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Crippling lower back pain when getting up from seated or bending - 2 years after L5/S1 microdiscect

Hi, I am a new member, and I have been searching this site, and Google for the past 2 months to try and find someone with similar symptoms to me, but to no avail. If I am making a duplicate post, then I do apologise, please do send me links to the discussion as at the moment, I really do feel like I am the only one in world suffering from this problem. Firstly, let me introduce myself;

I am male, 37 years of age, I'm 6'3" and I have scoliosis and crohns disease. I am an office worker, who sits at a desk and the heaviest thing I lift is my pen!
I have suffered from back pain all my life, but over the past 5 years it has got progressively worse. 3 years ago I spent over £1000 on over 30 sessions at a Chiropractor for my lower back pain, these sessions then led me to have severe sciatica in my right leg. During February 2011 I was admitted to hospital on two occasions for severe pain whereby I could not move a single millimetre without screaming in agony, I was put on a morphine drip and given all the painkillers they could safely give me. I had an MRI which confirmed I had a herniated disc at L5/S1 level, and I was referred to a neurosurgeon. He refused to operate until he was 100% certain that my back would not correct itself, I had to put up with this pain for six weeks (I was laid up in bed pretty much this whole time) eventually after a second MRI when my condition got so severe that I was close to be hospitalised for pain management I was given an urgent L5/S1 microdiscectomy the very next day after seeing him, this was early March 2011.

When I woke from the surgery, for the first time for nearly two months I was pain free. I was so happy. I was home after two nights in hospital, and was walking 10-30 minutes every day for the next 8 weeks before returning to work. For the nearly two years I was the best I had ever been, yeah I had numb right leg and the occasional nerve pain in right calf, but it was short, sharp and sudden so it although it would give me a fright, it was gone and appeared less frequent.

I apologise for babbling, but I'm really trying to build picture here in the hope that someone can help…

So now onto where I am now… I moved house in October last year, and I feel that a combination of bad luck and my own stupidity might be the cause of my current problem. I was doing lots of heavy lifting for the move, including trying to push a heavy wardrobe up the stairs. Also, whilst running down the stairs in the middle of the night to get milk for my crying new born baby, I misjudged the stairs and missed the bottom step and came down with a thud which sent heavy vibrations up my spine. At the time, both the lifting and the stair incident didn’t cause me any problems. The next day though I bent down to load the dishwasher and BANG!! It was like lightening going off in my lower back and it crippled me, I slowly got up but could hardly move, the pain was so bad I eventually got into bed and laid flat for the rest of the day. The next day I woke and I was fine. Now this is where I am at…

If I bend, twist or get up from sitting down I feel like I have been hit with a cattle prod on my lower back, its like lightening going through my whole body and I have to hold onto something and stop myself from moving until it has calmed down. When it calms down I have to slowly get in bed and lay flat, after hours of laying flat or even on my side, say 5 or 6 hours, I am ok again. Until I bend, twist or get up from sitting.

I had another MRI a few months back and it showed nothing abnormal. I have normal levels of scar tissue but I do have a tear in my disc which specialist believes when I bend, jam comes out of the doughnut (the disc) and aggravates a nerve and causes the pain - he therefore sent me to a pain specialist.

The pain doctor said that he believe this has happened, and since then my joints have locked up and I am in a vicious circle. Also, because I have no sciatica pain he said its not likely to be nerve pain! I explained it was like lightening which shot through my whole body but he said he needed to rule out the joints so I had facet joint injections 10 weeks ago, this done nothing - so I went back and had nerve root injection near the disc I had the L5/S1 microdiscectomy on - This was 5 weeks ago and again, its done absolutely nothing, I'm getting worse if anything.

My problem is the pain is not constant, for instance as I write this I'm in no pain whatsoever, but I have to do everything with extra special care, I cannot bend, I cannot twist and every time I get up from being seated its scares the living daylights out of me, as depending on the type of seat or how long I have been seated, I will be struck by the pain lightening and it genuinely cripples me. I've found that chairs that are padded well and keep my back upright are the better ones for me, any that are too firm (such as plastic hospital waiting room chairs) or too soft such as settee's or sofas, when I stand I am crippled with pain.

