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Hospital Day 20

So...here we are on the 20th day of hospitalization following fibrin sealant procedure in December. My son is still in excruciating pain. Not able to sleep. 19 years old and has to walk with a walker or be in a wheelchair. No one is sure what is wrong. Maybe an infection in a disc, in the vertebra itself? Maybe an acute intravertibral herniation (schmorls node)? Maybe...who, knows? On MASSIVE amounts of pain meds - pain level stays at a 9 or 10, went down to an 8 for a bit and he could sleep for 2 hours last night. Had to drop out of college, AGAIN. I don't know how long I'll be able to keep my job when I'm here all day everyday. They're talking about sending him home because there's really no reason to keep him in the hospital. Put in a pic line so we can go into town (we live out in a rural area) everyday to have his iv antibiotics delivered. I am so worried about taking him home because I'm not sure how long he'll be able to stand the pain - physically, emotionally, psychologically - can he survive this? This is a nightmare!!! As for the doctor who did this, I won't mention names, but I hope he's enjoying his "villa" in Naples and his yaght parked a stone's throw from the beach on this 3-day weekend (no kidding, I looked him up on facebook). Sorry, y'all. Just had to vent.


  • lcarpenterlcarpenter Posts: 119
    edited 02/24/2013 - 6:24 PM
    Ugh. Difficult day. Bad headache. Just doesn't feel good. Hope this isn't an indication that things are getting worse.
  • lcarpenter, I really don't know what to say except that I will pray for him, and you!
  • And you in my thoughts and prayers.
    Wow, it seems like we have had so many members who have had to have a lot of antibiotics with and without hospital stay lately.
    >:D< >:-D< : Karen
    L3-S1 herniation and bulges, stenosis, mod facet,ddd,impinged nerves,coccydinia
    discectomy/lami July 2011-unsuccessful
    adr L5-S1 Feb 2012
  • Thanks paininohio and ouch2 :) It sure does help knowing that you guys are out there listening.
  • I just don't know what to say. I'm not formiliar with his procedure, but 21 days has to be very rough. Praying they can find a solution soon.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
  • DNiceDDNice Posts: 1,962
    edited 02/18/2013 - 2:16 PM
    Not familiar with the procedure but praying for you and your son. I know this must be very difficult and I hope that you can reach out to a specialist for insight on how the doctors can help your son get his pain levels to a manageable place.
  • Thank you guys so much for listening. :) It really does help a worried mom. Today has been much better so far. Pain level down to a 7 - lowest it's been in several weeks. Was able to take a shower - whew - that is a very good thing for all of us. lol. Funny how you really learn to appreciate the small stuff when things like this happen. Keeping my fingers crossed that this trend continues. Sending my best wishes for pain relief to all of you.
  • I am so very sorry for your son's excruciating pain and being a mother myself I know how horribly worried you must be.. I'll be saying many prayers for you both..
  • Still in the hospital. Very upset. Very frustrated. This is a nightmare!!! Thanks everyone for all your support!!!
  • I hope everthing works out its so scary when its your child. I always worry about hospitals because of infections.I am praying for your son hoping he goes home soon with better pain management!!! I hope you are taking care of yourself or you wont be any good for your son.
    Kathy B
  • Sending you & your son a hug....& hoping that your son gets better! I hope you can find some comfort in knowing that others care. I personally went through a horrible scare with my 22 yr old son a few years back. He was in an "enormous" inhumane amount of pain, but...what kept me going was knowing that know matter how strong the pain is, A Mother's Love is "Stronger"!
    Take Care.
  • Thank you guys for all your support! It really has helped me get through this. We went home yesterday. Has to be on a 24/7 iv machine. What a complication THAT is! I'm really intimidated by the whole thing, but the nurse at the infectious disease doc's tells me that in a couple of days it'll all seem like a piece of cake - hum - we'll see. He's still in tons of pain, but glad to be home. Very happy to see his dog! Wow, talk about a change in lifestyle. 19-yrs-old and walking with a walker. They say that his bloodwork is improving and that he'll feel better, but that it will take a long time. Talk about a change in lifestyle. Before all this at least he was able to go to the movies with friends, take a date out to eat, and attend classes (although his activities were still limited when compared to other kids his age). Now he can barely stand. He still has a really positive attitude, though. He said this morning that he doesn't think everybody would be able to handle all he's going through. I agree. I think he's a pretty amazing kid. But I may be a little biased.
