This is my first time post on here. I've spent the day reading many, many posts. A lot have been similar, just not quite the same. It is a relief that I'm not alone with these complications. I would love to hear from anyone who has some advice/opinions.
I had my first discectomy (l5s1) in 2002. I was pretty good for 10 years. I injured it again in January 2012 and gradually the pain continued to get worse. In July 2012 I had another discectomy on the same disc. (I should add here that my surgeon told me on my first visit to him that a fusion would probably work best for me, but because of my age he didn't want to go that route. He did say the next time would require a fusion) For the first 2-3 weeks I had some relief except for the usual post op pain. During the 3rd week my leg pain came back and was worse than before surgery. I was sent to PT for about a month with no relief. (He was scared to do much bc of the leg pain.) I had another MRI at 2 months post op and my neuro dr sd everything looked fine, there was nothing he could do for me surgically, and released me to a pain management dr.
PM dr said at the 3 month mark, I should be healed and that was as good as it was going to get from that surgery. PM then tried nerve block injection with 0% relief and his opinion is a spinal stimulator or a spinal fusion. He wants me to see an ortho dr and get his opinion. I've had a hard time finding a dr to see me. They tell me I have to wait 1-2 years post op before they will see me. Meanwhile, PM dr just gives me pain meds. (They take the edge off but the pain never goes away. Stays between a 6-8 constantly) I did find an ortho who agreed to see me and I'm hoping to find some relief with him. I do have back pain (this was expected and that I can deal with) My issue is with the constant leg pain that starts in my back and goes all the way to my toes. My butt/hip, knee, and calf muscle is the worst. Like others have said it feels like burning/being stabbed with a knife. Soo aggravating!
All I want is to do normal things again! It's hard to make any plans bc I never know how I'm going to feel that day. I'm only 35 and this is not how I want to spend the rest of my life! I just keep reminding myself that lots of people have it a lot worse and I should be glad for how I am. Sometimes it's really hard because I feel like no one understands. It has to get better at some point, right?! I would love to know if anyone else has had these issues and found relief!!