I really am at the end of my tether, my doctors have given me amitriptylene which I take every night for the pain, it does nothing to help whatsoever. The pain when it comes is so severe its in my very lower back, feels like its right in my tailbone, it is definitely nerve pain as it shoots through my whole body like lightening, once it dies down after about 10 seconds of being motionless, I can move ever so slightly and get in bed, I will then be pain free as soon as I lie down, assuming I do not twist whilst in bed. (log roll in and out of bed). At the moment, I feel disabled, I cannot do anything other than walk on egg shells, I cannot lift, I cannot move very well, I cannot function normally and I have no idea what to do.

I'm really hoping someone on here can offer some advice, some guidance, some hope… anything. Its not getting better on its own, no pain killers or meds or injections are touching it. I'm thinking maybe an L5/S1 fusion might work but I don't want to plant this seed in my doctors mind if its not going to cure my problem. Because I have no sciatica pain, its difficult convincing doctors its nerve pain, but it is, I know it is from the severity off it. Also, I have scoliosis which is quite bad, I'm not sure how successful a fusion is with curvature of the spine.

I'm thinking maybe its degenerative disc disease, I don’t know!? Also, the MRI showed nothing, is there anything else that might show something? Maybe an X-ray!?

I would be extremely grateful for any help anyone can give. I thank you for your time, and I am sorry for the long post.
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Comments

  • LizLiz Posts: 7,893
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  • Your story is similar to mine. I had the microdiscectomy and then re-herniated, I never had sciatica etc and had good days and awful days. After physio pain killers, nerve blocks etc, my surgeon did a fusion - It was the worse decision of my life. I have unfortunately had nerve damage following the fusion and am in a far worse place now than before. I know how frustrating pain meds, physio etc is and it seems never ending but if there is any hope of this settling without surgery I would advise taking it. You may well be correct in feeling it is nerve pain as you do not always get the associated sciatic pain.
    I hope things settle without the need for more surgery and wish you very good luck
    Jackie
  • urbanhimuurbanhim Posts: 6
    edited 04/16/2013 - 11:01 AM
    Thank you Jackie, I am sorry you are suffering, pardon the pun but I feel your pain! I have heard more horror stories than good when it comes to spinal fusion, and I do see it as very last resort! I have heard about OPIOID patches which are meant to be good for pain, have you tried these? I have not yet, trying to convince my doctor that I should try them is next on my agenda!
  • Emma_LCEEmma_LC Posts: 11
    edited 04/17/2013 - 9:23 AM
    I am 37, female, slim, 6ft 1, S1/L5 lightening/cattleprod spasms but with random sciatica.

    Having read your history and present, have you had physio advice on how to move correctly? Nobody should ever twist in their movements, never bend your back in flexion (forward), try and keep neutral spine and always bend your knees to get lower. Best sitting position is with knees lower than hips and use thigh muscles to help elevate self from sitting rather than maybe using a rocking momentum to lever up? It's good that you log roll up from bed - what's your bed firmness and height like for your height? The best thing I EVER did was pay out for the BEST bed I could get, a silent night memory foam with lumbar support king divan.

    Amitryptilline takes about 6 wks to kick into your system for nerve pain. It works with some people but jot others. Ask your doctor about Gabopentin, I know people who've had good results from this. Have you tried a TENS machine, heat application and deep tissue massage? - These assist me.

    I know it's going to sound patronising, and I don't mean to, but through similar experiences it took me a while to 'train' myself not to tense up when spasming, you've got to talk yourself through the spasms as they're happening, almost as though you are counselling your brain not to panic....because that's aggravating the moment - you spasm and your brain goes 'argh!' and as a result you are locking up and not being able to move.... This happened to me with the god awful cattleprodding/electric whip. I got into a habit of talking to myself in my head "It's OK....chill, you're going to be fine...you're going to move very slowly and stand up, unbend your knees, slowly uncurl from the body cramp...". Deep breathing helps to get oxygen where it's needed in these crippling moments....

    I highly recommend you see a spinal physio for movement analysis and rehab exercises. I have cycles of recommended exercises I have done daily since diagnosis in 2007.... Never take no pain periods for granted, always do your back exercises, always think about 'how' you are moving to complete an action.

