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Spondylolisthesis L5 S1.....100% slippage

Does anyone else have 100% slippage?


  • I've always read the spondylolisthesis to be graded from 1 to 4. Perhaps grade 4 is a 100% slippage?

  • I have a grade 1 44mm slippage at the same level, L5/S1. What has the doctor prescribed. I believe this is a big source of my pain. I'm now looking for treatment options.
  • piperppiper Posts: 3
    edited 01/17/2013 - 7:54 AM
    I haven't had a radiologist note anything near a percentage or a scale. Its frustrating to hear this news is given out. Its something to go off. I have a herniation l5 s1. thats all thats noted. I have partial sacralization on rt side all that is noted. I have symptoms of cuada equina but not total loss of control just the urge to go. 1 and 2. pain in perineum. I have had great treatment with Nueromusculoskeletal medicine and cranial sacral and lymphatic drain.
    -good day
  • Sorry about the term slippage. What I have is a grade 1 retolisthesis of the disc at the L5/S1 vertebra. I saw this diagnosis on an xray report. The xray was a flexion, extension xray to see if the vertebrae were stable. My cat scan did not note this. So, don't feel too bad. Not every test will pick this up as far as I know. I'm no expert on this.
  • my mri notes where stating bilateral encroachment at rest. not flex or xtention test. will discuss with my PCP. thanks for your information.

  • 100% slippage is Spondyloptosis, when the vertebra completely falls off the supporting vertebra.
    Once it slips completely off the vertebra below, it is called Grade 5 slippage.

    Do you have 100% slippage? If so what is the plan to help you?

    This is a great place to meet others who have spinal problems of some degree or other and many of us have had spinal surgery. Do ask any questions you may have and generally there will be several people who will try to answer and share their own experiences.

    I have had a lumbar fusion and decompression of L4/5 for a Grade 2 spondylolisthesis. It gave me wonderful relief of the awful bilateral sciatica I was getting and also got rid of most of the lower back pain.

  • I have heard that the L5/S1 can be tricky. Also, Pennie, can you share some of your symptoms with me. I know that your problem is in the same vertebrae. Anyone who has the same problem, I would welcome your input. For a grade 1 slippage I have read that manipulation and exercise can be very effective. Also, that a Grade 1 will get worse in time if not treated. Aside from surgery, how have you treated your slipped disc? Mine slipped backwards retrolistesis, which I understand is more unusual.
  • l5 on l5 right paracentral disc herniation, extruded grade 2 spondylolystheis. all impinging on nerve roots (sciactic agony down to my toes, right leg) (hamstring, classic pain) (right and left calf, numbing, hip pain etc.)
    facet hypertrophy, disc narrowing at T10-11 and 12, all kinds of fun things, having nasty emg tomorrow, hate the pain, surgeon is amazing, scared to death, apparently, also have osteoporosis, i am 55. no surgery date set, i don't even know if i should be reading this site, anxiety level is out of control; doc says 4-6 weeks healing time and it doesnt look that way here... :-( just welcoming all...
  • flowerpotsfflowerpots Posts: 379
    edited 03/03/2013 - 12:25 PM
    I am having L4L5S1 HAVE complete slippage, back pain and siatic nerve pain down right leg.I am having surgery March 13 and he is cutting stomack and back.Dr told me recovery 6mths to a yr.Im getting rods screws,cages.Good luck what ever you deside.Kathy
    Kathy B
  • odouglassoodouglass Posts: 264
    edited 03/04/2013 - 5:13 AM
    I also have l5 right paracentral disc herniation, grade 4 spondylolystheis along with a pars defect (fracture) and pinching of sciatic nerve with leg pain, tingling and numbness (left leg only). I am scheduled for surgery May 1st for a spinal fusion and discectomy..... all other treatments didnt work...... :( Good luck in the other treatments!
    Olivia Douglass
    MIS TLIF L5/S1 on 5/1/13
  • Danny KDDanny K Posts: 1
    edited 05/03/2013 - 7:32 AM
    Hello penny,
    I have spondyloptosis, it is a condition thats so rare my primary care physician referred to it as "grade 5 spondylolisthesis." (spondylolisthesis is only graded on a scale of 1-4, once the slip excedes 100% it becomes spondyloptosis) My doctor has been looking for a little over a month now for a surgeon who will operate on me (i live in oklahoma and we have ruled out surgeons here). There are no other options besides surgery. I'm 20 years old and unable to do the vast majority of things most boys my age do. This particular condition is very rare and it will be very difficult to find a surgeon due to the fact that not many surgeons have seen the condition in person and the few that have have only seen a small handful, not to mention there is a significant risk factor involved, most surgeons will not touch a condition they have never seen before, instead they will look for others who atleast have a couple cases of the same condition on their record. I hope we can stay in touch and maybe help one another to find a surgeon. My spine specialist is very good. Doctor xxxx. He has been in practice for about 25 years, he performs about 14 surgerys per week, and my case of spondyloptosis is the first he has seen in person. Also something that should be addressed is a condition called spinal stenosis. Which it is safe to assume you also have as a direct result of the spondyloptosis, it simply means your spinal canal is more narrow than it should be, depending on where your slippage is it could be a very serious problem if it is above your lumbar. Please keep in touch. Perhaps we can compare xrays\mri and see where we stand in relation.

