.
I've read so many posts that portray such a great relationship with their PM and the continued exploration for pain reduction/solution. Am I missing something here or is this normal practice when they can't find a solution? They don't believe in pain meds beyond Lortab but those just don't work as well anymore. I'm getting the feeling they don't believe my pain is real but I don't know how else to convey my pain. Don't get me wrong though, the stimulator IS working for a lot of the nerve pain I had throughout my arm.
Has anyone ever experienced anything like this? If so, what did you do? Is this normal? I feel like I'm going crazy and they are just reinforcing that. The SCS was supposed to make everything so much better but with the continued infections I haven't had much time to experiment with my Medtronics rep on better settings even though the PM people feel I have. I'm at a total loss :-(. Thanks for any input anyone might have or how they coped with a situation like this. Sorry for such a long drawn out post!!!