    Sit on extra cushions on the sofa to keep knees below hips, a doughnut cushion may help you. Swimming is good. Walking is good. I notice you said you have a newborn - A friend with lumbar probs is a new mother and got this back supporting wedge thing to carry her baby round with so as not to throw her L5 out..... Try not to put your back into flexion at work.... Could they provide you with a better chair at your desk? A lumbar support cushion?

    I KNOW it is incredibly hard to cope with. There is SO much support on this site. You need to retrain yourself how to move correctly and seek physiotherapy advice... It only takes 1000 repititions of one movement for your brain to remember and keep in its memory bank. You are trapped in a vicious cycle because your brain has remembered your fear, panic and rigidity as a response to the spasms......with patience, hope and sheer perseverance, you CAN get out of this loop.... You WILL get out of this loop, you are in control, not your lower back.

    I wish you a turn for the better. Kind regards, Emma.
  • Firstly Emma, I must thank you for your response! I really do appreciate all advice given, and some of what you have said makes me feel very re-assured. You absolutely correct too in what you say about the fear making me lock-up, its so true... At the mere thought of my back going, I do get tense, I do lock up and it feels like my back is just made of glass, this doesnt help as I will then get back ache, even before the nerve cattleprod hits me!

    I do have a Grahl Duo chair at work, after seeing an Occupational Therapist from Unum on my return to work, this is the only chair I can sit in without getting any pain - I can sit in this all day and i'm fine, I have bought one for home too for when i'm at the computer (like now) and although exactly the same chair, I dont have the same luck, but then again I do not have a proper desk which I guess I need to invest in. My desk at work has been raised, which means now i'm seated in the correct position.

    I am seeing a physiotherapist, had one session so far, just given me some bend backwards exercises, they are going to teach me the Mackenzie something or other, whatever that means I don't know, but I will settle for anything if it helps.

    My last physio though and the chiro I fear put me in this situation anyway, as they put some machine on my back which pummelled my spine and after that I had the sciatica which led to surgery. I am very fearful of someone who does not have a medical background or who does not know my cicrumstance causing me more grief.

    As for bed I have a firm mattress with a 3" memory foam mattress topper on it, this is really comfortable, and I hope correct. I was tempted for a Tempur mattress but the fact you kinda sink into them makes it more difficult for me to turn over in bed, so I do end up twisting more which may cause me more discomfort.

    I'm seeing my pain specialist again on the 13th May, he did mention I may be put forward for laser nerve treatment, i'd be up for anything at the moment if it gets rid of this pain.

    I will speak to him about Gabopentin too, thanks for this. I will also ask about OPIOID patches which I believe are meant to be good too. As for tens machine, this is something I want to speak to consultant about, funnily enough I have a decorator doing some painting at my home at the moment (I cant do anything in my state), and he broke his back some years ago and has a tens machine actually surgically implanted in his spine, this sounds crazy to me but i'm up for trying that too!

    Thanks once again, I really appreciate you taking your time to respond!


  • Emma_LCEEmma_LC Posts: 11
    edited 04/17/2013 - 12:09 PM
    I'm only glad I helped with a little reassurance. Listen to your physio, but also listen to your body, if you don't feel you can fulfil the full range of movement for an exercise, don't push it first time, work within your limitations at your own pace.

    I totally agree regarding the Temper mattress - I trialled one and found it very difficult to manoeuvre on.

    Yesterday I was so stiff after work, I had to walk (shuffle) around the city for an hour before I could get the bus home. I had to stand on the bus home because I just knew I would spasm trying to get up at my stop. Got home. Took 15mins to get on my bed. Couldn't even get down to try and lie. Managed to sit bolstered upright with pile of pillows under my knees. TENS on for an hour and I joined this site, whilst my muscles slowly unlocked. Managed to get up and stand under blazing hot shower for a blissful half hour, then microwaved a wheat pack and got into bed. Managed some very gentle stretching, enough to get me on my side with a huge floor cushion between my upper legs, think I actually fell asleep with the TENS running! Very tender today with mild stiffness in comparison to yesterday's total exacerbation. I usually do physio prescribed dynamic stretching everyday, but not following an acute episode.

