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My story.....Young and in pain, looking for support.....

This is the first time I have ever used anything like this I am a 29 year old who has been in uncontrollable pain on a daily basis for over a year now. My injury occured when I had a fall at work, its unbelieveable that a fall on a patch of ice could cause this much damage. The day after my injury I was sent for a MRI cause the pain was unbearable I was having horrible lower back pain and shooting pain down my left leg to my foot, the MRI showed that I herniated two disks at L4 and L5.

For the next 6 months to a year things were rough I was put on hydromorphone for pain and given epidural injections every three weeks making a total of 6 epidurals until they stopped them cause they were causing me more pain than anything else.
I was then sent to a speciaist that looked at my MRI and put me on the list for surgery right away, I had a discectomy done at L5-S1. The pain that I had after surgery I thought would go away after I healed, but it didnt.

I was sent for another MRI because the pain was still there nothing had changed, the MRI showed that I had alot of scar tissue built up but there was no longer any nerve compression, so I was then handed of to a physiatrist with hopes that he could manage my pain because the surgeon now stated that I have chronic pain...
At the physiatrist he gave me a nerve conduction test in which he found that I have some permanent damage to the L5 nerve root most likely from the injury and aswell some of the pain could be from chronic pain. After a while the hydromorphone wasnt doing its job and I have now been put on something called Butrans 10 mcg has anyone else tried this? I find that it takes a few days to start relieving any pain and then you get a couple of okay days then its time to change the patch and start all over again.
Im happy I found this site it feels good to get some of this out of my head it has been building up for a while now, my support system is flawwed where I am in my life at this point in time, my family is all on the other side of the country all I have here is my girl which has been great, but I try and hide alot of my pain from her so that she doesnt worry I just try and put on a face and carry on through it, at times its so frustrating, I feel like this pain is absolutley taking over my life.

I am still at work I have been at the same place of employment for the last 12 years of my life pretty much right outta high school I started my career, my job isnt too accomadating I guess you could say when your healthy your good to go but when you broken your useless, waiting too see where my health situation goes before closing this chapter of my life.

Well its been nice to vent it would be nice to talk to some people who are going through the same thing as I am this thing is so lonely at times.

One more thing I have been offered a 4 week course on chronic pain management has anyone tried anything like this???


  • LizLiz Posts: 7,832
    I am sure that you will find your time on Spine-Health very rewarding. This site is a powerful and integrated system that is dynamic and continues to grow.
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    Liz, Spine-health Moderator

    Spinal stenosis since 1995
    Lumber decompression surgery S1 L5-L3[1996]
    Cervical stenosis, so far avoided surgery
  • iam now 38, started ten years ago with two surgeries to l5s1. i have failed back surgery syndrome, it sounds as u may too.

    i wear a fentanyl patch, so i know what u mean with regards to that.

    i have been in a few different classes for chronic pain and if u have the chance, id suggest u take advantage, itnwill be other people who know how it feels, just like forum does, u just live people, not computer peoples.

    Ive been lucky, my work has been very nice. i still have to work hzrd but am allowed to use my walker and my desk can stznd or sit at.

    I am awaiting a spinal cord stimulator. i have hzd the trial and this may be my last hope. from ehat uve said, it may be something that will ework for u in future. thebad pzrt is uve got to trial all other things a few times before insrance companifes considerate it. i know a few good books if ur a reader, im me and i can give u the names.

    Good luck. you are not alone, there are many of us hear to listen.

    May your days be tolerable,jen
  • I can identify what you are going through. I have DDD, herniated discs, & the discs are slipping. I had numerous epirdiural injections but the pain always came back. I was on BUTRANS 10 & 20 but the costs became too much. $155 with insurance.
    The PM just prescribed Fentanly patch 50mcg. It is cheaper. Hang in there!! We are not alone. I'm new to this forum and it
    helps to know that there are other out there that are in the same situation.
  • Thanks again for your replys it is nice knowing that there is a place out there that I can get some of the stuff on my mind out without being judged, thanks

  • Your story hits home, so many of us here who can relate. This is a great place for comfort, support and knowledge. I am sorry this has happened to you. Chronic pain takes a toll on you and your family both physically and mentally. I have heard of centers for chronic pain where you can go and stay for a few weeks and learn about all aspects of it and how you can learn to live with it and better your situation. Is this something similar?
    Glad to have you here!

    Cause: car accident & genetics
    Effect: herniations C4-7, stenosis, osteoarthritis, myelopathy, neuropathy
    Non-invasive Treatment: everything under the sun
    Invasive Treatment: 2 level ACDF, C5 & C6, May 2012
    Moving Forward: SCS
  • Hi
    Yes it does sound similar I was reffered to the chronic pain management program by my pain management Dr I am going to be going to the information week next month, I hope it all goes well there is a 6 month wait to get into the program that seems to be the standard now a days to get anything done. Im hoping for the best, any type of help at this time I wont say no too.
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