Hi, I have recently been diagnosed as having an intradural tumour at C2. My symptoms were stiffness in the neck (which I put down largely to posture and working at a computer for most of the day) and constant (but manageable) pain in the right side of my head.
Since being diagnosed I have been trying to get as much info as possible but Im not sure looking at everything on the net is a good idea, I fear I may be becoming obsessed but still with no clear view of the way forward.
My NS has given me the option of having the operation or watching and waiting with regular MRI's. It is with this that I feel I need advise. I am 53, work full time and am very active. Part of me thinks I need to get the tumour out as as soon as possible but having read around peoples experiences I wonder whether I should delay it for as long as possible (despite feeling that I have a time bomb in my body)
Can I ask has anybody had the operation with a good outcome, in that they have practically been able to continue life as they did prior to the operation.
Is anyone waiting and watching and if so how do they cope with the constant worry.
I am torn between not having the operation and remaining as I am, active and well for the most of the time, but then I worry that the longer I leave it the bigger it will get, hence the riskier the operation? I really don't know which way to jump and would welcome any advice. I am so pleased to have found this board. Nothing compares to hearing from people who are in similar situations or a few states further down the line. I am trying to keep a positive spin on things but as I'm sure you all will know it is not always easy.