    You've mentioned twisting in bed to change position....stop thinking 'twisting' and instead think 'controlled mindful movement'. What the mind is trained to think, the body will follow, is, the mind can, over time assist in mastering the body ( it's taken me a LONG time to figure this out, nearly 3 years to get over a rational-irrational fear of ice!).

    I have a friend with fibromyalgia and Crohn's. She finds some relief with meditation because she says any physical stress worsen's her Chrohn's.

    I recently came off amitrypilline because it was making me very absent minded at work ( not good!), and didn't,t touch the nerve pain. However, it did give me a decent night's sleep, which I'm battling with at the moment! I'm considering asking my doc to prescribe me low dose diazepam to help with sleep as it did used to work well for me as a muscle relaxant.

    Anyway, I hope you find some relief soon. Never give up hope and try to master your fear. Have a good browse around this site, there is so much good info! Take care, kind regards, Emma.
  • Well, after numerous trips to hospital and numerous physio sessions, I am a little better but standing up from sitting or bending forwards can trigger excruciating pain, as too can standing for long periods of time (30 mins or more). A blood test showed I have super low Vitamin D levels so I am on Vit D tablets (for life) now. Because of this I have also had my Sacroiliac Joints MRI'd this weekend so will wait for results. I don't believe this is the cause of my pain as it feels like nerve pain, but shall wait and see!

