Good morning. I will give my back's history as briefly as is possible. I had scoliosis surgery in 1980 at age 14 with a Harrington rod. That fused from T11-L3. Years later, severe pain sent me to a surgeon here in Texas who did 3 nerve decompression surgeries to take the pressure of the nerves. During the first surgery he was going to remove the Harrington rod but said that there was too much bone overgrowth to attempt it. He did, however, take out the bottom hook. The nerve decom surgeries only worked for a brief time and eventually, in 2009 I had a 360 fusion taking the fused vertabrae from where the first one stopped and all the way to my sacrum.
In 2010 I started having severe neck pain and issues in my arm/hand and yada, yada, yada, ended up (same surgeon) having my C5-C7 fused in March of 2011.
So let's just say with all those fused vertabrae, I'm not exactly Gumby. Problem is, I go from uncomfortable to in pain almost all of the time. I went through the pain mgmt doctors and the opiate pain meds which the body eventually just builds up a tolerance to and frankly I couldn't picture spending the rest of my life on them. The injections and nerve ablations and so on.
It is now suspected that I have SI joint dysfunction. A new surgeon I've gone to has discovered this and suggested surgery. My insurance provider, so far, has SI joint fusion listed as "experimental and investigational". So, I'm waiting on an appeal and frankly, at this point, I'm not sure more surgery is the answer.
I suppose I'm writing as I thought that chatting with fellow sufferers might be therapeutic and I will learn some things along the way as well.
Thank you for listening to my rather verbose introduction.
Sharon in Texas....