    Post edited to remove specific doctor's name. Please read the Forum rules

  • Welcome to Spine Health.
    I am so sorry to hear that you are suffering (and I am sure that you are suffering!) with spondyloptosis.
    I had a lumbar fusion for a grade 2 spondylolisthesis and it was successful and gave me great relief of the bilateral sciatica and also helped a lot with the lower back pain.

    I hope that you will find a surgeon who will be willing and able to do this surgery for you. You are so young to have such a serious problem with your spine. Did you have an accident?

    You have probably realised that it is not allowed to post the names of doctors on this site.
    If there is such information that you want to share with another member, the thing to do is to send them a PM (Private Message) which is not seen by all members.

    Do let us know how you get on with your condition and surgery. The support here from others who know and understand how difficult spinal problems and surgery recovery can be is wonderful.
    Good luck! :-)

  • had surgery, been posting elsewhere on progress, been 36 days...seeing surgeon again tomorrow, i did have some issues, complications- blood clot dvt lower left leg - finally under therapeutic blood level with warfarin - but it's been 4 weeks since it was discovered, that's caused huge ankle swelling, my surgery caused alot of neuropathy on left side (surgeon went in laterally in two places and two places on my back) had a fall (!) two weeks after surgery (OMG) but was ok... scary stuff.. been off heavy pain meds for weeks, only taking one soma an evening, and two neurontin a day as opposed to the 3 neurontins and *thats caused some weight gain :-( and depression :-( although, it's been 36 days without a smoke and i WAS a smoker since the age of 12-14! and yeah 55! i have been walking - yeah, even with pain from the ankle and swelling but doing over a mile a day most days, and, hoping to get my life back shortly... i want to be able to just get IN my car alone!! The difference between the first two weeks and today? unreal. my back is sore, i get stiff, want to bend, but cannot.. i can do military presses with 1 lb weights (i used to be such a training gym rat even with the cigarettes) all of the co insurance bills are starting to come in.. and i know i will have co ins. bills on my twice a week blood testing.. it's going to be a tough year... i am grateful to know though that those who have had fusion have no more pain on the side they went in for,.. i do have what i call some screaming pain on my lower leg right side, but no more sciatic pain. sitting is tough, have to get up walk around alot... tingling on my left side from the surgery, butt on left still numb... what can i say? it's only been 36 days... each day is different... thanks for all the suppot
  • Hello-

    Thanks for the update on your progress. I am only 7 days post-op L5/S1 fusion and find myself pushing the limits already which cause me more pain in the end- totally not worth it. My husband has been home with me until today- he had to go back to work. I am nervous because it will just be me and I get easily depressed as well- so I understand that side of things. I get to see the surgeon next Tuesday for my first pre-op. Keep your head up, read these forums from people who have gone through similar issues as you and do what you've always wanted to do! I have a side business that I can work from the comfort of my home so that keeps me busy and I love to read, watch movies and guess what--- sleep! :) It is very easy to find yourself depressed after such a rollercoaster of events but remember that the end of this is all near! Keep in touch, and feel free to message us with any questions or when you need a pick me up- we've all been in your boat at some time or another!
    Olivia Douglass
    MIS TLIF L5/S1 on 5/1/13
  • ghaddangghaddan Posts: 1
    edited 06/05/2013 - 10:20 AM
    I have L5/s1 grade 1 spondy. I have been doing steroid injections for a couple of years. No longer affective, the pain has increased and the disk is shot. I am in the process of getting things in order for a spinal fusion. Once your disk is gone, its just bone against bone, and nerves. I hope I am making the right decision, for I do not want to live with this pain for rest of my life.
  • jellyhalljjellyhall Posts: 4,373
    edited 06/06/2013 - 2:41 AM

    You have come to a great place for information about your spinal problem and this forum is full of friendly people who will be happy to share their experiences. Having support from others who have gone through or are going through similar situations is a great support.