    My Pain Management specialist did say that an orthopedic surgeon would want to perform a spinal fusion on me, but he himself has stats that show people in a similar situation as me are no better off in a years time after surgery to those that did not have it. Therefore he believes the right route for me is pain management as apposed to further surgery! I'll see how I get on, because surgery offers no guarantee that it will cure my pain anyway, i'm keen to avoid this if I can. So far I can get to and from work, and I guess that is the main priority. I just wish I could explain to the medical professionals that I have seen how bad the pain is when it comes, its not like normal nerve pain that I had in my back before I had microdisctomy, this feels 100 x worse, and really goes into the core of my spine and makes me paralysed until after 5-10 seconds it settles down and I need to hobble to bed and lay flat for a few hours which then seems to reset it! Very weird and very hard to get diagnosed!
  • benjaminahelviebbenjaminahelvie Posts: 1
    edited 06/17/2014 - 5:33 AM
    I just began experiencing all of the mentioned symptoms within the last 48 hours, but have no history of back pains or surgery. I'm hoping it's temporary. Do you have any updates or thoughts to offer me hope? :-)
  • I read your first post 1/2 hour ago and was laughing until I cried!!! Laughing because I would never have thought anyone was going thru the same pain I've been going thru the past 48 hours, And crying because as I was laughing I was being hit in the back with a "cattle prod" to the point of passing out!!! Your story of pain was as if I was writing it !! Im going to the Dr Monday am, I will be waiting at his door when he gets in to get an epidural or something to hold me over Muscle relaxers and Oxy aren't touching this pain! Thank god I have some though, just wish they worked for this pain.. Then setting an apt for an MRI!!!
    History; I had L5S1 fusion in 1996, I am now 47 years young. This hurts worst than anything Ive ever experienced in my life!!! IAnd Ive lived a pretty painful life.If I have to get another fusion or whatever to get rid of this pain, I will. no one should have to live this way, I told my wife if I were a dog or a horse in this pain I would be shot. Since my fusion I have done anything Ive wanted, weight lifting, P90X, snow boarding, golfing, running, whatever, I picked up my mom and put her in my truck 3 days ago, no big deal I lift way more than she weights, but 2 days ago I woke up tried to get out of bed and felt like I was going to die! cattle prod lighting in my lower back brought me to my knees, If I move my head 1 inch the wrong way ,,, Just shoot me!!! HOLY SHIT!!!!!!I just moved the wrong way!!!!!!! Now the only thing I can do without pain is stand upright or gingerly walk about, sneezing or coughing is out of the question! I will take another spinal fusion any day of the week and twice on Sunday if it will get rid of this pain. Im not a fan of pain management or drugs, That's just bandaids to whats wrong!!! If its broke , fix it, I went 18 years after my fusion pretty much living as I wanted, I will do it again and suggest you find a great neurosurgeon that appreciates quality of life vrs being a candy ass afraid to do surgery in a field he is specialized in, #1 advice, when speaking to a neurosurgeon, If he/she is at all god like, rude, condescending , get the hell out of his office. That's the moron that will mess you up. Find a surgeon that is also a professor in your area, Dr. George Sypert in Ft Myers, Fl is who I used, If hes still in practice I will see him next week. He taught a lor of hot shot surgeons how to operate and he didn't hesitate for a moment to give me a quality of life 3 other dumbass neurosurgeons didn't want to risk!!!! Some of these hot shot neurosurgeons are like mechanics that would rather put in a bottle of head gasket sealer "prescribe drugs" instead of correctly taking the motor apart to replace the blown head gasket, " do surgery"!!!
  • I read your first post 1/2 hour ago and was laughing until I cried!!! Laughing because I would never have thought anyone was going thru the same pain I've been going thru the past 48 hours, And crying because as I was laughing I was being hit in the back with a "cattle prod" to the point of passing out!!! Your story was as if I was writing it!! Im going to the Dr Monday am, I will be waiting at his door when he gets in to get an epidural!!!!! Then setting an apt for an MRI!!!
    History; I had L5S1 fusion in 1996, I am now 47 years young. This hurts worst than anything Ive ever experienced in my life!!! IAnd Ive lived a pretty painful life.If I have to get another fusion or whatever to get rid of this pain, I will. no one should have to live this way, I told my wife if I were a dog or a horse in this pain I would be shot. Since my fusion I have done anything Ive wanted, weight lifting, P90X, snow boarding, golfing, running, whatever, I picked up my mom and put her in my truck 3 days ago, no big deal I lift way more than she weights, but 2 days ago I woke up tried to get out of bed and felt like I was going to die! cattle prod lighting in my lower back brought me to my knees, Now the only thing I can do without pain is stand upright or gingerly walk about, sneezing or coughing is out of the question! I will take another spinal fusion any day of the week and twice on Sunday if it will get rid of this pain. Im not a fan of pain management or drugs, If its broke , fix it,
  • bwingbbwing Posts: 3
    edited 01/22/2015 - 4:07 AM
    I read your first post 1/2 hour ago and was laughing until I cried!!! Laughing because I would never have thought anyone was going thru the same pain I've been going thru the past 48 hours, And crying because as I was laughing I was being hit in the back with a "cattle prod" to the point of passing out!!! Your story of pain was as if I was writing it !! Im going to the Dr Monday am, I will be waiting at his door when he gets in to get an epidural or something to hold me over Muscle relaxers and Oxy aren't touching this pain! Thank god I have some though, just wish they worked for this pain.. Then setting an apt for an MRI!!!
    History; I had L5S1 fusion in 1996, I am now 47 years young. This hurts worst than anything Ive ever experienced in my life!!! IAnd Ive lived a pretty painful life.If I have to get another fusion or whatever to get rid of this pain, I will. no one should have to live this way, I told my wife if I were a dog or a horse in this pain I would be shot. Since my fusion I have done anything Ive wanted, weight lifting, P90X, snow boarding, golfing, running, whatever, I picked up my mom and put her in my truck 3 days ago, no big deal I lift way more than she weights, but 2 days ago I woke up tried to get out of bed and felt like I was going to die! cattle prod lighting in my lower back brought me to my knees, If I move my head 1 inch the wrong way ,,, Just shoot me!!! !!!!!!I just moved the wrong way!!!!!!! Now the only thing I can do without pain is stand upright or gingerly walk about, sneezing or coughing is out of the question! I will take another spinal fusion any day of the week and twice on Sunday if it will get rid of this pain. Im not a fan of pain management or drugs, That's just bandaids to whats wrong!!! If its broke , fix it, I went 18 years after my fusion pretty much living as I wanted, I will do it again and suggest you find a great neurosurgeon that appreciates quality of life vrs being a candy ass afraid to do surgery in a field he is specialized in, #1 advice, when speaking to a neurosurgeon, If he/she is at all god like, rude, condescending , get out of his office. Find a surgeon that is also a professor in your area,
  • I had my fusion 2 years ago in same location (L5/S1), and after a workout Saturday, I can't stand up straight and get that lightning shot in lower back when standing from sitting. No one knows yet what it is. I am going to request mri or CT.
  • urbanhimuurbanhim Posts: 6
    edited 03/04/2015 - 12:56 AM
    Ok, so its been well over a year since my first post, and i'd like to offer an update. So having had numerous MRI's and neurosurgeon consultations, from a surgical point of view there is nothing that can be done. Nothing is shown on the MRI which would suggest there is nerve impedment. I trust my neurosurgeon, after all he is private... so if he does operate he gets big dollar from me, but he is saying I dont need an operation, so that alone tells me that he is trustworthy. He didnt want to operate on me to begin with, he also one of the best in south England, so I have to trust what he says.

