I am a 32 yr old Female with some long standing back/pain issues. I have been lurking here for about 2 years, never posted. Could really do with some advise/opinions.....
The problem started 5 yrs ago when I was 16 weeks pregnant, and had a terrible pain in the front of my pelvis - was diagnosed as PGP or SPD - which I think are interchangeable, anyway this progressed through the pregnancy culminating in having to go into a wheelchair at 7 months pregnant, the midwife dismissed it as normal pregnancy pain, and I have a lot of trouble getting anyone to listen to me. I have a c-section at 38wks pregnant and baby was perfect.
Since then I have done many round of physio and hydro therapy, all of which have been no use - I was referred to the pain clinic and told that the problem was SIJ disease. I have had numerous injections into my SIJ's al give a couple of weeks of minimally reduced pain.
I have had a couple of Pelvic MRI scans - all of which have been according to the report 'unremarkable'
I was referred to a rheumatologist - after having a problem with my wrist, the surgeon that carried out the arthroscopy said that he didn't like the look of the joint and given my history he wanted to refer me.
I had an appointment with the rheumy on Monday ad he says that me SIJ's are normal and that the injections wont do anything for me. He has taken loads of bloods and is arranging for a lumbar MRI.
Pain all down legs - Right worse than left
Pain in most of back
Pain in Muscles in general
Numbness in feet - Right worse than left
Clicking, crunching and snapping coming from Pelvic,hip or lower back area.
I am currently on :-
Buprenorphine 1000mcg a day
Amitriptylene 50mg a day
Can anyone help me sort mythought out and figure out what I need to do - I am so confused that my diagnosis has been changed/removed