    I had a grade 2 spondylolisthesis of L4/5 and had a fusion 3 years ago.
    I got wonderful relief from the bilateral sciatica and my lower back pain was helped a lot too.
    I was told that spinal fusion surgery for this condition has a very good success rate. That was certainly my experience.

    Hopefully once you are recovered from the fusion surgery you will be able to get back to enjoying your life.
    I was warned that I would always have some back pain because I have other problems throughout my spine too.
    I had an ACDF 7 months ago.

    The relief that I got from my lumbar fusion was better than I had hoped for and I would certainly do it again if I needed to.

    Can I suggest that you post in the new members section inntroducing yourself.
    Do ask any questions you have and people will be along to answer them.
    There is a thread at the top of the Back and Neck Surgery section which has a list of useful items to help after surgery. Don't be alarmed by how long this is! It included neck surgeries too. It will give you a good idea of things to buy and do to help your recovery once you are home after the surgery.

    Good luck :-)
  • odouglassoodouglass Posts: 264
    edited 06/07/2013 - 9:49 AM
    Welcome to the forums- you will definitely find a good amount of people here that have gone through the same things you are experiencing. Before my surgery, and even now as I am recovering, I find myself frequenting this forum to check in with the other members and also for encouragement.

    Here's a bit about me- I am 25 years old and about 4 weeks after a L5/S1 Spinal Fusion and am doing great. The pain down my legs and in my lower back has definitely decreased and I am feeling better day by day! As you can see in the X-Ray in my profile picture, I have 2 rods and 4 screws. There is also a synthetic bone graft. I had a fracture, degenerative disc disease, large paracentral herniation and a few other things before the surgery. The pain down my legs was SO intense and I found myself not able to move around much. I am SO glad that I got the surgery and there are many others on the forum that would say the same thing.

    Keep us updated on your progress!!
    ghaddan said:
    I have L5/s1 grade 1 spondy. I have been doing steroid injections for a couple of years. No longer affective, the pain has increased and the disk is shot. I am in the process of getting things in order for a spinal fusion. Once your disk is gone, its just bone against bone, and nerves. I hope I am making the right decision, for I do not want to live with this pain for rest of my life.
    Olivia Douglass
    MIS TLIF L5/S1 on 5/1/13
  • pennie92pennie92 KentuckyPosts: 16
    when it becomes a grade 5 it is then called a "spondyloptosis"  so that might be why you haven't heard of there being a grade 5..
  • pennie92pennie92 KentuckyPosts: 16
    Hello, I wonder how are you doing now? Has your spondylolisthesis stayed at a grade 1?  Do you get yearly xrays done to keep an eye on it? 
  • pennie92pennie92 KentuckyPosts: 16
    piper, How are you doing now? 
  • pennie92pennie92 KentuckyPosts: 16
    Hello, Yes I have a 100% slippage and had a spinal fusion back in 2002. I am just now getting back on this discussion thead and had forgotten about what I had written here so long ago...Its been a long journey for me...
  • pennie92pennie92 KentuckyPosts: 16
    joani, I appoligize for never getting back to you and never getting back on this discussion thread..I forgot about it and never checked back to see if I had any answers...I will however start to be a participating member if you are still here as a member and want to chat:) 
  • pennie92pennie92 KentuckyPosts: 16
    Thank you for the Warm Welcome to the group....I am happy I had an anterior and posterior spinal fusion back in 2002. I still do have some pain to manage daily but am happy that I can walk and my condition will not worsen...any more...
  • LizLiz Posts: 7,832
    Hi pennies
    Piper hasn't been on the forum for more than 2 years, apart from Jellyhall it is a year or more for the others too.
    This is an old discussion and I see you have a created a new post so I shall close this one.

    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
This discussion has been closed.
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