    I was therefore referred to a pain management specialist, again one of the best in the country, who put me on a course of tablets (for life I might add) called Lyrica

    http://www.lyrica.com/

    This table for me has been a wonder drug, it has totally given my life back. I take one in the morning and one before going to bed, and i'm now able to play with small children, ride bikes, go jogging, get to and from work etc.

    I'm by no means cured, if I stand for too long or sit in the wrong position for too long (20-30 mins) or get up from sitting in the wrong type of chair then i'm in agony, and my back is ruined but the pain is nowhere near as bad as it what, and now its about knowing what I can cannot do. My life has suffered some what, no more doing things I loved like going to music festivals or gigs etc, but at least for say 6/7 days a week I am pain free.

    Surgery is not always the answer, such as in my case, there is nothing to do surgically. A fusion would make no difference as the nothing is touching the nerve in terms of disc. I do however have athritis in my spine which could be the cause of it.

    I'm not thinking i'm cured though, and I fully expect the tablets to do such a good job over time as my body may get used to them or the pain may become to severe for them, when that time comes I will be back to see a specialist. But for the time being, I'd highly recommend anyone who has severe nerve pain (think cattle prod in lower back and lightening shooting through body) to at least request to try Lyrica for a month or two and see how you get on!

    It wont cure you, but it might, just very might give you some pain free moments.


    Thanks, i'll continue to update this thread and follow it for further comments.

  • urbanhimuurbanhim Posts: 6
    edited 03/04/2015 - 12:51 AM
    After various consultations with a neurosurgeon and pain management specialist, I was put on a drug called Lyrica;

    http://www.lyrica.com/

    This has pretty much given me my life back, I take one at night and one in the morning and I'm now able to play with children, ride bikes, go jogging and generally get to and from work with very little trouble. I still cannot sit for too long, nor stand and I cant do think that I love, like music festivals or going to gigs, but generally I'm so much after being on this drug. If you've not tried it I urge you all to give it a go, it may just give you some of your life back so its definitely worth talking to your GP or consultant about.

    Don’t get me wrong, this has not cured me, but I don’t need surgery as MRI's and scans have proved that nothing is aggravating my nerve, its just nerve damage that’s causing it. I trust my neurosurgeon given that he's private and therefore if he does operate he would get thousands of pounds out of me, but he refuses to operate on anyone unless its absolutely necessary.


    I will continue to post on this thread and update as and when my situation changes. I hope all of you pain suffers find a suitable solution. I myself will continue with Lyrica until they find a more permanent solution for me.
  • gapwheatggapwheat Posts: 1
    edited 09/22/2015 - 10:31 AM
    Same symptoms. Over the last 20 years I have experienced approx. 6 episodes like this, usually from a very minor twisting movement. Once as minor as opening a sliding door that I opened hundreds of times. I am currently having the same pain in the same lower right back area. In the past these episodes lasted 5-7 days and went away for several years. I have had no other back issues. Although it has only been 4 days this time there are some differences this time that make me wonder if I have a different problem this time.

    First, 3 days before it started, I had a hard fall off a curb straight onto my nose and lip area on a concrete walkway. Very hard jarring fall; cut lip, scraped and swollen nose, bruised eyes/cheek. No rib or back pain at all. Three days later I stood up from my desk at work and had a very sharp pain in my lower back. Sat down and gently got up . Back was sore but no stabbing pain. A few minutes later I reached down to pick up a paper and like urbanhim, BANG!! like lightening in my lower back. Noticed that as soon as I sat down pain went away quickly. Getting up was the problem.