  • RangerRRanger on da rangePosts: 805
    I've been watching your thread here for a while and just wanted to let you know along with the many many others my thoughts are with your son, you, and family. With time you will see improvements happen at a very rapid rate. I'm convinced being home helps accelerate the healing process. Stay positive and strong, that is the best advice I can give anyone.
    My best to you!
  • Im so happy your sons home. Hopefully he will start to heal with the help of his loving family.Theres no place like home.Kathy
    Kathy B
  • is a great place to be. I could tell a difference in his outlook the moment we stepped out of the car. Even though he's still in lots of pain, he is moving around a lot more, which the docs said will help the healing process. The biggest bonus - getting to sleep without nurses, techs, physical therapists, etc. waking you up every hour! He slept 6 hours last night!!! I think that alone should speed up the healing process. :) Thanks so much for the words of encouragement! It really helps me to look past the present moment and to the better future!
  • So glad yall are home. I completely agree that home is a much better place to heal. Hopefully he'll also be able to have more visitors to keep his spirit up. Maybe after some more healing they will be better able to control his pain.
    33yo mom of two. My surgical history...preadolescence scoliosis, kyphosis, and a hot mess.... 5 spine surgeries and lots of items added I wasn't born with (titanium, peek, surgical steel). Guess cremation is out. TSA loves me.
  • Yes, anelsen, he is in video game heaven. Lol. Of course everyone is spoiling him rotten. Has every new video game and movie out. I hope so too, AllMetal. He wouldn't let any of his friends visit in the hospital. I think he was embarrassed to be in pain and didn't want them to see him. He's still kinda bummed about the IV antibiotics. It's the kind that stays hooked up 24/7, which is a real pain and keeps him pretty tied to his room. I'm hoping once he gets used to that he'll want friends to come over again. AND, yes I hope too that once the healing process progresses some more, he won't be in such pain. Pain really stinks, as you all know!
  • Cath111CCath111 Posts: 3,702
    edited 02/24/2013 - 10:19 AM
    Linda, I'm sorry this is so late, but I haven't been on in a while. I read your initial post before all the replies and, oh my, do you have quite the support system here! It makes me smile how many people care and take the time to write.

    Although I only have an inkling of what you and your son must be going through, I know how difficult it is for a mom to see her son in such a situation. Additionally, it takes its toll on you as well. Be sure to stay strong for him - my guess is that you are since he has such a good attitude.

    I'm adding you and your son to my prayers as well and am anxious to hear your updates as they come up. Hang in there...it will get better. I'm glad he's got a lot of distractions and that he's getting the treatment he needs. Is your job still supporting you? No fear of losing it so far?

    It's hard to know what to say other than take care and I hope to see improvement postings soon.
  • Yes, Cathie. All the support is wonderful and so much appreciated! This site is truly a sanity-saver! :) Yes, this has been quite a difficult situation. All the doctors are telling us that he will be okay. I finally just had to quite googling information - I was scaring myself to death. So, just having to believe everything will be okay and take everything day by day. We are so fortunate also to have lots of family support. Yes, getting lots of support from my job, as well. I'm having to cut my hours in half, which means 1/2 the income (we'll be eating light for awile - lol), but my boss is being so nice about it (even though it's creating quite a bit of chaos for her). Lot's of doctor's appointments next week. Like I said, one day at a time... Thank you so much for the kind words, thoughts, and prayers!!!
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