    Second, while the pain is much the same, When I am laying down or laying back in a recliner, there is no pain. Even turning over in bed causes only slight discomfort for a couple of seconds. I have noticed that when my right leg is straight and I can push myself up from a chair without bending the leg, there is minor if any pain (usually no pain). Getting in bed, as long as I can keep the right leg straight and lift it onto the bed, no pain. No pain while laying on back or either side.

    In he past, when I needed to get up from a recliner, I would need help pushing down on the footrest because The pain was too intense. Now I have no problem getting the recliner into an upright position.

    This makes me think that in the past the problem was a muscle issue whereas the current issue could be more of a nerve issue caused by my fall 3 days earlier, or maybe simply a different muscle triggering the spasm and pain.

    I have been using heat and minor massage, but wondered if I might need to try something different. In the past I used Ibuprofen, but after a kidney transplant 4 years ago I am only able to use Acetaminophen.

    Any thoughts would be appreciated.

    I feel so fortunate after reading the posting of those who have had these issues for several years and hope that they have found treatments or therapies that have helped them.

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  • I'm smiling as I read all of this because I've felt SO ALONE over the past 2 years. Any kind of physical activity puts me into these electric shock/fall attacks. Nothing stops my pain until I'm lying flat on my back...then after a minute or so I can get up off the floor and make it to somewhere better to lie. Usually though, I get another lovely SHOCK when trying to lie back down. I've been through 6 doctors and none can tell me why this is happening. One even said I'd never know....and just to get out there and keep falling down more. OMG!

    Microdiskectomy -1/1010
    Knees buckling - 10/2013
    Electric shock across lumbar and falls to ground - 3/2014
  • SavageSavage United StatesPosts: 4,752
    Welcome to Spine-Health
    Please click on link for helpful information!

    moderator, ~~savage

  • Jillybean079Jillybean079 Posts: 196
    edited 12/09/2015 - 7:12 AM
    I just wanted to say hello, and just share my story as I hope it helps. I had a L4-L5 fusion done last Feb. My neurosurgeon only gave me a 50% chance at it even helping, and it didn't. Now I have hardware in my back, along with my very long list of problems. I just want you to make sure that if you decide the surgery route, you fully understand it could add to your pain. We are all in the same boat, and I hope you find some relief....
    DDD
    Ankylosing Spondylitis
    Bulging discs T12-L3
    Annular Tears with Disc Extrusion L4-S1
    Moderate Central Canal Stenosis
    Moderate Foraminal Stenosis
    Enlarged Facet Joints/Ligaments
    Spinal enthesopathy
    L4-L/5 PLIF with cages, rods, screws 2/15
  • I'm currently on a similar boat. Pain when getting up from sitting down on stiff chairs. Standing for prolonged periods of time. I can also see my right pelvis higher than my left which only happened as if suddenly. Was just doing light chores. Wasn't lifting anything heavy at all. Job keeps me sitting down though for long periods of time.
    Been to chiropractor. He is saying it's slip disc.
  • I am also a new member as off tonight.   I saw my doctor last month for low back pain which was a waste of time.   As of a week ago I fell and rolled my ankle over and landed with all my body weight on my ankle.  Long story short, I fractured my ankle and was given a walking boot to wear with very limited walking.  Now, please know that I have lived with the disease of  Multiple Sclerosis for over 20 years.  I am 66 yrs old.  Losing my balance is not uncommon and that is what caused me to fall last week.  I learned very quickly that this walking boot is very heavy making it pull on my back as I walk with it on.  In less than 24 hours I began to experience what all of you have described and it scares the heck out of me.  The pain is so intense that it takes my breath away once my back muscles go into spasm.  I have been taking Lyrica for years and am now thinking I might need to increase it.  It is just after 4:30 am and I hope I will not need to make another pit stop as it takes me forever, it seems, to stand up and to walk to the bathroom.  For someone who has prided myself for tolerating great pain, I must confess that this kind of pain beyond any pain I have experienced before.  I do so appreciate reading your own experiences.  
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